Facts

What Is Wilms Tumor?

by Elizabeth Perlman, MD and Jeffrey S. Dome, MD, PhD.
March 10, 2020

What is Wilms tumor?

Wilms tumor is a cancer of the kidney. It is one of the most common types of childhood cancer, with approximately 500 new patients a year in the United States alone. It was named after German surgeon Max Wilms, who is credited with discovering the cancer in 1899. There are several other less common types of kidney cancer that affect children and teenagers. These include clear cell sarcoma, malignant rhabdoid tumor, and renal cell carcinoma.

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Facts

What You Should Know About Research into Rare Pediatric Cancers

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
February 25, 2020

Rare Disease Day is observed on the last day of February, but the St. Baldrick’s Foundation fights rare diseases year-round.

What is rare disease?

When it comes to cancer, or even diseases as a whole, “rare” is a misleading word.

In the U.S., a rare disease is defined as “any disease or condition that affects fewer than 200,000 people in the United States, or about 1 in 1,500 people.” About 72% of rare diseases are genetic, and of those, 70% start in childhood.

Worldwide, people with rare diseases make up less than 6% of the population. But more than 6,000 rare diseases have been identified so far, and they affect more than 300 million around the world. If these people were a country, they would be the world’s third largest nation.

rare disease stats

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Facts

What Is Neuroblastoma?

by St. Baldrick's Foundation
January 31, 2020
What is Neuroblastoma graphic

Susan L. Cohn, M.D., chair of the St. Baldrick’s Scientific Advisory Committee and world renowned neuroblastoma expert, explains what neuroblastoma is and how St. Baldrick’s research is contributing to better outcomes for patients.

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Facts

What is Hepatoblastoma?

by Edward Prochownik, M.D., Ph.D.
October 8, 2019
What is Hepatoblastoma?
Dr. Edward Prochownik is a past St. Baldrick’s Research Grant recipient and is The Paul C. Gaffney Professor of Pediatrics and Professor of Microbiology & Molecular Genetics at Children’s Hospital of Pittsburgh. In this blog post, he answers the question “What Is Hepatoblastoma,” and shares some other information about the cancer, its treatment, prevalence, and why research is so important.

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Childhood Cancer

Pediatric Cancer Dream Team Works Toward More Breakthroughs

by St. Baldrick's Foundation
October 2, 2019

When the St. Baldrick’s Foundation — Stand Up 2 Cancer Pediatric Cancer Dream Team was created in 2013, the idea was to pursue breakthroughs, specifically in the area of immunotherapy enabled by the application of modern genomic technologies. Now, with St. Baldrick’s as the primary funder and each member institution also investing financially — the Dream Team looks to build on the tremendous momentum in immunotherapy for childhood cancers.

Dream Team Map

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Facts

Project:EveryChild

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
September 18, 2019

Project:EveryChild is an ambitious initiative to find better cures for every type of childhood cancer, no matter how rare. And it is only possible because of the combined efforts of researchers, families of children with cancer, and you.

There are about 14,000 new cases of childhood cancer each year in the United States, and the most common – acute lymphoblastic leukemia – accounts for about 3,500 of those. But there are some types of cancer that are diagnosed in fewer than 100 children a year. The rarer the disease, the more challenging it is for researchers to make progress.

No matter how common or rare, each child deserves the best chance at a cure. That’s where Project:EveryChild comes in.

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Facts

Why Do Kids Get Cancer?

by St. Baldrick's Foundation
September 13, 2019

Why do kids get cancer? That’s the question we asked Dr. John Maris, who co-leads the St. Baldrick’s Foundation – Stand Up to Cancer Pediatric Cancer Dream Team. Researchers like Dr. Maris are working hard to find the answer to this question because it could hold the key to cures for kids’ cancer.

Why Do Kids Get Cancer

Why do kids get cancer? In short, there’s no single, easy answer.

The answer is complicated, said Dr. Maris.

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Facts

What is Burkitt Lymphoma?

by St. Baldrick's Foundation
September 11, 2019

Raman Bahal, Ph.D., a St. Baldrick’s Research Grant recipient at the University of Connecticut, Storrs, Connecticut, explains Burkitt Lymphoma symptoms, treatment options, and research opportunities.

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Facts

Childhood Cancer Facts: 10 Things You Should Know About Childhood Cancer

by St. Baldrick's Foundation
September 10, 2019

Every year, 300,000 families around the world will hear, “Your child has cancer.” But you can do something about it.

Childhood Cancer Facts

Aiden, Forever 7 (Angel), Diffuse intrinsic pontine glioma (DIPG), One of five 2019 Ambassadors

If you want to get involved in the fight against childhood cancer, here are 10 facts you should know.

1. Childhood cancer is the number one disease killer of children in the U.S.
Cancer is the leading disease-related cause of death for children and adolescents ages 1-19, and 1 in 264 children and adolescents will develop cancer before the age of 20.

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Advocacy

This Childhood Cancer Awareness Month, Join Us to #DFYchildhoodCancers

by St. Baldrick's Foundation
September 4, 2019

September is here, or as we call it: Childhood Cancer Awareness Month (CCAM) – which, as you’d imagine, is a pretty big deal at the St. Baldrick’s Foundation, the #1 private funder of pediatric cancer research. Every year at this time there are blogs, social posts, invitations to change your Facebook profile or use a hashtag on Twitter related to CCAM – but this year you’ll also be seeing something new.

Although CCAM helps build awareness of pediatric cancers, there’s a need for a more permanent rallying cry. We don’t want September to be one month when people tweet and share Facebook updates about kids with cancer and then move on – after all, somewhere in the world, every two minutes a child is diagnosed with cancer. We purposely created this campaign to bring this reality front and center.

First, though, a little background.

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