Honored Kid

Autumn M.

Age 8
Autumn M. Kid Photo

Location

Holtsville, NY, US

Diagnosis

Fibromatosis Soft Tissue Sarcoma

Date of Diagnosis

November 2016

Status

No evidence of disease

Treated At

Steven and Alexandra Cohen Children's Medical Center C.S. Mott Children’s Hospital

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My Story

Autumn Arlene was born with what everyone agreed was an adorable bottom lip, yet Dr's told us to monitor it throughout the first year of her life. Shortly after her first birthday we all noticed she had not "grown into it." Countless Dr's visits later Autumn was scheduled for her first MRI. That same evening our hearts were shattered when we received the call saying she needed a biopsy the very next day. Our world came crashing down in November 2016 when Autumn was officially diagnosed with a Fibromatosis Soft Tissue Sarcoma. The placement of Autumn's tumor at this point is very involved and her team of Dr's are unable to operate without shrinking it first. and so began our battle... She immediately started an oral Chemotherapy. This form of treatment was done at home every night for 3 months. We had some very bad days in between, but she trooped through. She kept smiling through all the boo-boo's and weekly trips to Cohens Children's Hospital for blood-work to make sure her blood counts remained good and that her kidney and liver functions were keeping up with her little body. She did amazing. Her first scan was set for March 2, 2017 and we prayed with everything inside of us that this form of treatment was working and the tumor was shrinking, or at the very least remained the same. We picked up every lucky penny, never stepped on a crack, used up every birthday cake wish, our thanksgiving turkey wishbone, shooting stars, you name it whatever we could do, we did! However once again, our family's hearts were shattered when we received the news that not only did the treatment not work but the tumor had grown significantly. Autumn will now have a mediport surgically placed in her to receive weekly, more aggressive IV Chemotherapy treatment. She will receive treatment once a week for the first 6 months and then continue on at once every other week for the second 6 month period.
Unfortunately this treatment didn't prove to be working after just 6 short weeks as the tumor continued to grow. Autumn was recently admitted to Cohens Childrens hospital and underwent her most recent form of treatment. THIRD TIME BETTER BE THE CHARM!!!  Since November our family's world has been turned upside down. Autumn has brought so much joy into everyone's life she's ever entered. Now that she will be going through a much more aggressive form of treatment we will be forced to constantly take off from work for our most important role in life "Autumn's Mommy & Daddy" The medical bills have been and will continue to roll in. As a family we will still be making and selling AutumnStrong bracelets & shirts to assist with Autumn's battle. Every time we feel we've faced the worst day ever, we're proven wrong. But together as a Family we remain hopeful. This will not defeat us, this will not define us. 

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