Families

Chef, Shavee, Survivor: Petey’s Story

by Erinn Jessop, St. Baldrick's Foundation
March 14, 2017

Childhood cancer survivor and budding chef, Petey Miceli, celebrates 5 years cancer free and recognizes Pi Day — the day we celebrate the ratio of the circumference of a circle to its diameter — by sharing his story, along with his famous pizza pie recipe. (Pi Day is today, March 14 or 3.14 — get it? See, math can be fun! And delicious.)

Petey with his famous pizza

Petey shows off his handcrafted pizza pies.

For 13-year-old Petey Miceli, his passion for cooking all started with an egg — and childhood cancer.

Read more »


Families

‘I Can Be the Voice for My Son’: Father Shaves his Head for the Seventh Time in Honor of his Son

by Erinn Jessop, St. Baldrick's Foundation
March 7, 2017

For Eric Haddad, head shaving isn’t just a one-time deal, because as the dad of a kid who fought brain cancer, he knows firsthand that the effects can last a lifetime. This month, at the Rocky River event in Ohio, Eric will be shaving his head for the seventh time, while raising funds for research that he hopes will lead to better, safer treatments for kids with cancer.

Eric shaves for his son

During a past event, Eric shaves for his son, Shane.

When Shane Haddad was 4 years old, he started fighting childhood cancer. Seven years later, he hasn’t stopped fighting.

Read more »


Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

Read more »


Survivors

‘Our Own Little Valentine’s Day’: Ambassador Sarah’s Wedding Story

by Sarah Rostock
February 14, 2017

Just in time for Valentine’s Day, your favorite lovebirds are back – 2012 Ambassador Sarah and her honey Patrick. You remember how it all began, almost 10 years ago – boy meets girl, girl fights cancer with boy by her side, boy pops the question. Now read on for the happiest of happy endings.

Sarah and Patrick on their wedding day

Photos courtesy of Chelsie Darling Photography

Patrick and I tied the knot on October 29, 2016. It started like any other good day, with Starbucks and reflection.

I kept thinking, ‘I am about to marry the man who had loved me through it all — through long distances, relapse, transplant, recovery, and finishing my degree. He has never failed to love me.’

I had no fears about our marriage standing the test of time, because we had already been through so much together. Our wedding day had been more than nine years in the making – and what a day it was!

Read more »


Research

Moving On From Cancer: The Challenges Adolescent and Young Adult Survivors Face

by Erinn Jessop, St. Baldrick's Foundation
September 23, 2016

Being a teen or young adult can be tough. Being a teen or young adult who has survived cancer is even tougher. Read on for more about the unique challenges adolescent and young adult (AYA) survivors face, and how a St. Baldrick’s researcher is reaching out to help.

Dr. Lisa Schwartz explores the health app with a patient

Psychologist Dr. Lisa Schwartz and a patient look at the health app that she’s using in her texting intervention study.

The teenage and young adult years are a time of discovery, a time to map out one’s identity, and to stretch into what could be. Those years are a coming-of-age dance, with a side of hormones, prom dates, and boundary pushing.

Sometimes it’s a little awkward, and maybe filled with more than a few mistakes. But as much as some of us wanted to skip right over them, those years are crucial.

But what happens when cancer is thrown into the mix?

That already rough developmental period gets rockier.

Read more »


Kids with Cancer

‘My One Ticket to Live On’: How a Clinical Trial Saved Mitch Carbon’s Life

by Erinn Jessop, St. Baldrick's Foundation
September 9, 2016

Like most college freshmen, Mitch Carbon is excited to be getting a fresh start. But unlike his peers, just two years ago, he didn’t think he’d live to see this day. Read on for more of Mitch’s story and the clinical trial that saved his life — all made possible by YOU.

Mitch hugs his dad

When Mitch Carbon was a junior in high school, he was preparing to die.

Read more »


Families

Out of Treatment and Back to School: Two First-Graders Find Acceptance in the Classroom

by Erinn Jessop, St. Baldrick's Foundation
August 31, 2016

To most parents, the first day of school is a big deal in a good way. For the parents of kids fighting cancer, however, the first day of school can be the start of one more scary, uncharted journey. But it doesn’t have to be. Read on for the story of two cancer fighter classmates who were embraced by their school, where their cancer journeys became a valuable lesson in acceptance and the realities of childhood cancer.

Alex and Scott sit together

Alex and Scott sit together during a meeting at the clinic.

Every day, the first-graders at Triangle Math and Science Academy used to break out the Clorox wipes to clean their desks. The scrubbing of their workplaces became so routine that it’s now second nature to some of the kids who attend this charter school in North Carolina.

But to Liz Ferm and Nancy Lenfestey, it means the world.

That’s because both of their sons were in that class, and their classmates started the routine to keep them safe.

Read more »


Advocacy

A Balancing Act: An Update on Kate Foster

by Kate Foster
August 23, 2016

Two years ago we brought you the incredible story of Kate Foster, who was just getting back to the gym after surviving childhood cancer. Now she’s 17 and still competing in gymnastics — all while keeping up top grades, applying to colleges, and advocating for kids with cancer. Read Kate’s story in her own words below.

Kate Foster Beam

When I was 8 years old I started competitive gymnastics and it quickly became my life.

Read more »


Advocacy

‘Never Stop Fighting’: Why I Support the STAR Act

by Pete Bush
July 25, 2016

Thirteen-year-old Sydney spent much of her early childhood battling a brain tumor. This year, the nine-year childhood cancer survivor took a special trip with her dad, Pete, to Washington, D.C. “This experience taught us how important it is to never stop fighting for something you believe in,” Pete writes. He tells Sydney’s story and shares why the trip was so meaningful to them.

Pete Bush and Sydney at Action Days

Pete and Sydney outside of Senator Marco Rubio’s office during this year’s Childhood Cancer Action Days in Washington, D.C.

Whiplash. Pulled muscle. Bronchitis. Flu. Virus. Stomach bug. For months, it was a different diagnosis at every doctor’s visit.

Read more »


Families

10 Reasons Why My Parents Are My Heroes

by Cheyenne D.
July 24, 2016

We asked Ambassador Cheyenne who her heroes are. Her answer? “My mom and dad.” So today, for National Parents’ Day, we asked her to tell us why — and she gave us 10 great reasons. (Number 10 is our favorite!)

Cheyenne and her parents

Cheyenne with her mom and dad, Amy and Levi.

Read more »


 Older Posts »