It’s officially Childhood Cancer Awareness Month and we are kicking it off by getting to know Honored Kid Micah! Bright, curious and quite the dancer, Micah has been fighting neuroblastoma since he was 15 months old. Thanks to research, he’s now cancer free! So, we asked him our burning questions, like how does it feel to be a cancer-free kid? And what song is he dancing to these days? This is what Micah said…
(Left) Micah goofs off in the hospital during treatment for neuroblastoma in 2015. (Right) Micah plays on the monkey bars — something he missed doing when he was stuck in the hospital during treatment. After multiple relapses and undergoing many different treatments and experimental clinical trials, Micah is currently cancer free.
1) If you could have a superpower, what would it be and why? The ability to turn into any dragon because I love the “How to Train Your Dragon“ books, movies, and TV series.
2) What ’s your go-to song to sing and dance to? “This Is Me” from “The Greatest Showman”
What Does it Take to Beat Cancer, Fly on a Zip Line and Go to School Without Sight? Bravery Every Day
Honored Kid Matthias was diagnosed with retinoblastoma when he was just 3 months old, leaving him blind. But that hasn’t stopped him. Today, Matthias is a childhood cancer survivor and an independent 10-year-old who is learning to navigate the world without sight. As his mom, Katie, shares, he’s one brave kid.
Matthias was just a baby when doctors had to remove his eyes to save his life. Since then, he’s learned to read braille and use a cane to help him get around. Photo by Jen Sherrick Photography
When Matthias lost his eyes to bilateral retinoblastoma nine years ago, we never could have imagined how happy and full his life would be. He is a hiker, traveler, and adventurer who has visited 23 states and two countries. He loves sports, especially hockey. He is obsessed with learning about weather, and he is a good student. He is a loyal friend and a fierce advocate for pediatric cancer research and disability rights. He has shaved his head five times for St. Baldrick’s, traveled to Washington D.C. twice to talk to legislators about the STAR Act and is a guest speaker for a disability awareness organization.
(Left) Sean in treatment at Memorial Sloan Kettering Cancer Center in New York. (Right) Sean with his mom, Marcia, and dad, Richard, during his graduation from Indiana University.
Honored Kid Sean Kligler graduated from college in May. The day was a tangle of emotions – happiness and sadness both.
“At graduation, I was happy — all those years of schooling finally paid off. I was able to get a college degree,” he said. “Of course, I was sad as well. I really enjoyed my time in college and I made some really good friends along the way.”
But there was another emotion mixed into that bittersweet day. It was gratitude. That’s because when Sean was 5 years old, he was diagnosed with childhood cancer. And when you have cancer, surviving to graduate college, or even attend college, is anything but guaranteed.
Honored Kid Zoe was diagnosed with acute myeloid leukemia when she was a teenager. Now, almost four years after finishing treatment and getting the news that the cancer was gone, Zoe is taking a look at what she’s learned during her cancer — and cancer-free — journey.
Honored Kid Zoe Wagner is now 19 years old and has been cancer free for four years.
The anticipation of upcoming milestones and the overall exploratory nature of the teenage years make the age of 15 a common time to be naïve – and naive I was. Life was simple and my carefree spirit allowed me to believe it would always be that way. This trusting nature also led me to ignore the severity of the disease symptoms I was having for months. As these symptoms got worse, my uncomplicated mind created uncomplicated explanations for the way I was feeling. I told myself that I was always tired because I was a teenager, and that this exhaustion was the cause of my daily headaches. I blamed my newly heavy periods on ordinary hormonal changes, bruising on being clumsy, unusually pale skin on it simply not being sunny enough out, and weight loss on, well, it happens. It wasn’t until red needle-prick like dots appeared all over my legs that I requested to go to the doctor.
Rebecca smiles with her 2-year-old daughter, Sophie.
Childhood cancer had already taken so many things from Rebecca Morrow. During treatment, her hair dropped out twice. She missed her entire seventh-grade year. Her social life evaporated. The treatment devastated her developing body. Sometimes when treatment got really tough, her drive to survive crumbled.
So, when the doctors told a teenage Rebecca that she’d likely never have children of her own, she shrugged it off.
Rebecca had already lost so much to childhood cancer. What was one more thing?
