Micah is a bright and curious girl who loves music, reading, being outside, making new friends, school, and learning about everything. She's more and more independent by the day and is full of energy. Maybe a little too much energy sometimes.In March 2012, a day shy of 15 months old, an initial diagnosis of pneumonia led to the discovery that she had high-risk neuroblastoma. She had tumor activity in her abdomen, chest, arm and leg bones, and her bone marrow. Micah started chemotherapy less than a week after admission to the hospital. After several rounds of chemo, surgery to remove her primary tumor, MIBG therapy, autologous stem cell transplant, radiation and a few rounds of immunotherapy (using a drug whose development was partially funded by St. Baldrick's!), she was declared to be in remission in May 2013. She handled it all like a champ, with a consistently great attitude and an ability to charm all of the nurses, doctors and everyone else she met, and almost always mild side effects. One week shy of completing her immunotherapy, in August 2013, Micah was found to have a new lesion in her left femur. Chemo and radiation got it under control, though not after some damage to her femur. Unfortunately, she relapsed again in January 2014. After additional chemo, radiation and surgeries, she was again declared free of detectable disease in August 2014. She then started less-toxic treatments intended to prolong her remission, including six months on a St. Baldrick's-funded trial in 2015. She had surgeries in February 2016 and July 2017 to repair her femur, and went off-treatment in February 2019.
Micah is curious, intelligent and empathetic, and hopes to one day be an oncologist so that she can help kids fighting cancer.