OUT-OF-THE-BOX THINKER RECEIVES AWARD FOR INNOVATION
Unthinkable.
That’s how Dr. Olivier Ayrault described the loss of two school friends to cancer when he was growing up. The experience left an indelible imprint on him and he believes set his course in life to do something to fight cancer.
What You Should Know About Research into Rare Pediatric Cancers
Rare Cancer Day is September 30th, but the St. Baldrick’s Foundation fights rare cancers year-round.
What is rare disease?
When it comes to cancer, or even diseases as a whole, “rare” is a misleading word.
A rare disease is defined as “any disease or condition that affects fewer than 200,000 people in the United States, or about 1 in 1,500 people.” About 72% of rare diseases are genetic, and of those, 70% start in childhood.
Worldwide, people with rare diseases make up less than 6% of the population. But more than 6,000 rare diseases have been identified so far, and they affect more than 300 million around the world. If these people were a country, they would be the world’s third largest nation.
After 20 Years: Accomplishments and Challenges
No matter when you joined St. Baldrick’s, you’re part of something bigger than anyone could have imagined at the first head-shaving event on March 17, 2000.
On what would have been our 20th anniversary, this year a pandemic had begun. It was a time for regrouping, rather than reflection. But now let’s look at what you’ve helped accomplish, and the challenges we have, to do more for kids with cancer.
10 Facts About Childhood Cancer
Childhood Cancer Awareness Month is the perfect time to test your knowledge — and to spread the word about why you support lifesaving research through St. Baldrick’s. And you may learn something new!
A Life-Changing Diagnosis Inspired My Passion for Advocacy
Shamari is a 15-year old survivor, serving as a 2020 St. Baldrick’s Ambassador. She’s also a strong advocate for childhood cancer research funding and will be part of the Virtual Day of Action on September 9. Please join the Speak Up for Kids’ Cancer advocacy action network to join her!
Join Us for a Virtual Day of Action on September 9
Join us on September 9 for a Virtual Day of action to urge Congress to fund the Childhood Cancer STAR Act for another year! Sign up for the St. Baldrick’s Speak Up for Kids’ Cancer advocacy action network to receive email updates for how to participate.
Give Kids a Lifetime
This year during Childhood Cancer Awareness Month, while we celebrate progress, let’s spread the word that surviving five years is not enough. We need to give kids a lifetime.
Every year we select five children – with one who has passed away from cancer representing the 1 in 5 who don’t survive. For 2020, we have six kids, in order to include twin brothers Seth and Joel, who died months apart from each other.
More than anything, Childhood Cancer Awareness Month is a time to honor the thousands of children fighting cancer as well as survivors, and to remember those we have lost. It’s a time for families to tell their stories. And it’s a time for others to listen and learn, show we care, and find ways to help.
The Impact of the Dream Team on Childhood Cancers: A Video
The St. Baldrick’s — Stand Up To Cancer Pediatric Dream Team’s innovative and collaborative approach to science is making huge impacts in the world of childhood cancer research.
Patient Advocates – A Dream Team Video
Patient advocates play a vital role in the St. Baldrick’s — Stand Up To Cancer Pediatric Dream Team.
Patient advocates help to put a face on childhood cancer research. They humanize why the research is so critically important and translate that incredible work into language that’s more easily understood. Many are parents of kids who have fought cancer and one is a survivor herself. All are working to see the day when no family has to endure what they have.
Join us today and #DFYchildhoodCancers!
Read more on the St. Baldrick’s blog:
Proud To Be – A Dream Team Video
Researchers and patient advocates are proud to be part of the St. Baldrick’s – Stand Up To Cancer Pediatric Dream Team. Proud to be part of a collaboration to conquer childhood cancers.
The work the Dream Team is doing offers hope to children with cancer and their families and we’re closer than ever to finding cures. Not only has the Dream Team propelled ground-breaking cell therapies for blood cancers, it’s also making great progress towards the tougher challenge – helping kids with solid tumors. St. Baldrick’s supporters can be proud of this work that is already saving lives.
Join us today and #DFYchildhoodCancers!
Read more on the St. Baldrick’s blog:
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