Hi Everyone!
My name is
Olivia Egge and I'm 17 years old. I'm a junior at National Cathedral School and
my favorite things are learning, traveling, competitive diving, and hanging out
with my friends. However, something happened last year that stopped me from
doing the things I love. On February 3, 2017 a tumor was found in my knee and I
was diagnosed with Osteosarcoma, a rare cancer that starts in the bone. I
remember casually leaving school to go to the doctor, not really suspecting
anything. He then told me that I needed to start aggressive chemotherapy
immediately then have limb-sparing surgery that would replace my knee and half
of my lower leg bone and then more chemotherapy over the course of 9 months. It
was a tough time – no school, no travel, no diving, no hair and over 100 nights
in the hospital. It was a long road because osteosarcoma requires more intense
chemo than most other cancers and the side effects are difficult. The good
news is I'm doing well now. I'm back in school full time, hanging out with
friends, travelling, have two inches of hair back, and am starting to walk
again without my crutch.
Last year,
my community did an amazing thing. They threw a party and shaved their heads
and made me and my family laugh and smile for a day. I cannot tell you
how much this event meant to me – it was one of the toughest times! I was in a
wheelchair, wearing a wig, and in a lot pain. This AMAZING community raised
both my spirits, and the seed – over $300,000 – for this research grant. It was
so great that I wanted to share this amazing experience with my friend, John
Varney....
My name is John Varney and I'm a 17 year old junior at St.
John's College High School. My favorite things are hanging with my
friends, playing video games, skiing and being the manager of the SJC baseball
team. However, last year after returning from a whitewater rafting trip in Utah
I thought I had a sprained knee. I went to the doctor not really suspecting
anything, but the x-ray worried the doctor and he had me see a specialist the
next day. On October 6th, 2017 I learned I had a tumor in my knee
and was diagnosed with Osteosarcoma, a rare cancer that starts in the bone. The
doctors told me that I needed to start aggressive chemotherapy immediately then
have limb-sparing surgery that would replace my part of my femur, my knee, and
part of my tibia. I was also told I would need lung surgery on both my
lungs. So far this year I've had all three operations, all of which have been
successful. And I am still receiving chemo at Memorial Sloan
Kettering in New York and I am feeling ok and getting great treatment. I'm
finishing all my school work and looking forward to hanging out with friends,
again.
Although I'm doing ok now, other kids with Osteosarcoma are not,
and I want to help and encourage them. Olivia did this for me and it was really helpful. So now I want to pay
it forward and get involved. I'm excited that my family and I are contributing
and asking our friends to shave their heads and/or help us by forming
fundraising teams.
We met each
other because of Osteosarcoma and we are asking you to join us to fund a
research grant for Osteosarcoma – this is an aggressive cancer so we need to be
aggressive back.
Sadly, the
treatment protocol and survival rate for Osteosarcoma has not changed in nearly
40 years. We want to find better treatments so that no kid has to walk
into the doctor's office and learn what we did, and then suffer through surgeries
and brutal chemotherapy. We want there to be a treatment that can give
parents more certainty that their son or daughter will survive. It is
unbelievable to us that we cannot do better. Now is the time that we must come
together to fix this so that others don’t have to go through what we did.
We know how
much this event means to kids and families whose lives have been changed
forever by Osteosarcoma. Thank you for all of the love and
support you have sent our way and thank you in advance for joining us to fund
an Osteosarcoma research grant – we need to find a cure!
Olivia and
John
Proceeds
will directly fund the Osteosarcoma Collaborative St.
Baldrick's Grant to Cure Osteosarcoma. This partnership will bring
much-needed research to an especially aggressive pediatric cancer that
has seen no new approved treatments since the advent of chemotherapy, 40
years ago.
RSVP at: https://www.eventbrite.com/e/shavers-life-savers-to-fund-the-osteosarcoma-collaborative-st-baldricks-grant-to-cure-osteosarcoma-tickets-46039829369