At age 5, Harley was diagnosed with an optic glioma that caused him to be blind. He went through 2 types of chemotherapy and numerous brain surgeries before the tumor was removed when he was 11. After 4 years of no problems, he was diagnosed with Myelodysplastic Syndrome, most likely caused by one of the chemotherapies, which eventually turned into Leukemia. We lost him at the age of 18 while he was undergoing a bone marrow transplant.
Like so many of his fellow patients, Harley handled these challenges with courage and grace. He was determined to not let any of his issues slow him down. He lived life to the fullest and was very grateful for the organizations that had helped him during his toughest times and when he was working towards independence as a young adult. He was an active member of organizations advocating for the blind and often helped at fund raisers for organizations supporting cancer patients. He looked for ways to help them reach their goals.
When we were going through his belongings after our long stay at the BMT unit, we found Harley’s wallet. It had $240 dollars in it. We feel like the best way to use that money is to continue his legacy of giving to the organizations that helped us for all those years.
Harley shaved every year at the Dell Children's Medical Center St. Baldrick's event. He enjoyed raising money for childhood cancer research. He was always hopeful that new medicines would be developed that could save other kids with cancer. Harley's wallet will be providing water for the event and helping out however we are needed while cheering on Team Harley.