Families

Chef, Shavee, Survivor: Petey’s Story

by Erinn Jessop, St. Baldrick's Foundation
March 14, 2017

Childhood cancer survivor and budding chef, Petey Miceli, celebrates 5 years cancer free and recognizes Pi Day — the day we celebrate the ratio of the circumference of a circle to its diameter — by sharing his story, along with his famous pizza pie recipe. (Pi Day is today, March 14 or 3.14 — get it? See, math can be fun! And delicious.)

Petey with his famous pizza

Petey shows off his handcrafted pizza pies.

For 13-year-old Petey Miceli, his passion for cooking all started with an egg — and childhood cancer.

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Families

‘Adapt and Overcome’: Maddox in Maintenance

by Geri Shepard
February 27, 2017

You might know Honored Kid Maddox — or Maddy, as his mom calls him — as the 10-year-old cancer survivor spouting off words like “dexamethasone” in our latest campaign videos. Maddox’s childhood changed drastically after he was diagnosed with leukemia eight years ago. Now, he’s doing everything he can to take his childhood back from cancer — but, as his mom Geri explains, life in remission hasn’t been easy.

Maddox and his family

Maddox’s mom Geri, little sister Danika, and dad Brad pose for a photo with Maddox during a St. Baldrick’s event.

In 2010, after months and months of intense chemotherapy, Maddox was in remission.

He had one last phase of treatment for acute lymphoblastic leukemia (ALL), and it was meant to keep him there.

Maintenance phase.

It was a gigantic step for us towards some sense of normalcy.

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Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

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Research

A Hard Pill to Swallow: Why Some Kids With ALL Relapse

by Erinn Jessop, St. Baldrick's Foundation
January 11, 2017

Taking chemo meds every single day can be tough for a kid with cancer. They might forget or just not want to take them. Unfortunately, Dr. Smita Bhatia found that not swallowing that little pill can have big consequences. Read on to learn more about this problem, its effects, and how funding from St. Baldrick’s is helping.

Dr.

Dr. Smita Bhatia is a pediatric oncologist who wants to keep her patients healthy by helping them stick to their chemo regimen.

For kids with acute lymphoblastic leukemia (ALL), having to take their chemo meds is as routine as their nightly bedtime story. That’s because for the last two years of their treatment, which is called maintenance, these children need to take their medication every single night.

But that doesn’t always happen.

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Kids with Cancer

Meet Ike

by St. Baldrick's Foundation
January 5, 2017

Want to see someone tough? Look no further than Ike.

Rocky and Rambo have nothing on this childhood cancer fighter who just finished treatment for acute lymphoblastic leukemia.

2017 ambassador ike

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Kids with Cancer

A Childhood Saved by Research: Will’s Story [VIDEO]

by Erinn Jessop, St. Baldrick's Foundation
December 13, 2016

When Honored Kid Will was 3 years old, he was diagnosed with cancer. Now, the third grader with the dimpled smile and bright eyes is healthy, thanks to a clinical trial made possible by St. Baldrick’s funding. Read on for Will’s story of survival.

Will

NEW VIDEO: Will’s Story >

On the surface, Will looks like any other 8-year-old boy. He loves playing soccer, camping with his family, and playing with their dog, Jack. The third grader is a big fan of superheroes and is also quite the successful fisherman.

You’d never guess that most of his young life has been spent fighting cancer.

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Families

Doing It Her Way: Annie’s Story

by Erinn Jessop, St. Baldrick's Foundation
November 28, 2016

Honored Kid Annie is a force to be reckoned with. In fact, when the little girl was first diagnosed with leukemia, she told her mom, “I’m going to kick its butt.” And that’s just what this spirited fighter is doing, with her loving family backing her up. Read on for more about this amazing kid and her fight against cancer.

Annie makes a funny face

Annie doesn’t let anything stop her from being a kid — not even cancer.

The firecracker of a 5-year-old loves to dance, especially to the rock band AC/DC. Her signature move is like “the worm” but with less moving and the addition of a foot wiggle.

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Families

‘Our Miracle’: An Update on Abby

by Patty Furco
November 15, 2016

Over the summer, Abby’s dad shared some news with us: Abby was still cancer free, but her organs were failing. The doctors told her she had 48 hours to live. But Abby disagreed, and four months later, Abby’s mom wants us to know that Abby is still here — and she’s been busy!

Abby and her mom spend a day at the beach

Abby and her mom on the beach in the spring. Abby underwent a bone marrow transplant for relapsed Ph+ acute lymphoblastic leukemia in January 2015 and has been battling complications ever since.

It’s been four months since we brought Abby home.

We brought our baby home because the doctors truly believed that Abby was beyond saving and it was time for end-of-life care. All of the signs were there. To all of the health care professionals from many hospitals and specialties, Abby’s body was failing and we were doing more to her than for her.

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Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

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Families

‘Pura Vida!’: Phineas’ Summer in Costa Rica

by Carlos Sandi
September 19, 2016

Ambassador Phineas’ dad, Carlos, shares what the family has been up to this past summer, and he looks back at where their family was 10 years ago — and where they might be now if it weren’t for the immunotherapy clinical trial that saved Phineas’ life.

Phineas Costa Rica water

Ten years ago I was nearing the end of the worst summer of my life.

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