Families

‘I Can Be the Voice for My Son’: Father Shaves his Head for the Eighth Time in Honor of his Son

by Erinn Jessop, St. Baldrick's Foundation
February 23, 2018

For Eric Haddad, head shaving isn’t just a one-time deal, because as the dad of a kid who fought brain cancer, he knows firsthand that the effects can last a lifetime. Next month, at the Rocky River event in Ohio, Eric will be shaving his head for the eighth time, while raising funds for research that he hopes will lead to better, safer treatments for kids with cancer.

Eric shaves for his son

During a past event, Eric shaves for his son, Shane.

When Shane Haddad was 4 years old, he started fighting childhood cancer. Eight years later, he hasn’t stopped fighting.

Read more »


Childhood Cancer

Looking for a Cure Far From Home: Shauntelle’s Story

by Erinn Jessop, St. Baldrick's Foundation
February 15, 2018

Childhood cancer knows no borders – but neither does research. In fact, funding kids’ cancer research saves the lives of kids across the globe. This International Childhood Cancer Day, meet Honored Kid Shauntelle, a 19-year-old from Ireland who left everything familiar behind so she could have her best chance at life.

Shauntelle

Thanks to a successful fundraising campaign, Shauntelle and her family were able to move from their home in Ireland to Houston, Texas for cancer treatment.

Honored Kid Shauntelle lives about an hour south of the city of Dublin in Ireland. Four years ago, when she was 15 years old, she noticed rashes popping up on her body. She thought she was scrubbing too hard in the shower or was allergic to her body wash.

“For a while, I just didn’t think to speak up. It was a big pain and a big part of my life, but it was a bit embarrassing,” Shauntelle said. “I wasn’t sure if I was doing something wrong.”

Read more »


Advocacy

Pass the STAR Act, Because Kids With Cancer Don’t Have Time to Wait

by Kathleen Henry
February 6, 2018

My kids are alive. My husband is alive. We are here and we are together. That is what I tell myself when the anger and bitterness take hold. My husband served the United States Army for over 22 years. During that time, two of our children, Collin and Patrick, were diagnosed with cancer.

Patrick and Collin together

Patrick and Collin are brothers and were both diagnosed with childhood cancer. Patrick, now 13 years old, was diagnosed with stage II intermediate risk hepatoblastoma, a rare cancer of the liver, in 2010. Collin, now 11 years old, was diagnosed with acute lymphoblastic leukemia (ALL) when he was 2 years old.

While my husband fought on foreign soil, I served our nation as a military spouse and tackled childhood cancer with our kids in North Carolina. As a family, we sacrificed so much for this nation and yet we ask so little in return – just a chance for a brighter future. The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act can get us there.

Read more »


Families

Kellan Knows Cancer, but Not the Word ‘Can’t’

by Erinn Jessop, St. Baldrick's Foundation
February 1, 2018

February 4 is World Cancer Day AND the 6th birthday of St. Baldrick’s Ambassador Kellan! Born with cancer, this kid started life beating the odds and defying limits, and that’s been his MO ever since. In honor of World Cancer Day and Kellan’s birthday, help us take childhood back from cancer.

Kellan grins from his wheelchair

Ambassador Kellan received his first wheelchair when he was 17 months old. He now has dreams of competing in the Paralympic Winter Games, a massive sporting event similar to the Olympic Winter Games, where athletes with a range of physical disabilities compete in everything from alpine skiing to ice hockey to snowboarding.

Elizabeth was driving her son Kellan back from his first skiing lesson when the boy lowered his voice to an excited whisper. ‘Mom,’ he said, ‘I have to tell you something.’

Read more »


Real-Life Stories

‘The Miracle Kid’: The Story of Brittany Ross

by Erinn Jessop, St. Baldrick's Foundation
January 30, 2018
Brittany smiles during her wedding day

A childhood cancer survivor, Brittany Ross smiles during her long-awaited wedding day to her fiance, Patrick.

When Honored Kid Brittany Ross was told that she’d be lucky to live another three weeks, she didn’t react with sadness. She didn’t bury her head under her hospital bed blankets and cry or ask, ‘Why me?’

She was mad. She was fired up. She was determined to beat childhood cancer.

