Pediatric Oncologist VEO Brings the St. Baldrick’s Fun to Hawaii
Jeremy Edwards moved from Maryland to Hawaii in 2010. When he learned Hawaii had never had a St. Baldrick’s event, he decided to do something about it. Read on to learn more about Hawaii’s first St. Baldrick’s event, the man behind its success, and the reason he keeps it going every year.

Jeremy with his wife, Katey; his daughter, Lily; and his son, Owen. They all shaved at last year’s Honolulu event. Jeremy’s daughter, Claire (not pictured), volunteered at the event and cut her hair.
Jordan: Lessons & Reflections on Father’s Day

Jordan, I feel your energy on this day — the one they call “Father’s Day.” For me, each year, it is a day spent reflecting on what I have learned and how my life has been enriched from the unique privilege of being your dad.
In my mind, Father’s Day is not about ME…it’s about YOU.
Indeed, it’s about the children in our lives that enlighten and inspire us to peel back the painful layers of burden and reality so as to more clearly expose the somewhat hidden meanings and lessons of life. These lessons often come at a seemingly unfair price — that of sadness, disappointment, and relentless emotional pain. However, this unwelcome “price” quickly shrinks to insignificance as we reflect on the pure joy that comes with the privilege of being the parent of such a remarkable human being.
What Is Alveolar Rhabdomyosarcoma?

What is alveolar rhabdomyosarcoma?
There are two main types of pediatric rhabdomyosarcoma: embryonal rhabdomyosarcoma and alveolar rhabdomyosarcoma.
- Embryonal rhabdomyosarcoma (ERMS) occurs most often in children under 10 years old and is found in the head, neck, urinary tract, or reproductive organs. It is the most common type.
- Alveolar rhabdomyosarcoma (ARMS) is more aggressive, occurs more commonly in teens or young adults, and usually starts in the torso, arms, or legs.
Rhabdomyosarcoma is the most common soft tissue cancer in children, with approximately 350 new cases each year in the United States.
Mother’s Day Without My Baby

Motherhood is a sweet privilege.
Having a child with cancer is a cruel torture.
My daily reality: Being “that” mother who lost her child to cancer.
Four years ago, during the latter stages of Jordan’s cancer treatments for alveolar rhabdomyosarcoma, our family was invited to be the PGA’s special guests at “The Players” Championship Golf Tournament in Jacksonville, Florida.
That would be my last Mother’s Day with Jordan.
Happy Valentine’s Day, Love Mom and Dad
Happy Valentine’s Day Jordan!

Meet Jordan
When he was 16, Jordan was diagnosed with a very aggressive soft-tissue sarcoma. The doctor said, “We have your diagnosis. It’s alveolar rhabdomyosarcoma, and you will most likely not survive.” Jordan responded with strength and a sense of calm. He was the very definition of grace, courage and strength. After 23 months of treatment, Jordan passed away five days before his 18th birthday.
