Each year, the St. Baldrick’s Foundation picks five kids to serve as Ambassadors. In this role, they represent the thousands of kids affected by childhood cancers and remind us of the importance of supporting childhood cancer research.
Take any group of kids and they’ll all have their own way of talking, their own opinions on books, movies, and video games, their own favorite foods.
But there is one thing the St. Baldrick’s 2019 Ambassadors have in common: childhood cancers. Beyond that, they share the support of loving families and a desire to inspire others to raise money for childhood cancer research.
Our 2019 Ambassadors, from left to right: Aiden, Arianna, Sullivan, Gabby, and Brooke.
A new drug approved by the Food & Drug Administration (FDA) is great news for childhood cancer patients.
The drug – known as larotrectnib, or Vitrakvi – is the first developed to target a key genetic driver of cancer, rather than a specific type of tumor. In this case, the drug targets a gene fusion called NTRK, found in some patients with many different types of cancer.
Dr. Federman, a St. Baldrick’s Scholar from 2009 to 2014, was directly involved in Vitrakvi’s development.
With 2018 winding down, it’s time to thank this year’s St. Baldrick’s Ambassadors for their help raising funds and awareness for pediatric cancer research. This group of five kids and their families inspired us with their unique stories of courage and their refusal to give up hope.
We’ll be welcoming a new group of Ambassadors in the new year. For now, let’s check in on the 2018 team to see how they’re doing and what they enjoyed about the Ambassador experience.
Our 2018 Ambassadors, from left: Brooks, Kellan, Maya, Zach, and Julia.
Just over three years ago, the St. Baldrick’s Foundation created its Robert J. Arceci Innovation Award. Designed to give innovative childhood cancer researchers unfettered freedom to explore, it has become one of the most unique and impactful initiatives in pediatric cancer funding.
Today, St. Baldrick’s is pleased to announce that Dr. Laura Broutier of Lyon, France, is the newest recipient of the award.
Dr. Laura Broutier of Lyon, France, the newest recipient of the Robert J. Arceci Innovation Award.
Last year, an estimated 174 million Americans – or more than half the total US population – shopped online or in stores between Thanksgiving and Cyber Monday. In only 5 days, online sales totaled nearly $15 billion. It’s safe to say, then, that many Americans saved money pursuing big bargains that weekend.
If you’re saving money during this year’s Black Friday or Cyber Monday events, consider passing it on this Giving Tuesday, Nov. 27. You can do that right now by visiting our dedicated Giving Tuesday donation page.
The St. Baldrick’s Foundation has announced its 2018 Infrastructure Grant recipients. In total, the grants amount to more than $1.7 million and will be spread across 29 US-based institutions.
For more than a decade, Dr. McLean has been participating in head-shaving events with the St. Baldrick’s Foundation. That’s right – not only does Dr. McLean help fight cancer at Wake Forest Baptist Health in Winston-Salem, N.C., he’s also one of many researchers who help raise money for childhood cancer research by having his own head shaved clean.
It’s a fact the friendly doctor laughs off by pointing out he doesn’t have a lot of hair to shave away in the first place.
“The first time I shaved my head, I was nervous,” Dr. McLean joked. “But then I did it, and I quickly realized, you know, it’s not that big of a deal – my hair is pretty short anyways.”
Dr. Tom McLean, winner of a 2018 Infrastructure Grant, has shaved his head for St. Baldrick’s 10 times.
I was recently invited to serve as a patient family advocate for the St. Baldrick’s / Stand Up to Cancer Pediatric Cancer Dream Team representing the National Cancer Institute. If you’re not familiar with the Dream Team and what they’re doing, it’s worth taking a few minutes to read up on the project.
In short, it’s a multi-institutional effort to accelerate cures for childhood cancer by sharing the skill, knowledge and unique resources of 8 top-notch research institutions.
Carlos Sandi with his son, Honored Kid and Ambassador Phineas.
Dr. Joseph Lubega has big news — he’s bringing specialized pediatric cancer training to his home country of Uganda, thanks to his St. Baldrick’s International Scholar Grant and a partnership between Baylor College of Medicine and Texas Children’s Hospital. Read on for more about the pioneering program and why it will be a lifesaver for kids with cancer in the region.
EXCITING UPDATE: The first class of the East African Pediatric Hematology and Oncology Fellowship Program has officially graduated from the unique two-year program, which is the first of its kind in the region. “This is the most exciting point in my entire medical career,” said Dr. Joseph Lubega, a St. Baldrick’s International Scholar and leader of the fellowship program. “The realization that we have a critical mass of specialists to take care of children with cancer in this region of the world, and that they will train others going forward to infinitely multiply the specialist workforce — it is truly a momentous day.” The graduates are Drs. Barnabas Atwiine, Fadhil Geriga, Philip Kasirye, and Ruth Namazzi. Congratulations, grads!
Dr. Lubega speaks at the launch of the fellowship program in Uganda earlier this month.
Lack of diagnosis, poor care, staggering drug costs, a deficit in specialized medical training for doctors — all of these factors make survival rare for a kid with cancer in Africa.
But St. Baldrick’s researcher Dr. Joseph Lubega hopes to change that with a pioneering program that will train a new wave of East African pediatricians in children’s oncology and hematology.
Remember that check you wrote months ago to that foundation with the funny name? The donation bucket you hauled around the neighborhood? That epic shave? Now, all that hard work has paid off! Buckle your seat belts, ladies and gentlemen, because you funded childhood cancer research! Say hello to the newest grants of 2018 …
In our biggest grants cycle of 2018, St. Baldrick’s is awarding $19.1 million in funds to researchers and institutions dedicated to helping kids with cancer live long, healthy lives – and it’s thanks to your hard work!
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