Families

Ty Louis Campbell Foundation Gives New Hope to Children With Brain Tumors

by Cindy Campbell
July 17, 2014

The Ty Louis Campbell (TLC) Foundation is joining St. Baldrick’s to fund pediatric brain tumor immunotherapy research. Cindy, co-founder of the TLC Foundation, shares why this partnership is giving them renewed hope.

Ty with his parents, Lou and Cindy Campbell

Cindy and Lou Campbell founded the Ty Louis Campbell Foundation after their 5-year-old son, Ty, died of a brain tumor.

Nothing is more powerful than hope.

Hope fueled my passion and gave me the strength to care for my son during his childhood cancer treatment without coming undone at the seams. Without hope, I would have grieved his loss for over a year before he actually took his last breath.

And, without the hope for a cure that I continue to strive for 21 months after his loss, I don’t know that I would find the will to get out of bed at the dawn of every new day I face without him.

Like every parent who hears the words, “Your child has cancer,” I hit the Internet the second I learned of his diagnosis, a rare pediatric brain tumor called atypical teratoid rhabdoid tumor (ATRT). I had such tremendous hope that my Ty would be one of the 20% that survived the devastating diagnosis over five years, and that he would be one of the 10% that didn’t relapse. We nicknamed him SuperTy with certainty that his super strength would prevail.

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Head-Shaving

Ty Louis Campbell Foundation Gives $25,000 to St. Baldrick’s for Childhood Cancer Research Funding

by Rebecca Bernot, St. Baldrick's Foundation
May 19, 2014

We’re working together to fill the funding gap in children’s cancer research. Will you help?

The Ty Louis Campbell Foundation presented a check to the St. Baldrick's Foundation to help fund childhood cancer research

Lou and Cindy Campbell of the Ty Louis Campbell Foundation with Zach Semenetz (second from left), St. Baldrick’s Volunteer Event Organizer, and Susan Heard (second from right), St. Baldrick’s Senior Director of Partnerships and Major Gifts.

Every year when Zach Semenetz organizes a St. Baldrick’s event to raise money for children’s cancer research, he makes sure to find a kid with cancer in his community for his event to honor.

Having an Honored Kid every year helps us stay connected to the cause and really show people the true meaning of why we’re there,” Zach said.

This was his seventh year as a Volunteer Event Organizer (VEO) and his ninth time shaving his head for St. Baldrick’s. And this year, his event at Claddagh Bar and Grill in Mahopac, New York, honored Ty Louis Campbell, also known as SuperTy, who died from brain cancer just days after his fifth birthday.

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Families

Choosing to Smile and Remembering Ty, One Year Later

by Cindy Campbell
November 15, 2013

My son Ty died of a brain tumor one year ago.

Cindy_and_Ty

Cindy Campbell with her son, Ty.

Ty’s childhood cancer journey was horrific, and he suffered side effects from treatment that no child should endure. He couldn’t walk for more than two years; his speech was slurred and difficult to understand; he was often unable to eat or enjoy any kind of food for months on end; he lost mobility in his arms and could no longer hold a toy, eventually losing his ability to even hold his own head up.

Despite all of this, when I asked him what he wanted to do when he was all better, his answer was simple: “I’m gonna jump in a muddy puddle!”

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News

SuperTy’s Birthday and a Childhood Cancer Foundation Partnership

by Cindy Campbell
October 4, 2013
Cindy_and_Ty

Cindy Campbell and her son, Ty. Ty was a brain cancer warrior who passed away last October shortly after his fifth birthday.

Cindy and Lou Campbell founded the Ty Louis Campbell (TLC) Foundation in memory of their son who passed away from brain cancer just after his fifth birthday. Today is Ty’s sixth birthday, and the St. Baldrick’s Foundation and the TLC Foundation are proud to announce that we are partnering in the fight to cure childhood cancer. Cindy explains why:

Fall in New York is so incredibly perfect.  The trees are enchanting, the crisp breeze fills my lungs with purity and the sun continues to warm my face.  Days like this prove to me that Ty is all around.  Every falling leaf is a poetic reminder of our love and loss.

Ty was born on a beautiful fall day. He died on a beautiful fall afternoon, too.

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Families

Our baby is finally free. Rest in peace Ty Louis Campbell.

by Cindy Campbell
October 19, 2012

Ty Louis Campbell is gone, but his story continues. This is our promise to him. His impact on the world around him gives his short but inspirational life such meaning. His soaring spirit will continue to fuel a fire in our hearts, and strangers around the world will continue to fall in love with the little boy who fought so valiantly. The little boy who hurt so much, but maintained a bigger, brighter smile than the healthiest of children.

Ty never did break his fever. He never really woke up. Not until he decided to leave this earth and fly freely among the clouds. At that very moment, he was awake. He had returned to Lou and I to say goodbye. To say our hearts are broken would be like saying it tickles to have your stomach ripped open with a spoon.

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Kids with Cancer

SuperTy – Our Little Fighter

by Cindy Campbell
August 29, 2012

Super Ty passed away on October 17 – our heavy hearts go out to his family and friends. This article was written a few months before his passing by his mom, Cindy. He will forever be a testament to the reason we must continue the fight to cure childhood cancer.

We call him SuperTy because his fighting spirit is remarkable. He is a brain cancer warrior and has beaten the odds over and over again. Ty is 4 years old and a two-year veteran in this war against childhood cancer.

When we heard those words.

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