Research

A Hard Pill to Swallow: Why Some Kids With ALL Relapse

by Erinn Jessop, St. Baldrick's Foundation
January 11, 2017

Taking chemo meds every single day can be tough for a kid with cancer. They might forget or just not want to take them. Unfortunately, Dr. Smita Bhatia found that not swallowing that little pill can have big consequences. Read on to learn more about this problem, its effects, and how funding from St. Baldrick’s is helping.

Dr.

Dr. Smita Bhatia is a pediatric oncologist who wants to keep her patients healthy by helping them stick to their chemo regimen.

For kids with acute lymphoblastic leukemia (ALL), having to take their chemo meds is as routine as their nightly bedtime story. That’s because for the last two years of their treatment, which is called maintenance, these children need to take their medication every single night.

But that doesn’t always happen.

Read more »


Kids with Cancer

Meet Ike

by St. Baldrick's Foundation
January 5, 2017

Want to see someone tough? Look no further than Ike.

Rocky and Rambo have nothing on this childhood cancer fighter who just finished treatment for acute lymphoblastic leukemia.

2017 ambassador ike

Read more »


Kids with Cancer

A Childhood Saved by Research: Will’s Story [VIDEO]

by Erinn Jessop, St. Baldrick's Foundation
December 13, 2016

When Honored Kid Will was 3 years old, he was diagnosed with cancer. Now, the third grader with the dimpled smile and bright eyes is healthy, thanks to a clinical trial made possible by St. Baldrick’s funding. Read on for Will’s story of survival.

Will

NEW VIDEO: Will’s Story >

On the surface, Will looks like any other 8-year-old boy. He loves playing soccer, camping with his family, and playing with their dog, Jack. The third grader is a big fan of superheroes and is also quite the successful fisherman.

You’d never guess that most of his young life has been spent fighting cancer.

Read more »


Families

Doing It Her Way: Annie’s Story

by Erinn Jessop, St. Baldrick's Foundation
November 28, 2016

Honored Kid Annie is a force to be reckoned with. In fact, when the little girl was first diagnosed with leukemia, she told her mom, “I’m going to kick its butt.” And that’s just what this spirited fighter is doing, with her loving family backing her up. Read on for more about this amazing kid and her fight against cancer.

Annie makes a funny face

Annie doesn’t let anything stop her from being a kid — not even cancer.

The firecracker of a 5-year-old loves to dance, especially to the rock band AC/DC. Her signature move is like “the worm” but with less moving and the addition of a foot wiggle.

Read more »


Families

‘Our Miracle’: An Update on Abby

by Patty Furco
November 15, 2016

Over the summer, Abby’s dad shared some news with us: Abby was still cancer free, but her organs were failing. The doctors told her she had 48 hours to live. But Abby disagreed, and four months later, Abby’s mom wants us to know that Abby is still here — and she’s been busy!

Abby and her mom spend a day at the beach

Abby and her mom on the beach in the spring. Abby underwent a bone marrow transplant for relapsed Ph+ acute lymphoblastic leukemia in January 2015 and has been battling complications ever since.

It’s been four months since we brought Abby home.

We brought our baby home because the doctors truly believed that Abby was beyond saving and it was time for end-of-life care. All of the signs were there. To all of the health care professionals from many hospitals and specialties, Abby’s body was failing and we were doing more to her than for her.

Read more »


Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

Read more »


Families

‘Pura Vida!’: Phineas’ Summer in Costa Rica

by Carlos Sandi
September 19, 2016

Ambassador Phineas’ dad, Carlos, shares what the family has been up to this past summer, and he looks back at where their family was 10 years ago — and where they might be now if it weren’t for the immunotherapy clinical trial that saved Phineas’ life.

Phineas Costa Rica water

Ten years ago I was nearing the end of the worst summer of my life.

Read more »


Kids with Cancer

‘My One Ticket to Live On’: How a Clinical Trial Saved Mitch Carbon’s Life

by Erinn Jessop, St. Baldrick's Foundation
September 9, 2016

Like most college freshmen, Mitch Carbon is excited to be getting a fresh start. But unlike his peers, just two years ago, he didn’t think he’d live to see this day. Read on for more of Mitch’s story and the clinical trial that saved his life — all made possible by YOU.

Mitch hugs his dad

When Mitch Carbon was a junior in high school, he was preparing to die.

Read more »


Families

Out of Treatment and Back to School: Two First-Graders Find Acceptance in the Classroom

by Erinn Jessop, St. Baldrick's Foundation
August 31, 2016

To most parents, the first day of school is a big deal in a good way. For the parents of kids fighting cancer, however, the first day of school can be the start of one more scary, uncharted journey. But it doesn’t have to be. Read on for the story of two cancer fighter classmates who were embraced by their school, where their cancer journeys became a valuable lesson in acceptance and the realities of childhood cancer.

Alex and Scott sit together

Alex and Scott sit together during a meeting at the clinic.

Every day, the first-graders at Triangle Math and Science Academy used to break out the Clorox wipes to clean their desks. The scrubbing of their workplaces became so routine that it’s now second nature to some of the kids who attend this charter school in North Carolina.

But to Liz Ferm and Nancy Lenfestey, it means the world.

That’s because both of their sons were in that class, and their classmates started the routine to keep them safe.

Read more »


Kids with Cancer

‘We Fight On’: An Update on Abby

by Joe Furco
July 15, 2016

Last month, we shared a glimpse into Abby’s life after a bone marrow transplant and the complications brought on by the very treatments that saved her life. Although cancer free, some of her organs are beyond repair. But even through these difficult days, Abby’s spirit remains strong. Her dad shares this update.

Furco Family Photo

Abby with her family.

Thursday morning before work, Abby’s doctors called.

On the line were two of her transplant doctors, some intensive care specialists, a social worker, and a quality of life doctor. They suggested I come back to the hospital to be with Abby and her mom, although there was nothing emergent.

Abby is sick, they said.

Read more »


 Older Posts »