Childhood Cancer

Make an Impact this Childhood Cancer Awareness Month

by St. Baldrick's Foundation
August 16, 2022

As Childhood Cancer Awareness Month approaches this September, we are focused not only on many battles for progress, but on winning the war against all forms of cancers that attack babies, children, teens and young adults.

Thanks to St. Baldrick’s supporters, researchers are making advancements and discoveries daily. And the work of our advocates has also changed the game, resulting in the National Cancer Institute more than doubling its investment in childhood cancer research.

But now is the time to take more action, push forward and use the momentum we have to reach our vision of living in a world where kids no longer die of cancer, and survivors live longer, healthier lives.

As a volunteer and donor powered charity, every bit of progress St. Baldrick’s makes possible is a direct result of individuals like YOU.

This year, for Childhood Cancer Awareness month, our goal is to raise $1.5 million dollars. This money will save lives, starting with the next round of St. Baldrick’s grants this October.

Here are some ways you can get involved for Childhood Cancer Awareness Month. It’s time to take action and prove that we can #conquerkidscancer!

Advocate

Childhood Cancer Awareness Month is also an exciting time for advocacy. Throughout the month of September, advocates across the country will be speaking up for kids with cancer. Here are a few upcoming advocacy opportunities in September:

  • Tuesday, September 13: Members of the Alliance for Childhood Cancer, which St. Baldrick’s co-chairs, are heading to Capitol Hill to advocate for the Childhood Cancer STAR Reauthorization Act. Join the St. Baldrick’s Speak Up advocacy network to receive updates on how YOU can amplify their advocacy!
  • Thursday, September 22: The Childhood Cancer Caucus is holding its annual Summit to discuss policies impacting the childhood cancer community.
  • Friday, September 23: The White House is holding a Childhood Cancer Forum, which you can livestream from home. Sign up here for more information on how to participate in the Forum virtually.

Get Social and Start a Fundraiser

Today, there are 4.7 billion social media users around the world! How great it is that so many of us are connected. That’s why this September, you are encouraged to create your own Facebook fundraiser during Childhood Cancer Awareness Month – to rally your network about your passion to support lifesaving childhood cancer research through St. Baldrick’s.

We’ve got a Toolkit full of instructions and goodies for everyone thinking of hosting a Facebook Fundraiser. Click here to access it.

Head-shaving

Every St. Baldrick’s event starts with the passion of a single volunteer. Bring your community together to raise funds for childhood cancer research by organizing a signature head-shaving event. As a volunteer event organizer, you’ll work directly with foundation staff to ensure your event is not only a great time, but a success, to help kids with cancer.

If you’re not ready to organize an event but still want to participate, that’s terrific, too! Check your area for any upcoming events near you and sign up to shave or volunteer. There are options for everyone!

To learn more about head-shaving events, click the link below!

St. Baldrick’s Head-shaving Events

September 12th is National Video Game Day

You can help #ConquerKidsCancer by hosting a charity stream on Tiltify for St. Baldrick’s. Click this link and join one of our “Current Fundraising Events” to help raise awareness and funds in your community.

We even have a Toolkit filled with some great info to help you promote your stream. For questions or to request the toolkit, contact Creates@StBaldricks.org.

Style With a Purpose

St. Baldrick’s is offering limited edition St. Baldrick’s “Research is Hope” shirts, but only until September 30. Raise awareness and support the mission in style!

A minimum of $10 per shirt will go to St. Baldrick’s Foundation for this limited time campaign, ending September 30, 2022.

Shop our Bonfire campaign here

Coworkers Unite!

September is a great month to rally your co-workers and host an employee giving campaign or engage your team in a company-wide fundraiser. Psst, we have loads of ideas. Let’s talk!

Corporate.Partnerships@StBaldricks.org

Give Shoppers a Choice

Online and in-store retailers, we have a turnkey solution for you to offer shoppers a way to give at checkout. Customers will have an opportunity to help conquer kids’ cancer by giving a donation after their purchase, making their shopping experience more meaningful.

Contact Corporate.Partnerships@StBaldricks.org for more information.

