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Honored Kid Erin B. Age 19

Erin B.'s Photo
Location
Orlando, FL, US
Diagnosis
Brain or spinal cord tumor
Date of Diagnosis
December 2002
Status
In treatment
Treated At
Duke Children's Hospital & Health Center

Message

Erin is 11 years old and has been fighting the good fight for over 7 years now. She was diagnosed with a brain tumor when she was 4. Up until the diagnosis she was a normal, happy, healthy little girl. When we found out she had a brain tumor we were rushed into the emergency room of our local hospital and told she needed surgery within the next 24 hours to save her life. Erin did not come out of that surgery the same little girl as she went in. They were able to remove the tumor but at a high price. Erin has not been able to walk since the surgery and she has many other disabilities because of it. We thought the worst was over when they told us that the tumor was completely removed but a month later on a follow up MRI we saw that we were wrong. The tumor had spread throughout her brain. She now went from a good prognosis to a 50 /50 chance of making it to see her 5th birthday.
Erin went through 12 months of high dose chemo which left her bald, swollen and very sick. We lived in the hospital for most of that year. Thankfully after she finished the chemo there was no sign of the cancer in her brain. She lived a nearly normal life for the next two years, she started Kindergarten and finished first grade. Sadly, when she was in second grade we found out that the cancer was back. When she was in third grade she started her next round of chemo. This time she did it for 18 months and she just finished this past November. This chemo did not get rid of the cancer but it did shrink one of the tumors and stop the others from getting bigger. She continues to have MRIs every 3 months as she has been doing for the past 7 years to watch the cancer incase it starts to grow again.
Erin is no doubt one of the "fighting Irish"!! She never gives up no matter how hard things get. She has been through more in her 11 years than most of us will go through in our whole lives and even though she's in a wheelchair and cant do the things she used to be able to do and she cant do the things other kids her age can do she is never sad about it. She is always happy. She has tons of friends and enjoys everything about life, she has an awesome sense of humor and is extremely loving to everyone. For Erin's sake and all the other kids out there that have been affected by this crappy disease we pray for a cure.
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