Research

Research Outcomes: Progress from Bench to Bedside

by St. Baldrick's Foundation
February 24, 2021

With your help researchers continue to answer questions, seek out cures, and reduce long-term effects of treatment. Four exciting research outcomes you made possible are detailed below: 

test tubes

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Kids with Cancer

Trailblazer Luke

by St. Baldrick's Foundation
February 17, 2021

Luke is blazing a trail with no roadmap. Now 12 years old, he’s been fighting high-risk neuroblastoma since he was 5, with three relapses. He’s constantly relying on the kind of cutting-edge research you support through St. Baldrick’s to find the next new treatment – the one that will make him cancer-free for good.

boy smiling

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Teens & Young Adults

2021 Ambassador Campbell: “Shining Through”

by St. Baldrick's Foundation
February 22, 2021

Our hearts are broken at the loss of Campbell, a 2021 St. Baldrick’s Ambassador. She died on February 22, 2021. Her mom, Gibby shared …

“Campbell Barrett Sullivan our absolute joy passed away this morning due to a brain hemorrhage brought on by CIC-DUX4 Sarcoma. We are absolutely broken-hearted, not sure how we will go on without her, but we will!

She brought so much passion and love to every day, whether it was sending cheer through a card, or in person, reaching out online, determined to advocate for other kids even when she felt the worst herself. There are days when she would open her eyes just to give an interview and be clear and passionate as ever just to fall asleep exhausted as soon as she was off the video call.

One thing she would want me to tell you is that cancer is NOT a win or lose battle and that is because no child chooses this fight. It’s not a competition and so you can’t lose to cancer. Campbell rose to this challenge and figured out a way to grow and spread joy and passion like ripples across the water.

Sitting in the hospital looking out the window I thought that’s what we will do, try to be a window for the light of Campbell to shine through. We love you all and she did too! Please be good to yourself and others.”

Campbell Skiing

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News

New Pediatric Oncology Training Program Bridges the Gap for Kids in Africa

by Erinn Jessop, St. Baldrick's Foundation
February 15, 2021

Dr. Joseph Lubega has big news — he’s bringing specialized pediatric cancer training to his home country of Uganda, thanks to his St. Baldrick’s International Scholar Grant and a partnership between Baylor College of Medicine and Texas Children’s Hospital. Read on for more about the pioneering program and why it will be a lifesaver for kids with cancer in the region.

EXCITING UPDATE February 15, 2021: It’s been over four years since St. Baldrick’s International Scholar, Dr. Joseph Lubega, and the Global HOPE Program at Texas Children’s Hospital launched the first Pediatric Hematology and Oncology Fellowship Program in East Africa.

The Program, the first of its kind in the region, is making very broad and long-lasting impact: Fourteen pediatric oncologists have already graduated from the two-year program and they lead pediatric cancer care and research at nine different centers in four countries, seeing a total of more than 2500 new children with cancer annually.

The two current classes of ten trainees come from seven countries across Africa: Congo (DRC), Kenya, Malawi, Nigeria, South Sudan, Tanzania, and Uganda.

Another impact of the Program has been the opening of an additional fellowship training program at Muhimbili University of Health and Allied Sciences in Tanzania. The second Program opened in November 2020 with 3 fellows and is led by Dr. Lulu Chirande, a pediatric hematologist-oncologist and graduate from the original program in Uganda.

It is very exciting to see that the initial investment by St. Baldrick’s Foundation in global pediatric oncology is producing leaders who are transforming access to quality pediatric cancer care in Africa. This is perhaps the best example of how the commitment of St. Baldrick’s Foundation’s donors can rapidly multiply to impact an enormous number of children and families worldwide,” said Dr. Joseph Lubega.

Dr. Joseph Lubega speaks at the launch of the Uganda fellowship program

Dr. Lubega speaks at the launch of the fellowship program in Uganda earlier this month.

Originally posted in 2016: Lack of diagnosis, poor care, staggering drug costs, a deficit in specialized medical training for doctors — all of these factors make survival rare for a kid with cancer in Africa.