Childhood Cancer Awareness Month is the ideal time to join forces in the battle to give kids a lifetime by conquering childhood cancer. Taking part in one or more of the above items is a way to demonstrate that everyone can make an impact, together.

Read more on the St. Baldrick’s blog:


Advocacy

Advocacy Is Making a Difference

by St. Baldrick's Foundation
May 26, 2022

The childhood cancer community is filled with passionate, dedicated advocates rallying together to make a difference for kids with cancer and childhood cancer survivors. Thanks to the tremendous advocacy of the childhood cancer community, Congress, the Administration, and the National Cancer Institute (NCI) are taking notice.

Over the last five years, childhood cancer advocates have successfully lobbied for meaningful policies and changes. Back in 2018, Congress unanimously passed the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act, the most comprehensive childhood cancer legislation in history.

And the community’s advocacy didn’t stop there. Each year since the STAR Act was signed into law, Congress fully funded the programs STAR created, providing $30 million each year in new resources for childhood cancer. Now Congress is poised to extend the STAR Act further. Just last month, childhood cancer champions introduced H.R. 7630/S. 4120, the Childhood Cancer STAR Reauthorization Act to allow the programs from the STAR Act to continue for five more years.

On the heels of the success of the Childhood Cancer STAR Act, the Childhood Cancer Data Initiative (CCDI) was created in 2019 with the goal of funding $50 million in new childhood cancer research funding each year for ten years. As with the STAR Act, the childhood cancer community has successfully advocated for full funding for CCDI each year. That means Congress has provided $270 million in new resources for childhood cancer since the STAR Act and CCDI were created.

These accomplishments in advocacy are also changing the research landscape at NCI. For many years, the childhood cancer community has rallied around a particularly startling statistic: Less than 4% of the National Cancer Institute’s (NCI) budget funds childhood cancer research. This number so strikingly sums up the frustration about the lack of investment in treatments for kids with cancer and the slow pace of research. The 4% statistic has been a rallying cry for the childhood cancer community to demand better for kids with cancer – and after years of advocacy for more federal research funding, that 4% statistic has indeed changed. Thanks to the tremendous advocacy of St. Baldrick’s advocates and the childhood cancer community, NCI has more than doubled its investment in childhood cancer research in recent years.

The groundswell of advocacy and the investments foundations like St. Baldrick’s makes in early-career researchers and groundbreaking research have paved the way for more funding for childhood cancer research at NCI. In federal fiscal year 2020, NCI spent more than $500 million on childhood cancer for the first time, representing nearly 8% of its total budget that year.

But the work doesn’t stop here. The St. Baldrick’s Foundation will continue to keep up the pressure for more funding to develop new, safer therapies for kids with cancer. Join us today by urging your members of Congress to cosponsor the Childhood Cancer STAR Reauthorization Act, which will allow the programs – and funding – from the STAR Act to continue for five more years.

Click the link below, or text STAR4KIDS to 52886 to take action today.

Ask Your Lawmakers to Cosponsor the STAR Reauthorization Act Today!

Read more on the St. Baldrick’s blog:


Advocacy

Finding a New Way to Advocate: Advocates are Going Virtual for Action Day 2021

by St. Baldrick's Foundation
April 18, 2021

This week is National Volunteer Week – a week dedicated to celebrating YOU, our tireless volunteers who have risen to the challenges of the past year. Even though the pandemic presented us with many obstacles, it also gave us new opportunities for creativity and ingenuity.

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Advocacy

A Life-Changing Diagnosis Inspired My Passion for Advocacy

by Shamari Ann Brazile, St. Baldrick’s Ambassador
September 8, 2020

Shamari is a 15-year old survivor, serving as a 2020 St. Baldrick’s Ambassador. She’s also a strong advocate for childhood cancer research funding and will be part of the Virtual Day of Action on September 9.  Please join the Speak Up for Kids’ Cancer advocacy action network to join her!

girl smiling

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Advocacy

Speak Up for Kids’ Cancer: February 2020

by St. Baldrick's Foundation
February 27, 2020

Read on for updates on the State of the Union, the President’s budget proposal, and events during Rare Disease Week on Capitol Hill.

