Her is a quick summary of what’s been going on with me since last March:
Surgery last Spring to remove the remaining tumor in my lungs, followed by lung radiation.
I fell off my bike over the Memorial Day weekend and developed a pneumothorax (partially collapsed lung), but rode the Courage Classic in late July none the less. The pneumothorax healed by August
I got word that I was again showing no evidence of disease (NED). I am currently still NED! Yeah baby!
My port came out last November and I continue to get scans every 3 months.
Also, I am taking a maintenance biological (non chemo) drug that has shown promise in treating patients whose sarcoma has relapsed. The drug, Pazopanib, is pretty easily tolerated, but has the side effect of giving patients grey hair. My hair is actually turning white. I’d shave my head for St. Baldrick’s but I have had enough being bald for now.
I raced 3 of 4 high school mountain bike races for Boulder High. My goal was to finish the races, and I did that, despite some tough racing conditions including 80 degree temperatures. I qualified for the State championship in Durango and finished that race too!
So hear I am, trying to raise funds for childhood cancer researchers. I appreciate your support!