Honored Kid

Delaney N.

Age 8
Delaney N. Kid Photo

Location

Livermore, CA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

September 2013

Status

No evidence of disease

Treated At

UCSF Benioff Children's Hospital Kaiser Permanente Oakland Medical Center

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My Story

TEAM DELANEY Quote: "And though she be but LITTLE, she is FIERCE!" Shakespeare On September 10th 2013, 2 1/2 year old Delaney Newton’s life changed along with her families, and the fight against brain cancer began. Delaney was diagnosed with a brain tumor at Oakland Kaiser, CA. Just two days later on September 12th she endured a 12-hour brain surgery by a team of 12 doctors and nurses at Oakland's Kaiser Hospital. Those 12 hours were the longest 12 hours of the families life as they waited for the surgery to end and for the doctors to give the results. As the family waited they were sounded by loved ones the entire time pulling for Delaney. Family and friends crowded the waiting area along with the Father Merlin’s Firefighter crew from Station 3 in Livermore/Pleasanton, CA. After a long 12 hours the doctors were able to remove the entire tumor mass in the lower back part of her brain. As we heard the news there was so much emotions and there wasn’t a dry eye in the entire room. “How do you thank the doctors who has given your child more life to live?” Merlin said. The simple answers is you can’t in words the joy everyone felt after the past two days being completely scared and terrified of the unknown. The doctors were very pleased with the outcome but also explained that the next year was going to be extremely difficult with 6 rounds of chemotherapy along with physical therapy because Delaney will need to learn to walk again. The subsequent pathology report revealed that tumor is indeed cancerous. Delaney spent the next month in the hospital recovering from her brain surgery with her parents by her side every moment of the day. As Delaney was in the hospital recovering the parents posted daily quotes above her bed and one stuck with her and began her motto for the battle. “And though she be but little, she is fierce!” That quote is not the back bone of what we call Team Delaney. The entire community and surrounding community rallied around Delaney in support and love. There are now over 2700 shirts, hoodies, and long sleeves in community and across the country with Team Delaney on the front with her heart logo, her quote on the back, and of course in her favorite color hot pink. Delaney was now going to start the journey of a minimum of 6 rounds of chemotherapy. The first 3 rounds of chemotherapy were done at Oakland’s Kaiser. As it was extremely hard and difficult the treatment was going in the right direction. MRI and Lumbar Puncture came back negative after 3 rounds for any signs of cancer cells. She will then finish up the next 3 rounds at UCSF due to the increase in chemotherapy drug and the stem cells she had harvested that will be reintroduced after each round. Today, she has completed 5 rounds of chemotherapy. It has been extremely hard on her parents and Delaney but she continues to be a happy 2 ½ year old and smiles everyday and lives in the moment. She loves to go home and play with her 1 year old brother after each round, who turned 1 the day she was admitted to the hospital. Delaney has endured more then most people will ever endure in their lifetime. To date she has had: September 10th Diagnosed with brain tumor September 12 brain operation to remove tumor 56 total admitted overnight stays at the hospital (22 days of that was in the Pediatric Intensive Care Unit) 4 1/2 months of at least 1 vomit a day 2 operations (1 for brain tumor resection, 1 central line placement) 19 days of Chemotherapy 1 stem cell harvesting, a 5 hour harvest 1 stem cell transplant 1 Biopsy of tumor 3 MRI scans 3 CT scans 1 EVD placement for CSF drainage 11 X-rays chest/abdominal 1 complete blood transfusion (during brain operation) 10 Platelet transfusions 8 Blood transfusions 30 at home Blood draws 2 lumbar punctures 6 IV placements (4 at one time) 1 arterial line placement 1 foley catheter 4 EKGs 4 echocardiogram 4 renograms for kidney function 8 sedations ( 2 for operations, 3 for MRI, 1 EVD removal,1 stitches removal, and lumbar puncture) 7 NG tube (feeding tube) placements 2 surgical dressing changes 1 wheelchair for mobility challenges 4 transports by ambulance FIERCE! Delaney is a true fighter and always makes the best of everyday. She has her ups and downs but overall she is a very happy 2 ½ year old. Her parents Merlin and Janice and little brother Merlin III (who we call Mini Merlin) have been blessed by the out pouring of support that has started in their community. Janice was also 9 weeks pregnant with their 3rd child the day Delaney was diagnosed. Delaney is a Livermore, CA resident just like her parents who grew up there, call Livermore their home, community, and workplace. The support of the community, family, friends, and complete strangers have allowed them to stay at Delaney’s side every single day the past 5 months now. Delaney needs constant care and her parents are right there beside her comforting her, changing her broviac, taking blood samples to hospital twice a week, administering over 13 drugs daily at certain times and trying to make her as comfortable as possible. It is no easy task for those who have experienced what Delaney is going through and the challenge it is to take care of her but it is what must be done to give her the best possible outcome. As Delaney continues her fight we cant help but look back. We never knew what was in store for Delaney and the family. Our world and the families' world changed that September day as Delaney's fight began. We cannot help but think of the times before, where Delaney has come these past months, and who she will eventually become with this life experience. Delaney is destine to do great things in this journey we call Life, that is far from over. We cannot thank everyone enough who has helped Delaney and the family with gifts, donations, time, energy, babysitting, mowing lawns, sending prayers, positive thoughts, sporting shirts, bracelets, and so much more. We know one day Delaney and Team Delaney will give all this back to the community and families who has given Delaney and the family the ability to be by her side every hour of every day these past 5 months and counting. Team Delaney Home Page on Facebook: https://www.facebook.com/pages/Team-Delaney-Home-Page/219289764902599


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