Childhood cancer doesn’t just affect the child who’s diagnosed, it affects the entire family. May’s Advocate of the Month — the Lautieri Family — is fighting back. Read on for more about the family’s cancer journey with Honored Kid Grayson and why they continue to speak up and give back.
Grayson wears a hat emblazoned with his team name.
When Honored Kid Grayson Lautieri finished treatment in April, he was done with chemo, but he and his family weren’t done fighting against childhood cancer.
Do you care about children’s cancer? Do you want all kids to live long, healthy lives? Do you want more funding for more lifesaving research, so kids with cancer can get back to being kids? (Is that a big YES we heard?) Ta da — you’re an advocate!
Yep, it’s that simple. And now it’s time to get down to business, advocate. At this critical moment, when federal research funding is being threatened, it’s time to ACT. It’s time to speak up for kids with cancer by supporting the STAR Act, the most comprehensive childhood cancer bill to hit the Hill.
And guess what? You don’t have to stalk the halls of Congress or shake hands and kiss babies — you can speak up for kids’ cancer wherever you are.
The March Advocate of the month is Kelly Forebaugh, a hero for kids with cancer who wears many hats — she’s the Director of Hero Funds and Memorials at St. Baldrick’s, mom to a cancer survivor, a staunch advocate for children’s cancer research, a shavee and a regular at Childhood Cancer Action Days on Capitol Hill. What inspires her to do all this? Read on to find out.
Kelly gets her head shaved by her son, Jackson, during their family’s 2016 St. Baldrick’s head-shaving event.
Six St. Baldrick’s shavees from Tennessee have been volunteering for years to raise money for childhood cancer research — but their dedication to the cause doesn’t end there. Read on to learn about each of these incredible individuals and how they went from head-shaving in Murfreesboro to advocating on Capitol Hill.
The ‘Bald in the Boro’ group (from left to right): Marshall Campbell, Isaac Harrison, Jeremy Harrison, Logan Simmons, Chris Simmons, and Joyce Tibbs.
The Administration’s FY18 Budget proposes a $5.8 billion cut to the National Institutes of Health — a move that St. Baldrick’s researcher Dr. Jeffrey Lipton finds concerning for the future of childhood cancer research. Read on for more about the proposed budget, Dr. Lipton’s fears and what YOU can do about it.
As a physician scientist who has treated children with cancer for decades, I am deeply concerned about the President’s proposed federal budget for the coming year.
I know this budget will be carefully reviewed by many, and that Congress holds the purse strings. That’s why I’m counting on our champions in the House and Senate to stand up for our children.
Need some monthly inspiration? We’ve got it! Each month we will be highlighting one of our heroes right here on the blog. Without further ado, say hello to our first Advocate of the Month: Wendy Baskins. Wendy never backs down from a fight — just like her son, Stephen, who battled cancer three times. Read on for more about Stephen, what he taught her, and why Wendy fights for families facing childhood cancer.
Wendy wears a big grin as she goes bald for childhood cancer research during the 46 Mommas Shave for the Brave event. Courtesy of Cassell Photography
When the going gets tough, the tough get going. That is one of the many things Wendy Baskins learned from her son, Stephen.
What happens when a group of experts come together to discuss developments in childhood cancer research and advocacy? Some inspiring conversations about new data, drugs and therapies, important childhood cancer legislation, and more — all to make sure we’re making the best investments with YOUR donations. Get the scoop on our 2016 Research and Advocacy Priorities Summit below.
Every couple of years, St. Baldrick’s brings together our experts to take stock of what we’re doing now, and to look to the future of childhood cancer research. We examine what we are doing well, what we can do better, and what we need to do to help kids with cancer not only survive, but thrive.
Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.
When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.
Two years ago we brought you the incredible story of Kate Foster, who was just getting back to the gym after surviving childhood cancer. Now she’s 17 and still competing in gymnastics — all while keeping up top grades, applying to colleges, and advocating for kids with cancer. Read Kate’s story in her own words below.
When I was 8 years old I started competitive gymnastics and it quickly became my life.
Thanks to your advocacy efforts, the most comprehensive childhood cancer bill ever is making its way through the Congress. But the window of opportunity is closing and we need your help now more than ever. Read on to see how you can help us make history in Washington for kids with cancer.
This week, we hit a massive target in our push to pass the Childhood Cancer STAR Act. In the House, the 250th member of Congress just signed on to the bill!
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