Luke is blazing a trail with no roadmap. Now 12 years old, he’s been fighting high-risk neuroblastoma since he was 5, with three relapses. He’s constantly relying on the kind of cutting-edge research you support through St. Baldrick’s to find the next new treatment – the one that will make him cancer-free for good.
St. Baldrick’s League of Legendary Heroes recognizes volunteers who have gone above and beyond by participating for three or more years to raise money for lifesaving childhood cancer research.
Members of this honorable group are led by an Honored Kid each year known as the League Champion, who inspires members to continue climbing up in the ranks and fundraising for childhood cancer research.
When their daughter Kimmy was diagnosed with leukemia, Daniel and Taimi Hachey were told her disease had a 90% survival rate. Later tests showed Kimmy had Philadelphia chromosome-like precursor B-cell acute lymphoblastic leukemia, a rare type, difficult to treat. The adjusted survival rate? Only 50-60%. Her diagnosis went from, “The cure rate is high,” to “We are very concerned about her outcome.”
Have you heard of a St. Baldrick’s Hero Fund and wondered what it was — and maybe whether you should have one? Here are the basics, along with how a few families feel about their experience.
In 2017, I was diagnosed with anaplastic large cell lymphoma. It was a shock. I immediately started my first of six rounds of chemotherapy. Every month, I would have to go inpatient for one week for treatment. Unfortunately, I relapsed two months after completing that. I then got a second opinion and did two clinical trials, and when those failed, I went on to Memorial Sloan Kettering (MSK) in New York. One trial failed, but the next finally got me to remission, allowing me to get a transplant.
What does your support of childhood cancer research really mean? See what Carlos Sandi has to say about what a difference the St. Baldrick’s Foundation and specifically the St. Baldrick’s – Stand Up to Cancer Pediatric Cancer Dream Team, have made to his family.
What do you do when you’ve been told your child has maybe 3 to 6 months to live? As the saying goes, “You get busy living or you get busy dying.” That’s the situation Kim and Jeff Schuetz were put in when their son Austin relapsed not once, but twice after treatment for Acute Lymphoblastic Leukemia (ALL), the most common type of childhood cancer.
It’s tough to beat pizza as a kid-friendly food. Birthday parties? Pizza. Not sure what to eat for dinner? Pizza. But on this National Pizza Day, February 9, 2020, there’s a connection between pizza, kids with cancer, and a pay-it-forward movement that continues – nearly 7 years after a girl named Hazel started it with a hand-crafted sign from her hospital room.
This Is the Message That Started It AllLittle did Hazel’s grandmother and mother know, the hand-made sign meant to cheer Hazel up during treatment would go viral.
St. Baldrick’s League of Legendary Heroes recognizes volunteers who have gone above and beyond in the fight against childhood cancers with three or more years of service. These are dedicated supporters of every role — shavees, volunteers, barbers, DWYW fundraisers, advocates and more! This honorable group is led by an Honored Kid known as the League Champion, who hopes to inspire members to continue fundraising for childhood cancer research.
September 2020 update: Brody is now fighting medulloblastoma for the 3rd time.
Meet Brody, our 2020 League Champion. In 2014, doctors found a mass in the back of Brody‘s head. He was just 8-years-old at the time, and his mom, Sarah, says it was the beginning of life-changing events.
Every year, St. Baldrick’s selects five children to serve as Ambassadors. They represent the wide diversity of kids who are affected by childhood cancers and their stories underscore the importance of supporting childhood cancer research.
There is one common thread though – each child is more than their cancer diagnosis. They have their own favorite holidays, music, foods and hobbies. And as their families will attest, each child has their own unique personality from spunky and fun loving to compassionate and caring.
While we normally select five children – with one who has passed away from cancer representing the 1-in-5 who don’t survive – this year we have chosen six kids, in order to include twin brothers Seth and Joel, who both died months apart from each other.
Older Posts »