Honored Kid

Trace Barley

Age 21
Trace Barley Kid Photo

Location

Orlando, FL, US

Diagnosis

Acute myeloid leukemia (AML)

Date of Diagnosis

November 2017

Status

In remission

Treated At

M.D. Anderson Cancer Center - Orlando Arnold Palmer Hospital for Children Florida Hospital for Children

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My Story

My journey began on my 19th Birthday, 11-30-17. I had been tired and wasn't hungry over a 2 week period. My family noticed a change in my color, my face was pale and I started getting dizzy. My mom took me to Centra Care thinking it was the flu or mono. Based on my symptoms, they said we needed to go to the ER. We went to Orlando Health ER and they tested me for the flu, mono and took blood work. Within a couple of hours, the ER Dr. came in with the news that my white blood count was 38,000. I was admitted and within 24 hours, they told me I had AML, did a bedside bone marrow biopsy, put a double hickman port in and told us I would be hospitalized for about 30 days. I started the first round of chemotherapy on 12-8-17, 10 days, 3 medications and then you wait for everything to drop and come back up. The days were filled with Neutropenia, fevers, ct scans, xrays, antibiotics, medication side effects, spinal tap and another bone marrow biopsy. Finally after 42 days, I could go home. I was home 5 days and then readmitted back into the hospital on 1-15-18 for the second round of chemotherapy. This time it was 8 days, 3 medications and then the waiting for the counts to drop and come back up. I went neutropenic but so glad no fevers or high dose antibiotics were needed. I was in the hospital for 26 days and was able to come home for 12 days before the next round. I was readmitted to the hospital 2-21-18 for round 3, 5 days of 2 high dose medications. I'm still here waiting for my counts to drop and come back up. I'm hoping it will happen quickly so I can go home before Round 4 which is scheduled for 3-28-18. This has been a life changing journey for me, my parents, my brother and sister and the rest of our family. As of right now, the bone marrow biopsy has come back negative to cancer cells!

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