When their daughter Kimmy was diagnosed with leukemia, Daniel and Taimi Hachey were told her disease had a 90% survival rate. Later tests showed Kimmy had Philadelphia chromosome-like precursor B-cell acute lymphoblastic leukemia, a rare type, difficult to treat. The adjusted survival rate? Only 50-60%. Her diagnosis went from, “The cure rate is high,” to “We are very concerned about her outcome.”
Have you heard of a St. Baldrick’s Hero Fund and wondered what it was — and maybe whether you should have one? Here are the basics, along with how a few families feel about their experience.
In 2017, I was diagnosed with anaplastic large cell lymphoma. It was a shock. I immediately started my first of six rounds of chemotherapy. Every month, I would have to go inpatient for one week for treatment. Unfortunately, I relapsed two months after completing that. I then got a second opinion and did two clinical trials, and when those failed, I went on to Memorial Sloan Kettering (MSK) in New York. One trial failed, but the next finally got me to remission, allowing me to get a transplant.
What does your support of childhood cancer research really mean? See what Carlos Sandi has to say about what a difference the St. Baldrick’s Foundation and specifically the St. Baldrick’s – Stand Up to Cancer Pediatric Cancer Dream Team, have made to his family.
What do you do when you’ve been told your child has maybe 3 to 6 months to live? As the saying goes, “You get busy living or you get busy dying.” That’s the situation Kim and Jeff Schuetz were put in when their son Austin relapsed not once, but twice after treatment for Acute Lymphoblastic Leukemia (ALL), the most common type of childhood cancer.
Before the doctors even told us, I knew. Micah had cancer. Even without understanding the enormity of what lay ahead, I knew that it meant my life and worse, my child’s life, would never be the same. Now I’m sharing my son Micah’s story because I believe in the critical need to support childhood cancer research with the St. Baldrick’s Foundation. Please join me in giving hope to the next child faced with a cancer diagnosis.
Most parents simply hope their child grows up to be a good person.
I mostly hope mine just gets the chance to grow up.
You don’t have to have cancer to understand that the journey is an emotional roller-coaster. The fear of what awaits around the next corner can be all-consuming. But what most people who haven’t experienced cancer don’t understand, is that unlike a roller-coaster, the ride never ends.
Your Donations Help Find Cures and Improve Quality of Life for Survivors
St. Baldrick’s is dedicated to scouring the nation in a relentless pursuit to discover and unearth the most promising research. We fund the most innovative researchers so they may provide the most effective and ground-breaking treatments to every single childhood cancer. It’s this tenacity that ensures donors that they’re helping to propel advancements that will find cures for childhood cancers and develop less toxic treatments, giving survivors long and healthy lives. We find and fund the very best of the best. So put your money in the hands of the researchers who offer us all the very best chance to make a huge impact. Please donate today.
They say you can always tell what’s important to someone by how they spend their time. The best dads spend it scaring away the monsters in our closets, continuing to read each time we say, “One more time,” and baking in the sun just to see us score our first home run. Their pride and joy at even our most minor accomplishments makes us feel like we can take on the world.From left to right: David and son Finley, Jeff and son Micah, Bobby and daughter Rebekah.
To celebrate Father’s Day, we’re spotlighting three very special Fathers in the St. Baldrick’s community. All of them have had their lives shaken by cancer. Each of their stories covers a different chapter in the story and journey of survivorship.
It’s human nature to want to make the world a better place. As I’ve matured into the 21-year-old I am today, I’ve taken a lot of time to think about this idea. We all have a purpose in our lives, but it’s what we do with that purpose that eventually affects humanity as a whole.From left to right: Honored Kid Michael, St. Baldrick’s Foundation Summer Fellow grant recipient Nicholas Mohrdieck, and Honored Kid Leah
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