It’s National Cancer Survivors month and Nora, a 30-year survivor, has an important message for you — that being a childhood cancer survivor isn’t the end of the fight, not by a long shot. That’s why pediatric cancer survivors need you to fund kids’ cancer research, because more research not only makes more survivors, it helps those survivors live long and healthy lives.
Nora is a 30-year survivor of non-Hodgkin lymphoma. She was diagnosed in March 1988 at the age of 10.
Dear St. Baldrick’s Supporter,
On my 10th birthday, I tripped. That’s all it was … I tripped and sprained my ankle. I was a healthy preteen, who would take any chance to dance around to George Michael or Rick Astley, but my ankle just wouldn’t heal. Months of wrong diagnoses followed until March 14, 1988, when I got the news I had cancer; lymphoma had spread to my bones. I had stage 4 cancer.
In the 80’s, you didn’t talk about childhood cancer. My world began to shrink the day I got my diagnosis. I couldn’t go to school, I stopped being invited to parties, my old friends drifted away and the new friends I made during treatment were dying. Ask any kid with cancer today if this sounds familiar – they’ll likely say yes. Unfortunately, things haven’t changed much and that’s why we need your help.
1. Each year, more children diagnosed with cancer will be cured, joining the growing population of long-term childhood cancer survivors.
Thanks to advances in chemotherapy, radiation and surgical techniques, more children and adolescents are being cured of cancer every year. Today, there are over 420,000 survivors of childhood cancer in the United States, representing approximately 1 in 750 young adults, and that number is expected to exceed 500,000 by the year 2020.
Today is the first day of National Cancer Survivors Month. To kick it off, 2014 Ambassador Lauren shares what survivorship means to her and gives us a peek into what life is like as a childhood cancer survivor.
Diagnosed at age 14 while still in high school, Lauren is now 20 years old and is pursuing her dream of becoming a pediatric oncologist, so she can devote her career to both to the treatment of kids with cancer and to the research to find cures.
June 7th, 2012 is a day that will forever be etched into my memory. This was the last day of my freshman year of high school, but also the day my life was forever changed. After eating dinner, my mother began shaking in her seat as my stepfather informed me that the tumor that had been removed from my abdomen was malignant and so were the surrounding lymph nodes. I had stage 4 neuroblastoma.
Marianne’s daughter, Melissa, is a 31-year survivor of pediatric brain cancer — essentially, she’s a miracle. But being a survivor doesn’t mean that the childhood cancer journey is over. Just the opposite. Here is Marianne with the story of a recent difficult chapter of Melissa’s ongoing struggle with the long-term effects of her treatment.
Marianne’s daughter, Melissa, with her nurse of 31 years. Melissa was diagnosed with brain cancer as a child and has since struggled with severe long-term effects from the intense treatment she received.
It’s been over 31 years and it can still make my heart race with fear. Cancer. Cancer. Cancer.
Melissa, my daughter, has lived independently for over 17 years, despite limitations caused by treatment for pediatric brain cancer. Seventeen years after finishing treatment, she began suffering through many seizures and 8 strokes. She was forced to quit her job with Disney and rely on disability benefits to pay her bills.
At St. Baldrick’s, funding childhood cancer research is our mission. But for six of our staff, the goal is deeply personal — because their children were diagnosed with cancer. Read on for thoughts from these moms on what Mother’s Day means to them, what they’ve learned about motherhood through the good times and bad, and how childhood cancer has changed their lives forever.
St. Baldrick’s staff members and cancer moms from left to right: Robyn with her son Keaton, Nancy with her son, Scott, and Vanessa with her daughter, Aubrey.
Danielle holds her son Mason, who was diagnosed with medulloblastoma in 2006. A force to be reckoned with, the little boy faced his cancer with stalwart determination and his signature stubbornness. Mason died in 2007.
Mother’s Day is always bittersweet for me. I will always be a mom to three boys. I just do not have one here with me because cancer took Mason’s life from us. Mother’s Day reminds me of Mason’s laughter, competitive nature, his love for his brother and the family we had. I am Mason’s mom. Cancer made me do things to my son I never imagined I would have to do to my child to get him to survive. Cancer taught me how to be a fierce advocate for my child. Cancer made me live my worst moments as a mom and some of the best. Cancer taught me I had to take care of and protect all my kids, not just the one who was sick. Cancer broke my heart. But being a mom to Mason, Mateo, and Marcus puts my heart back together every day.
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