Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

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Facts

Types of Childhood Cancer: Philadelphia Chromosome Positive ALL

by Gordon Cohen M.D., M.P.H.
February 20, 2017
what is Ph+ALL

Dr. Gordon Cohen is a St. Baldrick’s Fellow at the John Hopkins Children’s Center. He’s testing new drugs for patients with Ph+ALL who relapse or fail to respond to treatment. He explains Ph+ALL symptoms, treatment options, and how your support is moving clinical trials forward to help kids with this disease.

What is Ph+ALL?

Philadelphia Chromosome positive acute lymphoblastic leukemia (Ph+ALL) is a rare subtype of the most common childhood cancer, acute lymphoblastic leukemia (ALL).

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Head-Shaving

5 Reasons to Shave Your Head on St. Patrick’s Day

by St. Baldrick's Foundation
February 17, 2017

Looking for a great way to celebrate St. Patrick’s Day AND make a difference? Go bald with us crazy head-shaving people!

Shave with St. Baldrick's on St. Patrick's Day

We are the St. Baldrick’s Foundation, a volunteer-powered childhood cancer charity that raises money for research through head-shaving events across the globe.

(We also got our start on St. Patrick’s Day, when three guys shaved bald in a bar to raise money for kids’ cancer research. But more on that later!)

As the second largest funder of childhood cancer research grants behind the United States government, St. Baldrick’s has funded more than $200 million in grants to researchers working to give kids with cancer a better future.

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Do What You Want

Should I Shave My Head? [QUIZ]

by Erinn Jessop, St. Baldrick's Foundation
February 16, 2017

To shave your head or not to shave, that is your question. Well, we’re here to help! Dive into our handy dandy flowchart to get the answers you seek — and help kids with cancer at the same time.

Should I Shave My Head

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Research

The Global Problem of Childhood Cancer and St. Baldrick’s International Impact

by Erinn Jessop, St. Baldrick's Foundation
February 15, 2017

Kids fight cancer all over the world — but they don’t all have the same chance for a cure. This International Childhood Cancer Day, learn more about the global problem of childhood cancer and what St. Baldrick’s is doing about it, as explained by St. Baldrick’s researcher and Scientific Advisory Committee member Dr. Carlos Rodriguez-Galindo.

International Childhood Cancer Day 2017

A child is fighting acute lymphoblastic leukemia, or ALL, in New York. Another child is fighting ALL in Guatemala City. And another in rural Uganda.

All of those kids should have the chance to live long and healthy lives and have access to the best treatments possible. But the reality is more complicated.

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Survivors

‘Our Own Little Valentine’s Day’: Ambassador Sarah’s Wedding Story

by Sarah Rostock
February 14, 2017

Just in time for Valentine’s Day, your favorite lovebirds are back – 2012 Ambassador Sarah and her honey Patrick. You remember how it all began, almost 10 years ago – boy meets girl, girl fights cancer with boy by her side, boy pops the question. Now read on for the happiest of happy endings.

Sarah and Patrick on their wedding day

Photos courtesy of Chelsie Darling Photography

Patrick and I tied the knot on October 29, 2016. It started like any other good day, with Starbucks and reflection.

I kept thinking, ‘I am about to marry the man who had loved me through it all — through long distances, relapse, transplant, recovery, and finishing my degree. He has never failed to love me.’

I had no fears about our marriage standing the test of time, because we had already been through so much together. Our wedding day had been more than nine years in the making – and what a day it was!

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Families

‘This is Survival’: An Update on Chase

by Ellie Ewoldt
February 13, 2017

Four years ago, Chase’s doctors found an extremely rare type of brain tumor. Today, Chase is officially a childhood cancer survivor — but, as his mom Ellie explains, his journey is far from over. Read on to find out why being a survivor isn’t the end of the road for Chase and his family.

Chase and Dr. Lulla

Chase and Dr. Lulla pose for a selfie during his final visit.

“Wait, this is it?” I found myself staring incredulously at my son’s beloved neuro-oncologist.

His smile was immediate.

“This is it. You’re here. It’s time.”

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Families

‘This Is Not the Childhood My Children Deserve’: Aurora’s Story

by Kelly Wadle
February 10, 2017

Honored Kid Aurora was diagnosed with Stage III Wilms Tumor when she was just 15 months old. Her mom, Kelly, explains how cancer took away Aurora’s chance at a normal childhood — and all the ways Kelly and her family are fighting to take it back.

Aurora Smiling

Upon receiving my daughter’s diagnosis, I immediately began to grieve the loss of her childhood, one that was supposed to be beautiful and normal.

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Fundraising Tips

5 Ways to Use Instagram to Increase Your Fundraising

by Alison Sutton, St. Baldrick's Foundation
February 9, 2017

The first thing you should know about social media is that it’s your friend. And it’s soon to be your best friend because it will help you fundraise even more for your upcoming event!

Here are a few helpful tips and tricks you can use on Instagram to bring awareness to the next adventure in your life: being a St. Baldrick’s shavee!

1. Share your St. Baldrick’s images

This is a given when it comes to Instagram, but here are a few examples that may bring in some more donations.

Everyone loves a classic before and after picture, especially those who wanted to see you go bald but were unable to attend your event.

before_after

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Head-Shaving

‘Be The Hope’: Shaving for Cheyenne

by Dani Varela
February 8, 2017

2016 Ambassador Cheyenne’s childhood cancer journey began two years ago when her doctors discovered a life-threatening tumor blocking her airway. Cheyenne’s grandmother Dani reflects on what that day was like — and how it inspired her to host her own St. Baldrick’s event and shave in her granddaughter’s honor.

be the hope head shaving event

Shavees and volunteers at the “Be The Hope!” event form a cancer ribbon.

On January 30, 2015, I received a call that changed my family’s life forever.

It was the day I found out that my 9-year-old granddaughter was being airlifted to the hospital because a fast-growing tumor was crushing her windpipe.

It felt like the ground went out from under me. It was surreal. I thought, “this happens to other people, not to us.”

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