Ambassador Shamari holding sign

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Advocacy

Speak Up for Kids’ Cancer: January 2020

by St. Baldrick's Advocacy
January 30, 2020

We hope you are having a great start to the new year! Read on for legislative updates, upcoming meetings and events, and ways to get more involved as we hit the ground running in 2020.

kid with sign

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Advocacy

Happy Anniversary, Childhood Cancer STAR Act! Signed into Law One Year Ago Today

by Danielle Leach
June 5, 2019

The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act – the most comprehensive childhood cancer bill in history – was signed into law one year ago today!

2013 St. Baldrick’s Ambassador Matthias advocating on Capitol Hill

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Advocacy

Teen Saved by Science Speaks Up for Kids’ Cancer Research

by Zach Swart
July 3, 2018

Back in April, Ambassador Zach was finally healthy enough after his bone marrow transplant to go out in public. What did he decide to do after that momentous milestone? He joined the hundreds of advocates speaking up for kids’ cancer research on Capitol Hill during Childhood Cancer Action Days. Here’s his recap of that trip and the big moments that have come since …

Ambassador Zach on Capitol Hill

Ambassador Zach poses for a photo in front of the United States Capitol building and its famous dome during Childhood Cancer Action Days in April.

I received a bone marrow transplant over a year ago, and I was so glad that I was healthy enough to speak on Capitol Hill this past April as a St. Baldrick’s ambassador. As an ambassador, I am a face and a voice for childhood cancer, and while in Washington, D.C., my family and I represented thousands of children and families who are affected by childhood cancer. I was lucky enough to share my story and talk about the importance of funding childhood cancer research through the STAR (the Survivorship, Treatment, Access and Research) Act, the most comprehensive childhood cancer legislation ever taken up by Congress. With the recent passage of the STAR Act, we have come so far, but we still have so far to go.

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Advocacy

The Childhood Cancer STAR Act Passes and is Signed Into Law

by St. Baldrick's Foundation
June 5, 2018

After years of advocating on Capitol Hill, the Childhood Cancer STAR Act passed and was signed into law! See how the STAR Act will help kids with cancer and childhood cancer survivors live long, healthy lives.

STAR Act logo

What is the childhood cancer STAR Act?

The STAR Act stands for the Survivorship, Treatment, Access and Research (STAR) Act. It is the most comprehensive childhood cancer legislation ever taken up by Congress.

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Advocacy

Pass the STAR Act Now, Because My Daughter Deserved Better

by Rachael Kittleson
March 27, 2018

The STAR Act — the most comprehensive childhood cancer bill ever introduced on Capitol Hill — was just passed by the Senate and now heads to the House, backed by the support of Members of Congress, families, survivors and advocates like YOU. Why is this bill so important? Rachael Kittleson, the mom to a teen who had a pediatric brain tumor, will tell you …

Avery, Rachael and Kelsey

Rachael (middle) smiles with Kelsey (right) and her little sister, Avery.

There is nothing in life that prepares you for the words, “Your daughter has a large tumor on the left side of her brain.” There is nothing in life that prepares you for telling your husband devastating news about his girl. And there is certainly nothing in life that prepares you for how to keep your teenage daughter calm as you say, “You have to go to the hospital, but you are going to be fine.”

I think back on watching my daughter Kelsey perform on stage or playing on the soccer and lacrosse fields. I think of the cancer breaking into her brain silently and lying in wait, like a burglar.

Kelsey in her soccer uniform

Kelsey was an energetic teenager and an accomplished athlete, playing both soccer and lacrosse.

For me, three years ago was such a time of pride and excitement as I watched our oldest daughter start to come into her own. She was an honors student, athlete, lead in the school musical, tutor and musician. While she was a normal teenage girl excited about things like her dress and date for her 8th grade dance, there was something else going on with Kelsey. The cancer was barely perceptible and easily dismissed, but it would eventually, most cruelly, take everything from her a piece at a time.

As Kelsey’s spring schedule was in full swing, the tumor started to make itself known in innocuous ways – ways I easily brushed aside as a mother. I had no idea this was the beginning and the beast would be in full control in just a couple of months. As Kelsey’s symptoms progressed, an MRI was ordered for August 27, 2015. That day would change our lives forever.

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