Advocacy

Pass the STAR Act, Because Kids With Cancer Don’t Have Time to Wait

by Kathleen Henry
February 6, 2018

My kids are alive. My husband is alive. We are here and we are together. That is what I tell myself when the anger and bitterness take hold. My husband served the United States Army for over 22 years. During that time, two of our children, Collin and Patrick, were diagnosed with cancer.

Patrick and Collin together

Patrick and Collin are brothers and were both diagnosed with childhood cancer. Patrick, now 13 years old, was diagnosed with stage II intermediate risk hepatoblastoma, a rare cancer of the liver, in 2010. Collin, now 11 years old, was diagnosed with acute lymphoblastic leukemia (ALL) when he was 2 years old.

While my husband fought on foreign soil, I served our nation as a military spouse and tackled childhood cancer with our kids in North Carolina. As a family, we sacrificed so much for this nation and yet we ask so little in return – just a chance for a brighter future. The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act can get us there.

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Families

Kellan Knows Cancer, but Not the Word ‘Can’t’

by Erinn Jessop, St. Baldrick's Foundation
February 1, 2018

February 4 is World Cancer Day AND the 6th birthday of St. Baldrick’s Ambassador Kellan! Born with cancer, this kid started life beating the odds and defying limits, and that’s been his MO ever since. In honor of World Cancer Day and Kellan’s birthday, help us take childhood back from cancer.

Kellan grins from his wheelchair

Ambassador Kellan received his first wheelchair when he was 17 months old. He now has dreams of competing in the Paralympic Winter Games, a massive sporting event similar to the Olympic Winter Games, where athletes with a range of physical disabilities compete in everything from alpine skiing to ice hockey to snowboarding.

Elizabeth was driving her son Kellan back from his first skiing lesson when the boy lowered his voice to an excited whisper. ‘Mom,’ he said, ‘I have to tell you something.’

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Families

St. Baldrick’s Participants: Add an Honored Kid to Your Fundraising Page

by Kelly Forebaugh
January 26, 2018

Connecting your efforts with an Honored Kid gives you fundraising superpowers! Find out more — and how to add an Honored Kid to your fundraising page — from Kelly Forebaugh, mom to Honored Kid Jackson and the Director of Hero Funds and Memorials at St. Baldrick’s … (Not a St. Baldrick’s participant? Get involved!)

Honored Kid Jackson with shavees

Honored Kid Jackson in 2006, checking out some heads that were shaved in his honor.

My journey with St. Baldrick’s started 11 years ago. My then 22-month-old son, Jackson, had just completed treatment for pediatric cancer, and we celebrated this momentous milestone by attending our first St. Baldrick’s head-shaving event.

Our family fell in love with St. Baldrick’s that year. We were struck by the simplicity of the fundraising model, the fun, and most importantly, how empowered we felt.

Over the years, our commitment to St. Baldrick’s grew as we attended more events, volunteered, shaved, shared Jackson’s story, and experienced success with our fundraising efforts.

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Events and Fundraisers

Meet Sir Jack, Eight-Time Shavee and League of Legendary Heroes Champion

by Erinn Jessop, St. Baldrick's Foundation
January 22, 2018

Honored Kid Jack is selfless, brave, passionate, and funny. The seventh grader works hard, even when the odds are against him and if he could be friends with everyone in the world, he would be. In a word, Jack is special. Even cancer couldn’t take that away from him. And that’s what makes him a legendary hero to us — and this year’s League Champion of the St. Baldrick’s League of Legendary Heroes. You can be a legendary hero too! Get started today.

Jack dressed as a knight

Jack was named 2018 League Champion for the League of Legendary Heroes because of his dedication to fundraising for kids’ cancer research. Photo by Courtney Van Alice Photography

Driving home from a visit with her sister, Vickie decided to run an errand. She pulled into the parking lot at Office Depot and stopped the car, expecting her son, Jack, to get out with her. But he didn’t.

“He’s like, ‘I can’t get out of the car, Mom. I can’t move,’ And I was like, ‘What? You were just wrestling with your cousin.’”

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Childhood Cancer

Kymriah’s Journey From Lab to Lifesaver: The Phase 2 Trial [Part Three]

by Erinn Jessop, St. Baldrick's Foundation
January 11, 2018

Over a series of four blogs — catch up with parts one and two about the Phase 1 trial — we are tracing the path of Kymriah, a recent immunotherapy and gene therapy breakthrough for kids with high-risk leukemia, like Honored Kid Ori.


After relapsing for the second time and with his cancer spreading to his nervous system, Ori’s best chance at life was a Phase 2 trial of this experimental CAR T cell therapy. With a sunny attitude and staggering strength of spirit, Ori gave this new treatment a shot – with astonishing results.

Ori smiles in bed

Ori was in cancer treatment for much of his young life and throughout the journey, his strength and positive attitude have been remarkable. “He has been through so much, but has done it all with a great attitude and a smile on his face,” said his mom, Kaye.

When a child with cancer relapses the first time, their treatment options shrink. But when a child with cancer relapses again, their options and chances at survival don’t just shrink – they’re nearly extinguished. That is what happened to Ori.

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Families

Meet Brooks

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Brooks

Brooks was only 5 years old, but he had a passion for life! He loved dance parties, Hot Wheels cars, monster trucks, Legos and video games.

His favorite holidays were Christmas and the Fourth of July, and his favorite sports were baseball and soccer. Brooks knew every pizza joint in town and loved salami sandwiches.  He enjoyed taking walks to look for rocks or shells on the beach.

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Families

Meet Julia

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Julia

When you meet Julia, you know right away there’s something special about her. Perhaps it’s her bright smile or her exuberant joy and compassion for others. But this 11-year-old girl is super!

In fact, that’s her family’s favorite nickname for her — “Supergirl Julia” — given in honor of her courage and determined spirit during her cancer journey.

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Families

Meet Zach

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Zach with a sign

Zach is a cancer warrior. He is courageous, strong and has fought cancer three times.

Diagnosed when he was 6 years old, Zach beat cancer for the first time after nearly four years of treatment. Then, at age 11, he knew it was back. Zach powered through almost three more years of treatment with a positive attitude.

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Families

Meet Maya

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Maya

Maya describes the day she was diagnosed with Wilms tumor as “the worst day ever.”

It was July 6, 2016, one month before her seventh birthday. Doctors immediately scheduled surgery to remove her left kidney, where the tumor was located. Two weeks later, Maya began her treatment plan, which included radiation and chemotherapy. But shortly after treatment started, more aggressive cancer cells were found in her tumor and Maya was placed on a more intensive chemotherapy plan.

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Families

Meet Kellan

by Avis Matsuda, St. Baldrick's Foundation
January 2, 2018
Kellan in his wheelchair

With an irresistible laugh and the face of a cherub, 5-year-old Kellan wins the hearts of everyone he meets. No one even notices his wheelchair.

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