Advocacy

A ‘Meeting of the Minds’ to Look to the Future for Kids With Cancer

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
November 7, 2016

What happens when a group of experts come together to discuss developments in childhood cancer research and advocacy? Some inspiring conversations about new data, drugs and therapies, important childhood cancer legislation, and more — all to make sure we’re making the best investments with YOUR donations. Get the scoop on our 2016 Research and Advocacy Priorities Summit below.

St. Baldrick's 2016 Research and Advocacy Priorities Summit

Every couple of years, St. Baldrick’s brings together our experts to take stock of what we’re doing now, and to look to the future of childhood cancer research. We examine what we are doing well, what we can do better, and what we need to do to help kids with cancer not only survive, but thrive.

Read more »


Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

Read more »


Advocacy

A Balancing Act: An Update on Kate Foster

by Kate Foster
August 23, 2016

Two years ago we brought you the incredible story of Kate Foster, who was just getting back to the gym after surviving childhood cancer. Now she’s 17 and still competing in gymnastics — all while keeping up top grades, applying to colleges, and advocating for kids with cancer. Read Kate’s story in her own words below.

Kate Foster Beam

When I was 8 years old I started competitive gymnastics and it quickly became my life.

Read more »


Advocacy

A Big STAR Act Update, and a Big Deadline

by Kevin Mathis, Sr. Legislative Counsel, St. Baldrick’s Foundation
August 18, 2016

Thanks to your advocacy efforts, the most comprehensive childhood cancer bill ever is making its way through the Congress. But the window of opportunity is closing and we need your help now more than ever. Read on to see how you can help us make history in Washington for kids with cancer.

STAR Act update

This week, we hit a massive target in our push to pass the Childhood Cancer STAR ActIn the House, the 250th member of Congress just signed on to the bill!

Read more »


Advocacy

‘Never Stop Fighting’: Why I Support the STAR Act

by Pete Bush
July 25, 2016

Thirteen-year-old Sydney spent much of her early childhood battling a brain tumor. This year, the nine-year childhood cancer survivor took a special trip with her dad, Pete, to Washington, D.C. “This experience taught us how important it is to never stop fighting for something you believe in,” Pete writes. He tells Sydney’s story and shares why the trip was so meaningful to them.

Pete Bush and Sydney at Action Days

Pete and Sydney outside of Senator Marco Rubio’s office during this year’s Childhood Cancer Action Days in Washington, D.C.

Whiplash. Pulled muscle. Bronchitis. Flu. Virus. Stomach bug. For months, it was a different diagnosis at every doctor’s visit.

Read more »


Advocacy

St. Baldrick’s Joins Cancer Moonshot Summit in D.C.

by St. Baldrick's Foundation
June 29, 2016

Today, we’re joining Vice President Joe Biden and 300 cancer experts in Washington for the Cancer Moonshot Summit, the next step forward in a $1 billion national effort to accelerate cancer research. See how we’re making sure kids with cancer are part of the conversation.

Cancer Moonshot Summit in Washington, D.C.

When President Obama announced a “moonshot” to cure cancer at the beginning of the year, we were proud to stand behind this national effort to conquer cancer once and for all.

Today, we’re making sure kids with cancer are a part of that effort.

Read more »


Advocacy

Tell Congress to Support the New Palliative Care Bill

by Danielle Leach, Director of Government Relations and Advocacy, St. Baldrick's Foundation
June 22, 2016

Today, Danielle Leach, our Director of Government Relations and Advocacy, is on the Hill to advocate for a new bill that will help kids with cancer get the care they need. She explains what the PCHETA Bill means for kids with cancer and how you can take action right from home.

Danielle holds a PCHETA sign

Danielle stands in Washington, D.C., advocating for the PCHETA Bill.

There is nothing worse for a parent than to see their child in pain.

Read more »


Advocacy

‘Imagine What It’s Like’: Carlos Takes His Story to Capitol Hill

by Carlos Sandi
May 17, 2016

Yesterday, Ambassador Phineas’ dad, Carlos, joined more than 200 childhood cancer advocates on Capitol Hill to drum up support in Washington for kids with cancer. He opened up about what it’s like to have two children diagnosed with cancer, how research saved his son’s life, and why he won’t stop telling his family’s story. Read his powerful speech below.

Carlos and Phineas Sandi

Carlos with his son, Phineas. Phineas was diagnosed with cancer when he was 4, six years after his sister Althea died of childhood cancer.

I live in Chapel Hill, North Carolina, but like most of my neighbors, I’m not actually from North Carolina. Chapel Hill is a college town where new people come and go every year.

Whenever my wife and I meet people for the first time, one of the first questions we get asked is, “So, how did you end up in Chapel Hill?”

When I hear that question, I always freeze for a second because I have to decide carefully how I want to answer.

Read more »


Advocacy

Tell Congress ‘Step Up: Support the Childhood Cancer STAR Act’

by St. Baldrick's Foundation
May 16, 2016

A coordinated community effort is underway to storm Congress — on foot and online. Childhood cancer organizations throughout the country are joining together to send Congress a message:

Step Up: Support the Childhood Cancer STAR Act
There are many ways for you to help:

Read more »


Advocacy

A Seat at the Table: Pediatric Cancer and the Moonshot Panel

by Danielle Leach, Director of Government Relations and Advocacy, St. Baldrick's Foundation
April 5, 2016

Yesterday, a panel of cancer experts were named to Vice President Joe Biden’s “moonshot” initiative to cure cancer. Read what Danielle Leach, our Director of Government Relations and Advocacy, has to say about this step forward for kids with cancer.

Mason Leach and his brother

Danielle’s oldest sons, Mateo (left) and Mason. Mason was diagnosed with a brain tumor when he was 3.

For most families, the dinner table is a safe place. But for me, it’s a constant reminder that my son Mason is not there.

Dinner was always a time where our family shared laughs, ideas and dreams, and our son Mason was often the loudest at the table. He yearned to be heard among the lively bunch that is our family.

Read more »


 Older Posts »