Joey Chamness has grown up from being St. Baldrick’s very first Ambassador to become a longtime shavee and the VEO of his college event — helping fundraise for childhood cancer research to the tune of thousands of dollars. Why does he do it? Because this survivor knows firsthand how important it is to find better, safer treatments and cures for kids with cancer.
(Left) Joey rests and watches movies during his treatment for osteosarcoma. (Right) Now a survivor, Joey speaks during a St. Baldrick’s head-shaving event.
21-year-old Joey Chamness considers himself lucky.
Ambassador Julia is a volunteering powerhouse. Bake sales, bingo, fun runs, speeches — she does it all. Why? In honor of Volunteer Week, read on for a heartwarming Q&A that will give you all the answers and leave you wanting to give back too. Join Julia and get involved!
Ambassador Julia goes gold for childhood cancer awareness.
1. What’s your favorite volunteering position and why?
My role as St. Baldrick’s ambassador has become a favorite, but I love any of the volunteering I do that helps sick kids. That’s most of the volunteering I do lately. Helping sick kids is my favorite, because I’m helping them like people helped me when I was on treatment and having so many surgeries. Also, when I grow up I want to have a foundation that helps create programs that make sick kids who are in the hospital happy. In fact, I want to perform for kids in the hospital when I grow up.
2. What is it like being a St. Baldrick’s Ambassador? What’s your favorite part?
It’s really exciting being a St. Baldrick’s ambassador! I get to make fun videos talking to people about childhood cancer and what St. Baldrick’s does, and I REALLY love going to shave events! There’s always a lot of action, everyone is really nice and I get to make speeches. The shave events are definitely my favorite part, along with knowing that I’m helping raise money for childhood cancer research.
Ambassador Julia smiles with a shavee at the Occoquan-Woodbridge-Lorton Volunteer Fire Department head-shaving event in Virginia.
3. Where else do you volunteer and how often do you volunteer?
I volunteer at least once or twice a month for several organizations in my community. Once a month, I visit a local assisted living facility with my music teacher and other students from the studio. We spend an hour performing for the residents. I play the piano and sing, and I really enjoy making the older people happy.
In honor of National Siblings Day, we bring you an amazing story of a brother’s love and dedication to honor his sister and raise money for childhood cancer research in her memory. Meet Geordan, a long-time shavee and the proud big brother of Honored Kid Rayanna.
Rayanna and Geordan share a sweet moment.
When Geordan shaves with St. Baldrick’s, his sister is there. When he drives his race car, she’s with him. When he walks the halls of his high school, rocking his bald head, Rayanna is never far away. The little girl is always with Geordan in his thoughts, hanging around her brother just like she did before childhood cancer took her away.
“Rayanna was my only full sibling and now it’s just me,” the 16-year-old said. “I miss Rayanna and wish there had never been childhood cancer.”
Leanne gives Ava a kiss on her peach-fuzz head, while her baby sister, Addalyn, giggles.
It turns out that being bald is an instant conversation starter. Leanne, who just recently shaved with St. Baldrick’s, loves it.
“It’s very empowering,” she said. “Honestly, it hasn’t even been a week yet and I can’t tell you how many times I’ve been asked about my hair. It just opens the door for conversation and I love that, because I love talking about my daughter.”
Her daughter’s name was Ava – Ava the brave, bald and beautiful.
Ava showed an independent streak as soon as she could sit up by herself. “I’ve never seen anything like it. She just really was her own person,” her mom said.
For Eric Haddad, head shaving isn’t just a one-time deal, because as the dad of a kid who fought brain cancer, he knows firsthand that the effects can last a lifetime. Next month, at the Rocky River event in Ohio, Eric will be shaving his head for the eighth time, while raising funds for research that he hopes will lead to better, safer treatments for kids with cancer.
During a past event, Eric shaves for his son, Shane.
When Shane Haddad was 4 years old, he started fighting childhood cancer. Eight years later, he hasn’t stopped fighting.
Childhood cancer knows no borders – but neither does research. In fact, funding kids’ cancer research saves the lives of kids across the globe. This International Childhood Cancer Day, meet Honored Kid Shauntelle, a 19-year-old from Ireland who left everything familiar behind so she could have her best chance at life.
Thanks to a successful fundraising campaign, Shauntelle and her family were able to move from their home in Ireland to Houston, Texas for cancer treatment.
Honored Kid Shauntelle lives about an hour south of the city of Dublin in Ireland. Four years ago, when she was 15 years old, she noticed rashes popping up on her body. She thought she was scrubbing too hard in the shower or was allergic to her body wash.
“For a while, I just didn’t think to speak up. It was a big pain and a big part of my life, but it was a bit embarrassing,” Shauntelle said. “I wasn’t sure if I was doing something wrong.”
Honored Kid Jack is selfless, brave, passionate, and funny. The seventh grader works hard, even when the odds are against him and if he could be friends with everyone in the world, he would be. In a word, Jack is special. Even cancer couldn’t take that away from him. And that’s what makes him a legendary hero to us — and this year’s League Champion of the St. Baldrick’s League of Legendary Heroes. You can be a legendary hero too! Get started today.
Jack was named 2018 League Champion for the League of Legendary Heroes because of his dedication to fundraising for kids’ cancer research. Photo by Courtney Van Alice Photography
Driving home from a visit with her sister, Vickie decided to run an errand. She pulled into the parking lot at Office Depot and stopped the car, expecting her son, Jack, to get out with her. But he didn’t.
“He’s like, ‘I can’t get out of the car, Mom. I can’t move,’ And I was like, ‘What? You were just wrestling with your cousin.’”
Over a series of four blogs — catch up with parts one and two about the Phase 1 trial — we are tracing the path of Kymriah, a recent immunotherapy and gene therapy breakthrough for kids with high-risk leukemia, like Honored Kid Ori.
After relapsing for the second time and with his cancer spreading to his nervous system, Ori’s best chance at life was a Phase 2 trial of this experimental CAR T cell therapy. With a sunny attitude and staggering strength of spirit, Ori gave this new treatment a shot – with astonishing results.
Ori was in cancer treatment for much of his young life and throughout the journey, his strength and positive attitude have been remarkable. “He has been through so much, but has done it all with a great attitude and a smile on his face,” said his mom, Kaye.
When a child with cancer relapses the first time, their treatment options shrink. But when a child with cancer relapses again, their options and chances at survival don’t just shrink – they’re nearly extinguished. That is what happened to Ori.
Brooks was only 5 years old, but he had a passion for life! He loved dance parties, Hot Wheels cars, monster trucks, Legos and video games.
His favorite holidays were Christmas and the Fourth of July, and his favorite sports were baseball and soccer. Brooks knew every pizza joint in town and loved salami sandwiches. He enjoyed taking walks to look for rocks or shells on the beach.
When you meet Julia, you know right away there’s something special about her. Perhaps it’s her bright smile or her exuberant joy and compassion for others. But this 11-year-old girl is super!
In fact, that’s her family’s favorite nickname for her — “Supergirl Julia” — given in honor of her courage and determined spirit during her cancer journey.
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