Project:EveryChild is an ambitious initiative to find better cures for every type of childhood cancer, no matter how rare. And it is only possible because of the combined efforts of researchers, families of children with cancer, and you.

There are about 14,000 new cases of childhood cancer each year in the United States, and the most common – acute lymphoblastic leukemia – accounts for about 3,500 of those. But there are some types of cancer that are diagnosed in fewer than 100 children a year. The rarer the disease, the more challenging it is for researchers to make progress.

No matter how common or rare, each child deserves the best chance at a cure. That’s where Project:EveryChild comes in.

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Why do kids get cancer? That’s the question we asked Dr. John Maris, who co-leads the St. Baldrick’s Foundation – Stand Up to Cancer Pediatric Cancer Dream Team. Researchers like Dr. Maris are working hard to find the answer to this question because it could hold the key to cures for kids’ cancer.

Why do kids get cancer? In short, there’s no single, easy answer.

The answer is complicated, said Dr. Maris.

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Raman Bahal, Ph.D., a St. Baldrick’s Research Grant recipient at the University of Connecticut, Storrs, Connecticut, explains Burkitt Lymphoma symptoms, treatment options, and research opportunities.

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Every year, 300,000 families around the world will hear, “Your child has cancer.” But you can do something about it.

Aiden, Forever 7 (Angel), Diffuse intrinsic pontine glioma (DIPG), One of five 2019 Ambassadors

If you want to get involved in the fight against childhood cancer, here are 10 facts you should know.

1. Childhood cancer is the number one disease killer of children in the U.S.
Cancer is the leading disease-related cause of death for children and adolescents ages 1-19, and 1 in 264 children and adolescents will develop cancer before the age of 20.

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Editor’s Note: As we commemorate Childhood Cancer Awareness Month, and launch the #DFYchildhoodCancers campaign, we’d like to introduce you to Katrina Knott, whose daughter, Arianna, is one of the five St. Baldrick’s “Ambassadors” for 2019. As you’ll read in her story, survivorship issues in pediatric cancer need attention – and funding – for those like Arianna, whose challenges are many.

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September is here, or as we call it: Childhood Cancer Awareness Month (CCAM) – which, as you’d imagine, is a pretty big deal at the St. Baldrick’s Foundation, the #1 private funder of pediatric cancer research. Every year at this time there are blogs, social posts, invitations to change your Facebook profile or use a hashtag on Twitter related to CCAM – but this year you’ll also be seeing something new.

Although CCAM helps build awareness of pediatric cancers, there’s a need for a more permanent rallying cry. We don’t want September to be one month when people tweet and share Facebook updates about kids with cancer and then move on – after all, somewhere in the world, every two minutes a child is diagnosed with cancer. We purposely created this campaign to bring this reality front and center.

First, though, a little background.

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Most of you know St. Baldrick’s for our signature head shaving events, where a shavee raises money and shaves their head to stand in solidarity with kids battling cancer. While these are the most visible, public events, you may not know that we work with other charities and foundations to form partnerships, allowing for more grant funding every year. Currently, we’re working with 7 different charities, and we’ve together raised upwards of $2 million as a result of those partnerships.

One such foundation, the Ty Louis Campbell Foundation, has worked to see research move to clinical trials.  You can learn more about one project we’ve worked together to fund at this video.

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Meet Honored Kids Who Engage with St. Baldrick’s

It’s likely that your first exposure to the St. Baldrick’s Foundation was through a head-shaving event. (After all, the original idea was to get a bunch of executives together to shave their heads around St. Patrick’s Day, raising money for pediatric cancer research.) While head-shaving events remain the foundation’s main form of fundraising, they are just one of many ways to get involved.

Before we look at how a few Honored Kids and their families are making an impact on childhood cancer research through St. Baldrick’s, we should first define the term. An “Honored Kid” is any child, adolescent, or young adult (AYA) who has faced a cancer diagnosis; the more than 5,800 Honored Kids featured on our website bring hope and inspiration to volunteers and supporters of St. Baldrick’s. Once registered as an Honored Kid, each child receives their own page on the website to tell their story. Now, time to be inspired by some remarkable Honored Kids.

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Most St. Baldrick’s Foundation supporters know they are making hundreds of childhood cancer research projects possible. They may not realize the research they supported has been published in more than 1,350 research publications since 2005.

We’ll touch on just a few of those here. But first, why are publications important and how do they help find cures for childhood cancer? The answer started long ago.

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One of the most vexing problems in pediatric cancer research is trying to find out why certain treatments work for some kids and not for others, or why some kids suffer more health consequences from the same treatment that others do not.

If you’re dealing with something concrete – like plumbing issues in your home, or a car that has suddenly stopped working – it’s usually a trial and error process that will tell you why. Why does the faucet leak? The pipe wasn’t properly tightened. Why did the timing belt go out on the car? Well, those things are only good for so many miles.

Pediatric cancers are much less concrete, and way more complex than plumbing or maintaining a car. And, given the life and death nature of pediatric cancer diagnoses, it’s of vital importance to ask the right questions and get the right answers.

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