Honored Kid

Conlan Gilmor

Age 18
Conlan Gilmor Kid Photo

Location

Orefield, PA, US

Diagnosis

Myoepithelial carcinoma

Date of Diagnosis

December 2016

Status

No evidence of disease

Treated At

The Children's Hospital of Philadelphia

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My Story

My journey started with an large odd bump on my elbow. Thinking it to be some type of cyst, a pediatric surgeon performed surgery to remove the mass. Unfortunately, it turned out to be a tumor and was diagnosed as Ewing's sarcoma. Based on the pathologist's recommendation, we went straight to CHOP. However, the experts there weren't so sure it was Ewing's. As I went through all the preparations for starting chemotherapy, we got the news. It wasn't Ewing's but rather myoepithelial carcinoma, a rare salivary gland cancer found mostly in older people -- an it was on my elbow! Now, I was told that chemo wouldn't work so our whole journey took a left turn. I had another surgery and then six weeks of radiation where I lost feeling and movement in my hand and arm. Now it's almost a year since my last radiation and all of my check-ups have come back clear! I've regained almost all of my hand function (although my forearm nerve is gone forever) and I'm back to fishing! Research is SO important because weird cancers can happen too and we need to be able to treat all of them! Without the experts at CHOP, I don't know where I would be, and now I might be a published case study! I'm famous!

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