“They made it seem like I had no chance,” Brittany said of her diagnosis in December 2000. “At this time, I was like, ‘Look, I’m 15 years old. I haven’t really started living my life yet.’”

And she had a come-back that any teenager would be proud of.

Read more »


Families

St. Baldrick’s Participants: Add an Honored Kid to Your Fundraising Page

by Kelly Forebaugh
January 26, 2018

Connecting your efforts with an Honored Kid gives you fundraising superpowers! Find out more — and how to add an Honored Kid to your fundraising page — from Kelly Forebaugh, mom to Honored Kid Jackson and the Director of Hero Funds and Memorials at St. Baldrick’s … (Not a St. Baldrick’s participant? Get involved!)

Honored Kid Jackson with shavees

Honored Kid Jackson in 2006, checking out some heads that were shaved in his honor.

My journey with St. Baldrick’s started 11 years ago. My then 22-month-old son, Jackson, had just completed treatment for pediatric cancer, and we celebrated this momentous milestone by attending our first St. Baldrick’s head-shaving event.

Our family fell in love with St. Baldrick’s that year. We were struck by the simplicity of the fundraising model, the fun, and most importantly, how empowered we felt.

Over the years, our commitment to St. Baldrick’s grew as we attended more events, volunteered, shaved, shared Jackson’s story, and experienced success with our fundraising efforts.

Read more »


Events and Fundraisers

Meet Sir Jack, Eight-Time Shavee and League of Legendary Heroes Champion

by Erinn Jessop, St. Baldrick's Foundation
January 22, 2018

Honored Kid Jack is selfless, brave, passionate, and funny. The seventh grader works hard, even when the odds are against him and if he could be friends with everyone in the world, he would be. In a word, Jack is special. Even cancer couldn’t take that away from him. And that’s what makes him a legendary hero to us — and this year’s League Champion of the St. Baldrick’s League of Legendary Heroes. You can be a legendary hero too! Get started today.

Jack dressed as a knight

Jack was named 2018 League Champion for the League of Legendary Heroes because of his dedication to fundraising for kids’ cancer research. Photo by Courtney Van Alice Photography

Driving home from a visit with her sister, Vickie decided to run an errand. She pulled into the parking lot at Office Depot and stopped the car, expecting her son, Jack, to get out with her. But he didn’t.

“He’s like, ‘I can’t get out of the car, Mom. I can’t move,’ And I was like, ‘What? You were just wrestling with your cousin.’”

Read more »


Childhood Cancer

Kymriah’s Journey From Lab to Lifesaver: The Phase 2 Trial [Part Three]

by Erinn Jessop, St. Baldrick's Foundation
January 11, 2018

Over a series of four blogs — catch up with parts one and two about the Phase 1 trial — we are tracing the path of Kymriah, a recent immunotherapy and gene therapy breakthrough for kids with high-risk leukemia, like Honored Kid Ori.


After relapsing for the second time and with his cancer spreading to his nervous system, Ori’s best chance at life was a Phase 2 trial of this experimental CAR T cell therapy. With a sunny attitude and staggering strength of spirit, Ori gave this new treatment a shot – with astonishing results.

Ori smiles in bed

Ori was in cancer treatment for much of his young life and throughout the journey, his strength and positive attitude have been remarkable. “He has been through so much, but has done it all with a great attitude and a smile on his face,” said his mom, Kaye.

When a child with cancer relapses the first time, their treatment options shrink. But when a child with cancer relapses again, their options and chances at survival don’t just shrink – they’re nearly extinguished. That is what happened to Ori.

Read more »


Families

Meet Brooks

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Brooks

Brooks was only 5 years old, but he had a passion for life! He loved dance parties, Hot Wheels cars, monster trucks, Legos and video games.

His favorite holidays were Christmas and the Fourth of July, and his favorite sports were baseball and soccer. Brooks knew every pizza joint in town and loved salami sandwiches.  He enjoyed taking walks to look for rocks or shells on the beach.

Read more »


Families

Meet Julia

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Julia

When you meet Julia, you know right away there’s something special about her. Perhaps it’s her bright smile or her exuberant joy and compassion for others. But this 11-year-old girl is super!

In fact, that’s her family’s favorite nickname for her — “Supergirl Julia” — given in honor of her courage and determined spirit during her cancer journey.

Read more »


« Newer PostsOlder Posts »