But St. Baldrick’s researcher Dr. Joseph Lubega hopes to change that with a pioneering program that will train a new wave of East African pediatricians in children’s oncology and hematology.

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Teens & Young Adults

2021 Ambassador Alexa: Beautiful Soul

by St. Baldrick's Foundation
February 3, 2021

Beautiful soul. Positive thinker. People person. Seattle Seahawks fan. St. Baldrick’s supporter. Cancer survivor.

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Do What You Want

7 Ways to Help Kids With Cancer in February

by St. Baldrick's Foundation
February 1, 2021

How much do you love helping kids with cancer? Let us count the ways. February is the month for kindness, sweet treats and coming together – even when we are apart. Check out these seven fundraising tips to #GiveKidsALifetime.

toddler holding up heart

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Kids with Cancer

Meet Lily, St. Baldrick’s 2021 League Champion – and Squire of Hope, Herself!

by St. Baldrick's Foundation
January 22, 2021

St. Baldrick’s League of Legendary Heroes recognizes volunteers who have gone above and beyond by participating for three or more years to raise money for lifesaving childhood cancer research.

Members of this honorable group are led by an Honored Kid each year known as the League Champion, who inspires members to continue climbing up in the ranks and fundraising for childhood cancer research.

League Champion

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Advocacy

Welcome to the New Administration and New Congress

by Campbell Sullivan, a 2021 St. Baldrick’s Foundation Ambassador
January 20, 2021

Our hearts are broken at the loss of Campbell, a 2021 St. Baldrick’s Ambassador. She died on February 22, 2021 due to a brain hemorrhage brought on by CIC-DUX4 Sarcoma. Campbell was remarkable in every way and will always be an inspiration.

Originally posted January 20, 2021

I voted for the first time in November, but this is not my first-time letting Congress know how I feel. In 2018 I lobbied on Capitol Hill with a group of childhood cancer warriors, siblings, and advocates. I shared my story with three members of Congress and pushed for legislation to help kids with cancer. Having gone through treatment for more than three years at this point, I was especially determined to cast my ballot in this year’s presidential election. As a new voter, I am also looking forward to being part of the St. Baldrick’s Speak Up for Kids’ Cancer Network so I can raise my voice for kids with cancer and childhood cancer survivors in the year ahead.

Ambassador Campbell

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Advocacy

Federal Funding for Childhood Cancer Research: A Conversation with Dr. Ned Sharpless, Director of the National Cancer Institute

by St. Baldrick's Foundation
January 15, 2021

As the largest non-government funder of childhood cancer research grants, and as a leader in childhood cancer advocacy, the St. Baldrick’s Foundation has a deep interest in the work that the federal government is doing to advance treatments. As part of the St. Baldrick’s Foundation Impact Series, on January 14, 2021, St. Baldrick’s Foundation CEO Kathleen Ruddy had a conversation with Dr. Ned Sharpless, Director of the National Cancer Institute (NCI), about the NCI’s broad pediatric cancer portfolio.

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Research

Class of 2016: Progress from the first St. Baldrick’s Robert J. Arceci Innovation Awardees

by St. Baldrick's Foundation
December 16, 2020

The volunteers who make up the St. Baldrick’s Foundation certainly “think different” when raising money for childhood cancer research. And thinking outside the box was a trademark of the late great Dr. Bob Arceci – a St. Baldrick’s shavee, board member and world-renowned researcher. 

Dr. Arceci

In his memory, the St. Baldrick’s Robert J. Arceci Innovation Awards were created. The goal was to give doctors the freedom and flexibility to think outside the box – to explore avenues that may have been left unexplored otherwise. The grants are unrestricted, making them unique in cancer research. And they are big awards, at $250,000 a year for 3 years. 

The first class of researchers to receive these innovation awards began in 2016.  Dr. Charles Mullighan, from St. Jude Children’s Research Hospital received the North America award, and Dr. Sam Behjati, from Wellcome Sanger Institute in the U.K., received the International award. Read on to find out where they are now: 

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