Families

More Than Just A Bald Head: Taking Back Cheyenne’s Childhood

by Amy Dyess
March 24, 2017

Between holidays spent in the hospital and too many missed days of school, 2016 Ambassador Cheyenne’s childhood doesn’t look the same as other kids her age. Read on to hear how her mom, Amy, is fighting to take Cheyenne’s childhood back from cancer.

cheyenne and brother

Cheyenne and her little brother, Tristen, spending time together during Cheyenne’s treatment.

We’ve all seen them — the sappy commercials with cute bald kids, or the heartbreaking photos on our social media feeds depicting children in the midst of horrible cancer treatments.

But what are those kids going through after those photos are taken? What are the other tolls cancer takes?

Our 12-year-old daughter Cheyenne has been undergoing chemotherapy treatment every day for the past two years, and she still has five more months of treatment to go.

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Families

‘They Know Who They’re Fighting For’: Luke’s Legacy

by Scott Ungerer
March 21, 2017

Honored Kid Luke was just 3 years old when an MRI scan revealed a large tumor in his brain. When Luke passed away seven months later, his parents chose to honor Luke by starting a Hero Fund in his name — and they’ve been working hard to help fund childhood cancer research ever since. This fall, they got to see first-hand how their hard work is paying off. Luke’s dad, Scott, tells the story.

Luke Superhero Cape

You can learn more about Luke’s Army by visiting his Hero Fund.

This is a story about love.

A story about joy and happiness, fear and anger and sadness — about faith and, ultimately, hope.

This story begins with one tiny drop of water in the vast ocean of life.

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Families

Chef, Shavee, Survivor: Petey’s Story

by Erinn Jessop, St. Baldrick's Foundation
March 14, 2017

Childhood cancer survivor and budding chef, Petey Miceli, celebrates 5 years cancer free and recognizes Pi Day — the day we celebrate the ratio of the circumference of a circle to its diameter — by sharing his story, along with his famous pizza pie recipe. (Pi Day is today, March 14 or 3.14 — get it? See, math can be fun! And delicious.)

Petey with his famous pizza

Petey shows off his handcrafted pizza pies.

For 13-year-old Petey Miceli, his passion for cooking all started with an egg — and childhood cancer.

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Kids with Cancer

Happy Mario Day from Ambassador Benny!

by Erinn Jessop, St. Baldrick's Foundation
March 10, 2017

It’s Mario time! Today is March 10, otherwise known as Mar10 — Mario Day! (Get it??) We are celebrating the famous pixelated plumber with Ambassador Benny, an avid gamer and Mario’s number one fan. Ready to read on? Let’s-a go!

Benny Mario Wii games

Benny displays his expansive collection of Wii U games. He loves games where he can battle one of his friends or where he gets to be Mario, which is called a role playing game.

Benny was just 5 years old when he first encountered Mario, the mustachioed, pot-bellied hero in the monogrammed red hat who rescues princesses and destroys evil-doers in the wildly popular Nintendo game series Super Mario Brothers.

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Families

‘I Can Be the Voice for My Son’: Father Shaves his Head for the Seventh Time in Honor of his Son

by Erinn Jessop, St. Baldrick's Foundation
March 7, 2017

For Eric Haddad, head shaving isn’t just a one-time deal, because as the dad of a kid who fought brain cancer, he knows firsthand that the effects can last a lifetime. This month, at the Rocky River event in Ohio, Eric will be shaving his head for the seventh time, while raising funds for research that he hopes will lead to better, safer treatments for kids with cancer.

Eric shaves for his son

During a past event, Eric shaves for his son, Shane.

When Shane Haddad was 4 years old, he started fighting childhood cancer. Seven years later, he hasn’t stopped fighting.

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Families

‘Adapt and Overcome’: Maddox in Maintenance

by Geri Shepard
February 27, 2017

You might know Honored Kid Maddox — or Maddy, as his mom calls him — as the 10-year-old cancer survivor spouting off words like “dexamethasone” in our latest campaign videos. Maddox’s childhood changed drastically after he was diagnosed with leukemia eight years ago. Now, he’s doing everything he can to take his childhood back from cancer — but, as his mom Geri explains, life in remission hasn’t been easy.

Maddox and his family

Maddox’s mom Geri, little sister Danika, and dad Brad pose for a photo with Maddox during a St. Baldrick’s event.

In 2010, after months and months of intense chemotherapy, Maddox was in remission.

He had one last phase of treatment for acute lymphoblastic leukemia (ALL), and it was meant to keep him there.

Maintenance phase.

It was a gigantic step for us towards some sense of normalcy.

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Advocacy

February’s Advocate of the Month: Wendy Baskins

by Erinn Jessop, St. Baldrick's Foundation
February 22, 2017

Need some monthly inspiration? We’ve got it! Each month we will be highlighting one of our heroes right here on the blog. Without further ado, say hello to our first Advocate of the Month: Wendy Baskins. Wendy never backs down from a fight — just like her son, Stephen, who battled cancer three times. Read on for more about Stephen, what he taught her, and why Wendy fights for families facing childhood cancer.

Wendy shaves

Wendy wears a big grin as she goes bald for childhood cancer research during the 46 Mommas Shave for the Brave event. Courtesy of Cassell Photography

When the going gets tough, the tough get going. That is one of the many things Wendy Baskins learned from her son, Stephen.

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Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

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Survivors

‘Our Own Little Valentine’s Day’: Ambassador Sarah’s Wedding Story

by Sarah Rostock
February 14, 2017

Just in time for Valentine’s Day, your favorite lovebirds are back – 2012 Ambassador Sarah and her honey Patrick. You remember how it all began, almost 10 years ago – boy meets girl, girl fights cancer with boy by her side, boy pops the question. Now read on for the happiest of happy endings.

Sarah and Patrick on their wedding day

Photos courtesy of Chelsie Darling Photography

Patrick and I tied the knot on October 29, 2016. It started like any other good day, with Starbucks and reflection.

I kept thinking, ‘I am about to marry the man who had loved me through it all — through long distances, relapse, transplant, recovery, and finishing my degree. He has never failed to love me.’

I had no fears about our marriage standing the test of time, because we had already been through so much together. Our wedding day had been more than nine years in the making – and what a day it was!

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Families

‘This is Survival’: An Update on Chase

by Ellie Ewoldt
February 13, 2017

Four years ago, Chase’s doctors found an extremely rare type of brain tumor. Today, Chase is officially a childhood cancer survivor — but, as his mom Ellie explains, his journey is far from over. Read on to find out why being a survivor isn’t the end of the road for Chase and his family.

Chase and Dr. Lulla

Chase and Dr. Lulla pose for a selfie during his final visit.

“Wait, this is it?” I found myself staring incredulously at my son’s beloved neuro-oncologist.

His smile was immediate.

“This is it. You’re here. It’s time.”

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