Charlie was terminally diagnosed on Feb. 2, 2016 with an aggressive, pediatric brain tumor known as Diffuse Intrinsic Pontine Glioma (DIPG), which is an inoperable tumor found at the base of the brain. There is no cure for the cancer.
Charlie loved every minute of this life and world. He will always be with us who had the privilege of knowing him, loving him and being loved by him. He would want nothing more than for the rest of us to appreciate the life we have. To stop, look around and feel the wonder surrounding us, and cherish the connections with those in our lives.
Poole was a cross country runner and is remembered for his quirky humor and wit, as demonstrated by his Facebook page’s bio: “I have brain cancer, I do not want your pity. I will take some pie though, pie is the best.”
Charlie was active in his medical care, attending several DIPG research conferences and participating in many clinical trials. He was also a committed advocate for others in the DIPG community, reaching out to others suffering and offering peer support.
Charlie was one of those people who lit up the room and while our time with him was brief, the impact he made on all of us will never be forgotten.