chase

In August 2012, Chase was diagnosed with a rare and deadly pediatric brain tumor. Chase is now 4 and participating in a St. Baldrick’s-funded children’s cancer study, and his scans continue to show no evidence of disease. Chase’s mom, Ellie, shares his story.

Chase was diagnosed with ATRT, a type of brain cancer in children, when he was 2.

The joyful doctor laid the small newborn baby on my chest as the oxygen raced into him and a tiny scream, that first sound, echoed in the room. This small, headstrong baby, born with so much fight, would be named Chase.

Two years, seven months, 18 days, and about 13 hours later, Chase’s older sister would run into our room in the middle of the night and tell us that Chase wouldn’t stop moving in his bed and it was keeping her awake. He wouldn’t stop because, as we quickly discovered, he couldn’t. He was having seizure.

Within minutes, I lay on an ambulance stretcher, one hand holding my headstrong baby and the other clutching an oxygen mask to his precious face.

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