Families

What Does it Take to Beat Cancer, Fly on a Zip Line and Go to School Without Sight? Bravery Every Day

by Katie Vescelus
August 31, 2018

Honored Kid Matthias was diagnosed with retinoblastoma when he was just 3 months old, leaving him blind. But that hasn’t stopped him. Today, Matthias is a childhood cancer survivor and an independent 10-year-old who is learning to navigate the world without sight. As his mom, Katie, shares, he’s one brave kid.

Matthias

Matthias was just a baby when doctors had to remove his eyes to save his life. Since then, he’s learned to read braille and use a cane to help him get around. Photo by Jen Sherrick Photography

When Matthias lost his eyes to bilateral retinoblastoma nine years ago, we never could have imagined how happy and full his life would be. He is a hiker, traveler, and adventurer who has visited 23 states and two countries. He loves sports, especially hockey. He is obsessed with learning about weather, and he is a good student. He is a loyal friend and a fierce advocate for pediatric cancer research and disability rights. He has shaved his head five times for St. Baldrick’s, traveled to Washington D.C. twice to talk to legislators about the STAR Act and is a guest speaker for a disability awareness organization.

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Childhood Cancer

St. Baldrick’s Helps Researchers Envision a Bright Future for Kids with Retinoblastoma

by Erinn Jessop, St. Baldrick's Foundation
April 6, 2018

A child’s eyes see the love in their parents’ faces and the joy of their siblings. They see the vibrant colors in a box of crayons and the sparkle of rain on a flower. Sight helps kids navigate their classroom, their playground and their world. But what happens when pediatric cancer attacks that precious sense?

With retinoblastoma – an eye cancer in children that is usually diagnosed before the age of 3 years old – a kid can lose their vision to the cancer and their long-term health to the harsh treatment. They can even lose their lives.

That’s what tumor immunologist Dr. Vanessa Morales-Tirado and her St. Baldrick’s Summer Fellow, Zachary Goldsmith, are working to change.

Our Summer Fellow grants give students the chance to work in childhood cancer research labs with expert mentors. Think that’s pretty cool? Then learn more about St. Baldrick’s grants >

Dr. Morales-Tirado and Summer Fellow Zach

Dr. Vanessa Morales-Tirado, with the University of Tennessee, works with Zachary Goldsmith, a St. Baldrick’s Summer Fellow and PhD candidate, in the lab.

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Facts

Babies and Cancer [Q&A]

by Erin Breese, M.D.
August 11, 2015

Anyone can get cancer — even babies. Dr. Erin Breese, a St. Baldrick’s Fellow studying infant leukemia, explains the signs, symptoms and treatment of babies with cancer, and how research is helping pinpoint better therapies so babies with cancer can grow up to live long, healthy lives.

a baby's feet

Can babies get cancer?

Unfortunately, cancer can occur at any age including during infancy. According to recent statistics, roughly 23 of every 100,000 babies are diagnosed with cancer each year.

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Kids with Cancer

‘Miss Tough Enough’ Takes on Second Childhood Cancer Diagnosis

by Erinn Jessop, St. Baldrick's Foundation
October 7, 2014

Tacey Raye first battled cancer as a baby, losing her sight in the process. Now, years later, the high school freshman and Texas rodeo queen is facing yet another diagnosis. Help kids like Tacey. Donate today.

Tacey Raye fought retinoblastoma soon after she was born. Eight years after being declared cancer free, she's fighting again.

Tacey Raye fought retinoblastoma soon after she was born and had both eyes removed by the time she was in first grade. Eight years after being declared cancer free, she’s fighting childhood cancer again.

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Families

Cancer Free, But Never Free From Cancer

by Katie Vescelus
September 8, 2014

2013 Ambassador Matthias was diagnosed with retinoblastoma, a type of childhood cancer, when he was just 3 months old. The treatment left him permanently blind, but five years later, he’s cancer free and starting kindergarten. His mom, Katie, shares this update.

