Advocacy

Now Is the Time for MORE Investment in Research, Not Less

by Jeffrey M. Lipton, M.D., Ph.D.
March 23, 2017

The Administration’s FY18 Budget proposes a $5.8 billion cut to the National Institutes of Health — a move that St. Baldrick’s researcher Dr. Jeffrey Lipton finds concerning for the future of childhood cancer research. Read on for more about the proposed budget, Dr. Lipton’s fears and what YOU can do about it.

Cheyenne strikes a strong pose

As a physician scientist who has treated children with cancer for decades, I am deeply concerned about the President’s proposed federal budget for the coming year.

I know this budget will be carefully reviewed by many, and that Congress holds the purse strings. That’s why I’m counting on our champions in the House and Senate to stand up for our children.

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Advocacy

February’s Advocate of the Month: Wendy Baskins

by Erinn Jessop, St. Baldrick's Foundation
February 22, 2017

Need some monthly inspiration? We’ve got it! Each month we will be highlighting one of our heroes right here on the blog. Without further ado, say hello to our first Advocate of the Month: Wendy Baskins. Wendy never backs down from a fight — just like her son, Stephen, who battled cancer three times. Read on for more about Stephen, what he taught her, and why Wendy fights for families facing childhood cancer.

Wendy shaves

Wendy wears a big grin as she goes bald for childhood cancer research during the 46 Mommas Shave for the Brave event. Courtesy of Cassell Photography

When the going gets tough, the tough get going. That is one of the many things Wendy Baskins learned from her son, Stephen.

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Advocacy

A ‘Meeting of the Minds’ to Look to the Future for Kids With Cancer

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
November 7, 2016

What happens when a group of experts come together to discuss developments in childhood cancer research and advocacy? Some inspiring conversations about new data, drugs and therapies, important childhood cancer legislation, and more — all to make sure we’re making the best investments with YOUR donations. Get the scoop on our 2016 Research and Advocacy Priorities Summit below.

St. Baldrick's 2016 Research and Advocacy Priorities Summit

Every couple of years, St. Baldrick’s brings together our experts to take stock of what we’re doing now, and to look to the future of childhood cancer research. We examine what we are doing well, what we can do better, and what we need to do to help kids with cancer not only survive, but thrive.

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Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

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Advocacy

A Balancing Act: An Update on Kate Foster

by Kate Foster
August 23, 2016

Two years ago we brought you the incredible story of Kate Foster, who was just getting back to the gym after surviving childhood cancer. Now she’s 17 and still competing in gymnastics — all while keeping up top grades, applying to colleges, and advocating for kids with cancer. Read Kate’s story in her own words below.

Kate Foster Beam

When I was 8 years old I started competitive gymnastics and it quickly became my life.

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Advocacy

A Big STAR Act Update, and a Big Deadline

by Kevin Mathis, Sr. Legislative Counsel, St. Baldrick’s Foundation
August 18, 2016

Thanks to your advocacy efforts, the most comprehensive childhood cancer bill ever is making its way through the Congress. But the window of opportunity is closing and we need your help now more than ever. Read on to see how you can help us make history in Washington for kids with cancer.

STAR Act update

This week, we hit a massive target in our push to pass the Childhood Cancer STAR ActIn the House, the 250th member of Congress just signed on to the bill!

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Advocacy

‘Never Stop Fighting’: Why I Support the STAR Act

by Pete Bush
July 25, 2016

Thirteen-year-old Sydney spent much of her early childhood battling a brain tumor. This year, the nine-year childhood cancer survivor took a special trip with her dad, Pete, to Washington, D.C. “This experience taught us how important it is to never stop fighting for something you believe in,” Pete writes. He tells Sydney’s story and shares why the trip was so meaningful to them.

Pete Bush and Sydney at Action Days

Pete and Sydney outside of Senator Marco Rubio’s office during this year’s Childhood Cancer Action Days in Washington, D.C.

Whiplash. Pulled muscle. Bronchitis. Flu. Virus. Stomach bug. For months, it was a different diagnosis at every doctor’s visit.

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Advocacy

St. Baldrick’s Joins Cancer Moonshot Summit in D.C.

by St. Baldrick's Foundation
June 29, 2016

Today, we’re joining Vice President Joe Biden and 300 cancer experts in Washington for the Cancer Moonshot Summit, the next step forward in a $1 billion national effort to accelerate cancer research. See how we’re making sure kids with cancer are part of the conversation.

Cancer Moonshot Summit in Washington, D.C.

When President Obama announced a “moonshot” to cure cancer at the beginning of the year, we were proud to stand behind this national effort to conquer cancer once and for all.

Today, we’re making sure kids with cancer are a part of that effort.

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Advocacy

Tell Congress to Support the New Palliative Care Bill

by Danielle Leach, Director of Government Relations and Advocacy, St. Baldrick's Foundation
June 22, 2016

Today, Danielle Leach, our Director of Government Relations and Advocacy, is on the Hill to advocate for a new bill that will help kids with cancer get the care they need. She explains what the PCHETA Bill means for kids with cancer and how you can take action right from home.

Danielle holds a PCHETA sign

Danielle stands in Washington, D.C., advocating for the PCHETA Bill.

There is nothing worse for a parent than to see their child in pain.

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Advocacy

‘Imagine What It’s Like’: Carlos Takes His Story to Capitol Hill

by Carlos Sandi
May 17, 2016

Yesterday, Ambassador Phineas’ dad, Carlos, joined more than 200 childhood cancer advocates on Capitol Hill to drum up support in Washington for kids with cancer. He opened up about what it’s like to have two children diagnosed with cancer, how research saved his son’s life, and why he won’t stop telling his family’s story. Read his powerful speech below.

Carlos and Phineas Sandi

Carlos with his son, Phineas. Phineas was diagnosed with cancer when he was 4, six years after his sister Althea died of childhood cancer.

I live in Chapel Hill, North Carolina, but like most of my neighbors, I’m not actually from North Carolina. Chapel Hill is a college town where new people come and go every year.

Whenever my wife and I meet people for the first time, one of the first questions we get asked is, “So, how did you end up in Chapel Hill?”

When I hear that question, I always freeze for a second because I have to decide carefully how I want to answer.

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