Want to know what it’s like to be a teenage survivor of childhood cancer? We asked 16-year-old Michael G. to share his experience, during National Cancer Survivor Month.
A childhood cancer survivor himself, Gregory J. Aune, MD, PhD, shares his personal experience and thoughts during National Cancer Survivor Month.
(Originally posted on Medium on May 19th, Dr. Aune graciously agreed to share this with St. Baldrick’s.)Dr. Aune was a St. Baldrick’s Scholar 2014 – 2019, serves as a scientific reviewer and is a member of the Advocacy Committee for the St. Baldrick’s Foundation. He is the Greehey Distinguished University Chair for Cancer Survivorship in Children at Greehey Children’s Cancer Research Institute in San Antonio, Texas.
June is National Cancer Survivor Month, a time to celebrate childhood cancer survivors – and to keep the focus on progress. Because surviving is just the first step in a lifelong journey.
On Mother’s Day, we celebrate all moms, each special in her own way. Mothers of kids who have fought childhood cancer have traveled a journey no one would have chosen. May is also Brain Tumor Awareness Month. We asked Gaylene Meeson to share her story of being mom to a very special brain tumor survivor, Hannah.Gaylene Meeson and her daughter Hannah, survivor of an aggressive brain tumor called anaplastic meduloblastoma.
Photo by [Kenneth Lim, kennethlimphotography.com].
Spunky. Tiny dancer. Free and joyful in spirit. Music lover. Always smiling. Courageous cancer warrior.
This was Rowan. She will always be remembered…just like that.
Our hearts are broken at the loss of Campbell, a 2021 St. Baldrick’s Ambassador. She died on February 22, 2021. Her mom, Gibby shared …
“Campbell Barrett Sullivan our absolute joy passed away this morning due to a brain hemorrhage brought on by CIC-DUX4 Sarcoma. We are absolutely broken-hearted, not sure how we will go on without her, but we will!
She brought so much passion and love to every day, whether it was sending cheer through a card, or in person, reaching out online, determined to advocate for other kids even when she felt the worst herself. There are days when she would open her eyes just to give an interview and be clear and passionate as ever just to fall asleep exhausted as soon as she was off the video call.
One thing she would want me to tell you is that cancer is NOT a win or lose battle and that is because no child chooses this fight. It’s not a competition and so you can’t lose to cancer. Campbell rose to this challenge and figured out a way to grow and spread joy and passion like ripples across the water.
Sitting in the hospital looking out the window I thought that’s what we will do, try to be a window for the light of Campbell to shine through. We love you all and she did too! Please be good to yourself and others.”
Luke is blazing a trail with no roadmap. Now 12 years old, he’s been fighting high-risk neuroblastoma since he was 5, with three relapses. He’s constantly relying on the kind of cutting-edge research you support through St. Baldrick’s to find the next new treatment – the one that will make him cancer-free for good.
Beautiful soul. Positive thinker. People person. Seattle Seahawks fan. St. Baldrick’s supporter. Cancer survivor.
St. Baldrick’s League of Legendary Heroes recognizes volunteers who have gone above and beyond by participating for three or more years to raise money for lifesaving childhood cancer research.
Members of this honorable group are led by an Honored Kid each year known as the League Champion, who inspires members to continue climbing up in the ranks and fundraising for childhood cancer research.
When their daughter Kimmy was diagnosed with leukemia, Daniel and Taimi Hachey were told her disease had a 90% survival rate. Later tests showed Kimmy had Philadelphia chromosome-like precursor B-cell acute lymphoblastic leukemia, a rare type, difficult to treat. The adjusted survival rate? Only 50-60%. Her diagnosis went from, “The cure rate is high,” to “We are very concerned about her outcome.”
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