Research

A Small World Moment at the Think Tank

by Becky C. Weaver, Chief Philanthropy Officer, St. Baldrick's Foundation
December 17, 2014 0 comments

St. Baldrick’s Chief Philanthropy Officer, Becky Weaver, explains how a timely email led to a big realization. Join us and make a difference for kids with cancer. See ways to get involved.

St. Baldrick's logo

November marked my 10th year with the St. Baldrick’s Foundation. And how much has changed since that time!

Back then, we were excited to give over $3 million to support one large grant to the Children’s Oncology Group and our first St. Baldrick’s Fellow, Dr. Sharon Singh.

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Research

What is a CRA?

by Rebecca Bernot, St. Baldrick's Foundation
December 16, 2014 0 comments

An inside look at what St. Baldrick’s Infrastructure Grants are really doing. See all the 2014 Fall Grants.

Kelly Clickner, R.N., assisting a pediatric oncology patient at Albany Medical Center

Kelly Clickner assists a patient enrolled in a clinical trial at Albany Medical Center. They were able to hire Kelly as a full-time CRA with their first St. Baldrick’s Infrastructure Grant in 2007.

You’ve probably already heard that most of our Infrastructure Grants fund a clinical research associate, or CRA, who makes it possible for more childhood cancer research to happen. But what exactly does a CRA do? To get an inside look, we sat down with Dr. Vikramjit Kanwar, who has received a St. Baldrick’s Infrastructure Grant every year since 2007, and Kelly Clickner, R.N., the CRA whose salary is funded by the grant.

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Advocacy

Childhood Cancer Roundtable Sets the Stage for Action

by Kevin Mathis, Sr. Legislative Counsel, St. Baldrick’s Foundation
December 15, 2014 0 comments

On December 9, leaders from a host of childhood cancer organizations gathered in Washington, D.C. The assembled leaders of the childhood cancer community met to conduct the essential work necessary to advance our cause of creating better treatments and cures for childhood cancer.

St. Baldrick's Foundation childhood cancer advocacy

St. Baldrick’s Foundation joined with multiple other groups to set goals for the coming year during a childhood cancer roundtable in Washington, D.C. last week.

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Families

Remembering Superman Sam

by Phyllis Sommer
December 14, 2014 0 comments

Today we remember Superman Sam, who died from acute myeloid leukemia one year ago. An anonymous family foundation has agreed to match any new and increased gifts to the 36 Rabbis campaign, so today, honor Sam with a donation to help fight childhood cancer. His mom, Phyllis, shared these words on this day last year.

Superman Sam Sommer playing on a playground in April 2012

Superman Sam in April 2012, before he was diagnosed with acute myeloid leukemia.

On Friday morning, Sam woke up with a headache and nausea. He was vomiting a little, and we weren’t quite sure what the dark spots in his vomit were. But I had a terrible feeling.

We were scheduled for a trip to the clinic, and, frankly, we weren’t ready to imagine what it would be like without that trip. Giving up that trip, to me, meant we were ready to admit how very close we were to the end. Giving up that trip wasn’t really an option. Even Sam wanted to go.

So we made the drive. (It’s an hour and 15 minutes.)

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Facts

Types of Childhood Cancer: Acute Lymphoblastic Leukemia (ALL)

by St. Baldrick's Foundation
December 10, 2014 0 comments
What is acute lymphoblastic leukemia?
What is acute lymphoblastic leukemia?

Acute lymphoblastic leukemia (ALL) is a cancer of the white blood cells that normally fight infection. The cells do not grow and develop properly, filling up the bone marrow inside bones, where blood is normally made.

ALL is the most common type of childhood cancer, accounting for 35 percent of all cancers in children. Each year, there are about 2,900 new cases of children and adolescents diagnosed with ALL in the United States alone.

Its signs and symptoms resemble other common illnesses, which often leads to other treatments before the leukemia diagnosis is made.

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Facts

Types of Childhood Cancer: Ewing Sarcoma

by St. Baldrick's Foundation
December 10, 2014 0 comments

Jason Yustein, M.D., Ph.D., a St. Baldrick’s Scholar at Baylor College of Medicine in Houston, Texas, explains Ewing sarcoma symptoms, treatment options, and research opportunities.

What is Ewing sarcoma?

What is Ewing sarcoma?

Ewing sarcoma is a type of childhood cancer that is most frequently found in children and adolescents between the ages of 10 and 20 years old.

Ewing sarcoma — the second most common bone cancer after osteosarcoma — often originates in the long, large bones of the body, including the hip, thigh, shin, chest, and arm bones.

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Head-Shaving Fundraisers

Company Supports St. Baldrick’s With Spooky Shave

by Heather Kash, St. Baldrick's Foundation
December 10, 2014 0 comments

One of our company partners included the St. Baldrick’s Foundation in their charitable efforts all year long, from March Madness pools to casual days. This past Halloween was the biggest treat, with no tricks! Fund childhood cancer research with your company’s holiday party. Do what you want!

Denise Chipman St. Baldrick's

Denise Chipman, Vice President of Operations at Avalon Risk Management, braves the shave at the company Halloween party.

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Families

An Update on Chase

by Ellie Ewoldt
December 9, 2014 0 comments

Three months ago we learned that, after a year and a half of no evidence of disease, Chase’s latest MRI showed new growths. Chase, who turns 5 on Friday, went for another MRI yesterday. His mom wrote this update after hearing the results. Learn more about Chase.

Chase looks on skeptically as his father attempts to assemble a Transformer in the waiting room.

As they await the MRI results, Chase watches his dad assemble a Transformer.

Today, I walked into a huge medical facility bay and stared down a gigantic white truck structure. The MRI.

Today, I watched my loving husband carry my darling son up into the structure as he spoke calmly and quietly, and Chase, red-faced and teary, clung to him and cried that he couldn’t — just couldn’t – do this right now.

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Families

The Day I Took My Life Back From Childhood Cancer

by Leslie Jermainne
December 8, 2014 0 comments

Leslie recounts how her life changed when her son was diagnosed with childhood cancer, and how her shave with the 46 Mommas helped her regain control. Donate on Leslie’s head.

Leslie Jermainne and her son Brian after she shaved her head at the 46 Mommas head-shaving event in July

Leslie Jermainne and her son, Brian, after she shaved her head at the 46 Mommas head-shaving event in July.

On April 18, 2013, a man I had seen only two times stood over me and said the worst words I have ever heard. “Your son has lymphoma.”

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Families

A Tremendous Inspiration: Maddy’s Story

by Erinn Unger, St. Baldrick's Foundation
December 5, 2014 0 comments

At 9 years old, Madelyn Bougard was diagnosed with a rare and deadly type of childhood cancer. A fashionista with a big spirit and an equally big heart, Maddy was an inspiration to those around her. Her father, Jim, shaved for St. Baldrick’s in her memory at the Mickey Byrnes Irish Pub event in Hollywood, Florida. Honor Maddy by contributing to her dad’s shavee page.

DIPG St. Baldrick's Foundation childhood cancer

Madelyn with her parents. The 9-year-old was diagnosed with an aggressive type of childhood cancer called diffuse intrinsic pontine glioma, or DIPG, in 2010.

One day before church, Jim discovered that his daughter Madelyn had outgrown most of her wardrobe. But instead of dreading the trip to the department store as some guys might, he welcomed it.

The shopping trip meant his daughter was still growing — she was still alive.

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