Advocacy

BREAKING NEWS: FDA Approves Childhood Cancer Drug

by St. Baldrick's Foundation
March 11, 2015

We’ve got some spectacular news. Really, really big news.

The FDA Has Approved a New Childhood Cancer Treatment

In the last 20 years, only two new drugs have been approved that were specifically developed to treat children with cancer.

Yesterday, that changed. Now there are three.

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Advocacy

Grieving with Action

by Susan Heard
April 5, 2012

St. Baldrick’s offered me the first opportunity to do something while my son, David, battled stage IV neuroblastoma.

David’s cancer made me feel helpless, and shaving my head provided me with the chance to find hope! After David died, he asked me to shave my head again with the 46 Mommas, which I did in September 2011. While in Washington, D.C. for the Mommas’ head-shaving event, I advocated for the Creating Hope Act. I met with Representatives and Senators about the importance of research for childhood cancers. I left “The Hill” inspired that I was doing something to change the face of this awful disease.

The St. Baldrick’s Foundation has been my way to grieve with action — never letting the despair overwhelm me, but staying focused on bringing hope to all families who are told their child has cancer. I am grateful for the training I received on how to meet with political personnel. I brought that education back to my hometown, where I met with my Congressman and he promptly signed on as the 60th sponsor of the Creating Hope Act.

Thank you, St. Baldrick’s, for being a refuge for kids with cancer (and their families)!

Susan Heard
Easton, PA
Mother of David
Relapsed stage IV neuroblastoma
May 2, 2000 – February 10, 2011


Advocacy

St. Baldrick’s Launches Advocacy Effort to Create Change for Kids with Cancer

by St. Baldrick's Foundation
January 13, 2012

The St. Baldrick’s Foundation is proud to announce the creation of the Foundation’s new advocacy effort, Speak Up for Kids’ Cancer, that will inform and engage volunteers in advocating for the public policy issues that affect kids with cancer. The program will provide Foundation volunteers with the support and resources they need to contact members of Congress to express their views on important matters and advocate for childhood cancer issues. The Foundation is also working with its advocacy partners in the childhood cancer community to address ongoing issues.

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