Matthias and Magnus starting school

Matthias (left) and his older brother, Magnus, on the first day of school this year.

On July 13, 2009, I held our son, Matthias, as he recovered from surgery to remove his right eye. His left eye had been removed two weeks before.

This surgery allowed him to be cancer free for the first time in his life, but it left him permanently and irreversibly blind.

I lifted him from the recovery room bed as he slept, and the nurses helped me navigate the tangled web of tubes so we could settle into a rocking chair. I rocked and sang softly to him as he awoke for the first time to a new world, one in which he was healthy but completely blind.

On August 4, 2014, just five short years later, I hugged Matthias and held his hand as he boarded the bus for kindergarten. I kissed him goodbye and again guided him into a new world. It was almost as terrifying as the day he lost his vision.

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Families

Seeing Christmas in a New Light

by Katie Vescelus
December 5, 2013

After childhood cancer took Matthias’ sight, Christmas changed forever.

Matthias-mom-Christmas-tree
Cancer changed us in many ways; sometimes I don’t even recognize our lives anymore. Many of these changes aren’t bad — we have a deeper respect for life, an appreciation of health, and a conscious enjoyment of every moment with loved ones.

Some of the changes were difficult, and we’ve accepted them. Even the way we celebrate holidays has changed.

I’ve always enjoyed Christmas, and having children makes this time of year even more magical. In 2008, we were excited to celebrate Matthias’ first Christmas, along with Magnus, who was 2 at the time, and just starting to participate in all of the excitement of the season.

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Families

A Moment of Peace and Gratitude With Song

by Katie Vescelus
November 21, 2013

Baby_Matthias_and_mom

Matthias was diagnosed with retinoblastoma, a childhood cancer of the eye, when he was an infant.

Matthias was diagnosed with cancer when he was just 3 months old, so we had all of the normal challenges of a baby compounded by him being sick.

Matthias never took a pacifier. He had a wicked gag reflex, so we had to find other ways to soothe him. Music became his pacifier, and we relied on it heavily.

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Facts

What Is Retinoblastoma?

by Carlos Rodriguez-Galindo, M.D.
September 9, 2013
what-is-retinoblastoma

Dr. Rodríguez-Galindo is a member of the St. Baldrick’s Scientific Advisory Committee. His research has been focused on retinoblastoma, bone sarcomas, histiocytic disorders, and rare childhood cancers, and he is currently the Chair of the Rare Tumors Committee at the Children’s Oncology Group (COG).

What is Retinoblastoma?
Retinoblastoma is a cancer of the eye that occurs only in children, and typically in very young children. Two-thirds of retinoblastoma patients are diagnosed before they are 2 years old, and more than 90% are diagnosed before the age of 5.

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Families

The Grandparents

by Douglas Cochrane
September 8, 2013

Grandpa-and-Matthias

St. Baldrick’s Ambassador Matthias with his Grandfather

Being a grandparent is one of the greatest joys of my life. I love hearing from our children as they share the joys, trials and even the challenges and difficulties of raising their own children.

My wife and I are blessed with 14 beautiful, uniquely wonderful grandchildren. We all like to think that we don’t have favorites, but I would be lying if I didn’t admit that my buddy Matthias has a very special place in my heart.

My journey with childhood cancer began with a telephone call almost 5 years ago. The call is indelibly seared into my memories as one of the most distressing moments of my life.

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Families

Meet 10 Strong: Ten Moms Shave for Kids with Cancer Foundation

by St. Baldrick's Foundation
April 17, 2013

Top row (L-R): Trisha, Beth, TeNeil, Misshay, Ericka
Bottom row: Jessica, Renee, Stephanie, Vanessa, Jordan
Photos by Ali Parker Photography

Meet 10 Strong.

Each one of these moms has heard the words, “Your child has cancer.” Their kids’ cancer journeys brought them to the 10th floor of the University of Oklahoma Children’s Hospital. There in the halls of the pediatric oncology unit, friendship grew. Stronger together, they became 10 Strong.

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