Loading stuff...

Honored Kid Haley N. Neubauer

Haley N. Neubauer's Photo
Location
Trumbull, CT, US
Diagnosis
Acute myeloid leukemia (AML)
Date of Diagnosis
February 1999
Status
Passed away
Treated At
Dana-Farber Cancer Institute
Yale-New Haven Children's Hospital

Message

Haley was born early, weighing just under 3 pounds, that's how she earned her nickname: the "nugget." By the time she was 1 year old, she was all caught up in weight and all other milestones. She loved to engage kids and grownups in conversation. She was sweet and kind and very delicate.
Haley's idea of getting dressed was to put on the fanciest dress in her closet and shoes to match. Everywhere she went, you would find her wearing her pink Halloween princess dress, or the communion dress that was handed down to us - satin and lace was her style. She liked to play pretend tea party and dance. Her "lovey" that we dragged around everywhere was a silk scarf that she named "the bus" or "bussy."
She used to say, "Mommy, I love you so much - when I grow up, I want to marry YOU." I would tell her that we are so lucky to be so in love and that we are already family!
When she was 5 1/2 years old, she had a rough winter with lots of ear infections and it seemed like we were at the doctor's office every 2 weeks or so with fevers. After a few of these visits, our pediatrician did a blood test and we were sent straight from his office to Yale to begin chemotherapy. 5 months later, we brought her to Dana Farber for a bone marrow transplant. The transplant was successful in ridding her blood of the cancer. We were making plans for her to come home in 2 days when she developed an infection and she was given a very powerful antibiotic. She suffered a reaction to the drug and was not able to recover.
It has been 11 years since we had to say goodbye to our beloved daughter and still we do not know how to be in this world without her.
Read More

Who’s Honoring Me