It feels GREAT!!!! (3/13/10)
I will be posting a ton of pics for you on the website and I will also send you pics for those of you that I have your e-mail address.
THANK YOU ALL AGAIN for all of your generous support.
I hope some of you got to watch the "live" segment on Channel 2 yesterday. My 14 year old (Alex) was chosen to be the one to shave my head....It was FUN! I am glad he did not clip my ear off for all the times that I grounded him!!
A little reason why I'm shaving my head is that it's such a small sacrifice for a great cause in honor of kids like Grace. Thank you Lisa and Dave for sharing your story. Please see their story about their daughter Grace below:
"Grace was our 4th child. My husband and I had 2 girls ages 4 and 6 and a 2 year old boy when Grace was born. She was such a joy for us. Her birth was quick, fun and easy, and she was a beauitful baby. Grace was healthy and growing and we had so much fun taking her everywhere.
She became ill in October when she was 6 months old. She was being treated for a pneumonia, but wasn't getting better, so early on a Sunday morning, I took her to the local Emergency Room. I cannot explain the shock that I felt when the physician told me she probably had leukemia. It was as if my world had suddenly shifted and I was now placed in a foreign land. We went to the downtown hospital for further diagnosis and treatment. Grace was a trooper through all the bone marrow tests, spinal taps and chemotherapy treatments.
We were told she had Acute Myelogenous Leukemia (AML). We were told that this particular form of leukemia was rare and more difficult to treat than other forms. Grace needed intensive chemotherapy in order to survive, so began her monthly chemotherapy sessions. She needed a central catheter placed in a vein for medications and this was her new look. The chemo sessions went well, and Grace's leukemia went into remission. I was told that this meant the cancer was not detected, but she still needed chemo as the cancer could reappear at any time. As a family, we tried to have a normal life. We did our best to celebrate holidays and birthdays. We did this with the knowledge that this could all change quickly.
Grace did well throughout her treatments and by the following June she had completed the series. We were told that we could go home and bring her back for monthly checks. We enjoyed our summer. Grace grew and played and reached all her normal developmental milestones. She was our little jewel. Summer moved to Fall.
We had made some very good friends who also had children with cancer. Unfortunately, our good friends' 3 year old son, who also had AML relapsed and died that October. This was awful to watch and worry and anticipate that Grace could be next. It was during a monthly check early in November that we discovered that Grace's leukemia had, in fact, recurred.
Since she had completed the chemo series for AML, the next step was experimental chemotherapy. Grace continued to soldier on, but we could see that our options for her were dwindling. By Thanksgiving we learned that there was no more that could be done for our little Gracie. It was time to take her home for good. Our objective was to keep her comfortable, and this is what we did through the Christmas and New Year holidays.
Grace was ever sweet, and continued to enjoy her siblings throughout her last weeks. She was at home and died while I was holding her.
I cannot tell you how one's life is forever changed by this experience. Please know that there were many many wonderful people who were there for us. Grace, even though she did not live long, continues to touch the lives of those like yourself, who hear her story. Thank you for giving me the opportunity to tell you about her."
-Lisa and Dave H.-