Honored Kid

Hannah S.

Age 8
Hannah S. Kid Photo

Location

Cambridge, MN, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

August 2012

Status

In remission

Treated At

Children's Hospitals and Clinics of Minnesota

Change your kid's logo

My Story

Diagnosis: Infant Acute Lymphoblastic Leukemia with MLL gene rearranged.
Age at diagnosis: 3 Months
Update: September, 2018
We are so thankful to be able to report that Hannah is now 8-years-old and she continues to be in remission more than 6 years off treatment. Our hearts are heavy with the knowledge that so many of the infants with leukemia do not live to see kindergarten, while our girl is entering third grade.  


The current treatment path for Infant Leukemia is brutal, and not very successful. Survival prognosis for infants with ALL continues to be less than 50 percent, with many survivors facing life-long challenges due to treatment. Hannah is currently experiencing symptoms that may be related to chemotherapy damage to her heart or cardiac iron overload which resulted from receiving more than 25 units of blood during the course of her treatment. We are currently in the process of diagnosis for these problems. 

We need BETTER, SAFER CURES for infants and children with cancer. 

We continue to support St. Baldricks in their fight for research money to improve the rates of survival and quality of life of these precious kids. 

#GiveKidsALifetime 

Thank you from Hannah's Family! 


Hannah's Leukemia Story:  On August 15, 2012, our sweet baby Hannah, just three-months-old, was diagnosed with Infant Acute Lymphoblastic Leukemia with the MLL gene rearranged. Now 20-months-old in January of 2014, Hannah has spent over 190 days in the hospital on both the oncology floor and in intensive care, dozens of days in the clinic, and has received 15 different types of intravenous, spinal, and oral chemotherapy. She will continue to receive chemo daily until she is off treatment in August of 2014. She is currently doing well, in remission, as treatment continues. Her ten older brothers and sisters are very happy that she is able to spend most of this second year of her protocol at home! Despite fighting leukemia for 85 percent of her life, including many months of intense treatment and often miserable side effects, Hannah has grown into a cheerful, delightful toddler. With help from family and friends; our prayer team; physical, occupational, music, and speech therapists; and the dedicated and amazing oncology team at Minneapolis Children's; Hannah is catching up on developmental milestones and we are full of sober hope for her future. Infant Acute Lymphoblastic Leukemia with MLL-r (ALL diagnosed before the first birthday, characterized by MLL gene chromosomal rearrangements) has one of the lowest survival rates of all pediatric leukemias, with historic relapse-free survival rates into the mid-1990's of approximately zero to 20 percent. Very young babies with very high white blood cell counts at diagnosis, like Hannah, face the worst prognosis. Hannah is enrolled in a Children's Oncology Group study which is based upon previous protocols developed for Infant ALL (MLL-r) in the past fifteen years with relapse-free survival rates of approximately 8 to 43 percent. Hannah is currently in the control group of a study testing a targeted drug called Lestaurtinib to try to advance cure rates in infants with ALL (MLL-r). Unfortunately, because Lestaurtinib has not shown promise in the larger and more profitable adult cancer market, no more of this drug is being manufactured and the study has had to make do with stockpiled supply, and a more limited scope. It is uncertain if this drug will be available in the future, even if the lives of babies are saved through its use. More research dollars, novel therapies, and financial support for orphan drugs such as Lestaurtinib are needed to find a cure for all of these beautiful babies! Our family is personally thankful to St. Baldrick's for their commitment to funding this sort of life saving research and development. Thank you for supporting Hannah and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent, and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. To learn more about Hannah, and for current updates and prayer requests, please visit her Caringbridge journal at: www.caringbridge.org/visit/hannahireneshull We invite you to fall in love with her, and cheer her on as her fight continues.

 

The Childhood Cancer Ripple Effect

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org