Jillian was originally diagnosed at age 7 with a brain tumor, Medulloblastoma, which she underwent brain surgery, 30 radiation treatments and 8 cycles of chemo therapy at CHOP. She was 14 months post treatment when we learned that she relapsed and required another brain surgery, chemotherapy and traveling to complete a clinical trial in Florida. A few months following the clinical trial, we found out the spots they were watching in her brain grew and for a 3rd time required surgery and further treatment. We are currently in treatment at Sloan Kettering in NYC where we participated in an antibody trial but cells were still found in her CSF/spinal fluid requiring re-radiation of her brain and additional chemotherapy. The next step would be to participate in a targeted antibody trial. We pray this treatment gets us to NED (no evidence of disease) to hopefully rid this disease once and for all.
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