Honored Kid

Jillian Sayre

Age 18
Jillian Sayre Kid Photo

Location

Macungie , PA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

June 2013

Status

In treatment

Treated At

Memorial Sloan Kettering Cancer Center

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My Story

Jillian was originally diagnosed at age 7 with a brain tumor, Medulloblastoma, which she underwent brain surgery, 30 radiation treatments and 8 cycles of chemo therapy at CHOP. She was 14 months post treatment when we learned that she relapsed and required another brain surgery, chemotherapy and traveling to complete a clinical trial in Florida. A few months following the clinical trial, we found out the spots they were watching in her brain grew and for a 3rd time required surgery and further treatment. We are currently in treatment at Sloan Kettering in NYC where we participated in an antibody trial but cells were still found in her CSF/spinal fluid requiring re-radiation of her brain and additional chemotherapy. The next step would be to participate in a targeted antibody trial. We pray this treatment gets us to NED (no evidence of disease) to hopefully rid this disease once and for all. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

The Childhood Cancer Ripple Effect

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