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Hero Fund

Invictus Fund


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Holden lived large and loved every minute of life. He was relentless in his pursuit of being a "normal" kid - riding the bus, being in first grade, playing baseball, being a friend. Just being a KID. He handled cancer and hemodialysis with amazing grace. He rolled with the punches and lived a life full of laughter, joy, and love. This fund is to honor our awesome-sauce son and brother and his unconquerable spirit.
2018
$37,071
Funds Raised in 2018
2017
$75,300
Funds Raised in 2017
$309,805
Total Funds Raised
Since 2012

Holden was diagnosed with Wilms Tumor on his left kidney in October 2010, and his oncologist told me, "Wilms is the best kind of cancer to have."

I beg to differ; no child should have to endure cancer and the havoc that treatment wreaks on their little body; no family should have to endure the trauma of treatment, the specter of late effects, and the lurking, nagging fear of recurrence and relapse. His doctors amended his diagnosis quickly; first, from Stage II to Stage IV with the discovery of a nodule on his lung. Then, from favorable histology to diffuse anaplasia. His chances of survival went from 95% to 30% in a few heartbeats. And they warned us: "event-free survival equals overall survival." If it came back, there was nothing left in the arsenal. Holden weathered the storm and went through the toughest treatment on a COG clinical trial. He achieved No Evidence of Disease (NED) status and had his central line removed on his fourth birthday.

After fourteen glorious months of enjoying NED, Holden got a sharp, sudden pain on his right side and we took him in two weeks early for a quarterly checkup. His CT scan revealed that he had a 6 cm Wilms Tumor (that was not visible on his CT scan just two and a half months prior) on his remaining kidney. It was not a relapse, it was, as the doctors said, "a metachronous lesion on the contralateral kidney." In plain English, it was bilateral Wilms Tumor, but at separate points in time. But it was not a relapse, so we had hope. But Holden had to go through the entire course of treatment again. His doctors were unable to save a functioning portion of his remaining kidney, so he was on hemodialysis for more than half of the second round of treatment.

The first time, Holden blazed a trail. The second time was much harder; more infections, more hospitalizations, trouble with dose adjustments required because of hemodialysis, "late" effects like congestive heart failure starting to show their evil faces. But he did it. He marched through with strength and determination. And a smile. His first day of kindergarten was two weeks before the school year ended; then he went to first grade three days a week (despite hemodialysis three days a week). We were in the midst of a living donor transplant evaluation and discussing setting the date when we discovered a metastatic tumor in his lung. We slowed it with targeted high-dose radiation, and enjoyed five more months with Holden. And he enjoyed himself, being a kid, riding the bus, playing baseball, sharing his infectious laughter.

Wilms is rare.

Diffuse anaplasia is rare.

Metachronous Wilms is rare.

Rare³ = unique. But that is just what Holden was. Unique. One of a kind. Irreplaceable. Unconquerable.

Most families facing a diagnosis of Wilms Tumor are fortunate, because there has been a lot of research and it does have a high survival rate. We were fortunate in that Holden was our son, brother, and friend; but unfortunate in that he was a statistical outlier when it came to surviving Wilms. Our goal in partnering with St. Baldrick's is to raise money that will go to funding critical research to not only find cures for pediatric cancer, but also to mitigate the side/late effects that will haunt these children for the rest of their lives. We want to save the Holdens of the future, because when we lose each one, we lose a lifetime of potential.

Invictus Fund Highlights & Happenings

Invictus Poem

Holden went through Hell, twice. He never asked why. Read the poem by William Ernest Henley.

Your Support Means So Much

These friends and family members helped us raise funds for childhood cancer research in honor of Holden! See the 2014-2017 list.

Fundraiser on Four Wheels

Thanks to Miriam, St. Baldrick's has a license plate in Ohio! Learn how she took to the road to Conquer Childhood Cancers here.

Photo Gallery

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Where does the money go?

Donations made to the Invictus Fund have helped support a St. Baldrick's Scholar Grant for Elizabeth Stewart, M.D. Dr. Stewart is researching high risk solid tumors at St. Jude Children's Research Hospital.

The St. Baldrick’s Foundation is guided by a Scientific Advisory Committee, comprised of leading experts in the childhood cancer community, to ensure that every dollar makes the greatest impact for kids with cancer.

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Who's involved

These people make us smile - they’re the doers and money-raisers on behalf of the Invictus Fund. They’re shaving their heads, hosting events, starting fundraisers and more to make childhood cancer research possible.

See who’s raising money

2018 Events for Invictus Fund

The Pub at Rookwood Mews Event Photo
    The Pub at Rookwood Mews
    • Mar 25th, 2018
    • Cincinnati, OH
    • 30 participants
    • $14,659.20 raised
    Walnut Hills High School Event Photo
      Walnut Hills High School
      • Mar 16th, 2018
      • Cincinnati, OH
      • 49 participants
      • $19,037.00 raised

      This event is private.

      Private events are for people at the company, organization, school, etc., where the event is taking place. Please don't crash the party.

      Do you want to continue to register for this event?

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      Get involved your own way:

      Start your own St. Baldrick’s head-shaving event to raise money on behalf of our Hero Fund! You’ll be paired with a staff member who will walk you through every step of the process, and you’ll have fun knowing you’re doing a great thing for kids with cancer.

      Register to shave your head and raise money for our Hero Fund at any St. Baldrick’s event happening around the world! Not finding an event near you? Register as a virtual shavee and shave your head anytime, anywhere.

      Head-shaving not your thing? You can start a fundraiser to raise money for our Hero Fund with St. Baldrick’s in a way that interests you! Like biking? Bike a marathon. Like baking? Start a cookie baking fundraiser… You get the picture.

      Need help? Email us at Funds@StBaldricks.org

      Thank you to our donors

      $250 - $499

      $100 - $249

      $1 - $99

      This event is private.

      Private events are for people at the company, organization, school, etc., where the event is taking place. Please don't crash the party.

      Do you want to continue to register for this event?

      No Yes