Kids with Cancer

Breaking Even: Georgia Turns the Tables on Childhood Cancer

by Courtney Moore
August 29, 2014 0 comments

Courtney, a 46 Momma and four-time shavee℠, shares why today is a turning point for her daughter Georgia.

Georgia holding sign
When your child is diagnosed with cancer, numbers become a huge part of your life. There are measurements to track, dosages to follow, time periods to mark, and key dates to remember — all of which serve to quantify and make real an otherwise unfathomable event.

In the case of my daughter Georgia, a much-too-high white blood cell count indicated she had leukemia. No other alarming symptoms, just a number.

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Advocacy

6 Ways You Can Help Kids With Cancer in September

by St. Baldrick's Foundation
August 28, 2014 0 comments

Do something to help kids with cancer this September.

Chase-Childhood-Cancer-Awareness-Month
 September is Childhood Cancer Awareness Month. Did you know:

  • 14,583 kids will be diagnosed with cancer this month alone
  • In the U.S., one out of every five children with cancer will not survive
  • The vast majority of kids who do survive will suffer long-term side effects
  • 1 in every 285 children will be diagnosed with cancer

And every single one of them is hoping that the next treatment is the one that will save their life.

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Kids with Cancer

Ambassador Hayden Starts Kindergarten

by Jackie Fife
August 25, 2014 0 comments

As Hayden’s mom, Jackie, explains, nothing could hold Hayden back from starting kindergarten — not even childhood cancer. Read more of Hayden’s story.

Hayden in front of his school

Hayden is still in treatment for childhood cancer.

Today was Hayden’s first day of kindergarten.

He is currently in the maintenance phase of chemotherapy for acute lymphoblastic leukemia, which means daily oral chemo and a monthly visit to the doctor to have chemo through an IV or injected into his spine. This regimen will continue through February 2016.

Neuropathy in his legs — a side effect of his childhood cancer treatment — is still something that plagues him daily, leaving him with intense feelings of tingling and pain whether he is walking or sitting. It can make it difficult for him to play and get around as easily as other kids.

While it sounds like a lot, I don’t believe there was anything that could have held this kid back from starting kindergarten.

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Research

Pre-Med Student Wraps Up Childhood Cancer Research Project

by Rebecca Bernot, St. Baldrick's Foundation
August 22, 2014 0 comments

Anthony Hua, a St. Baldrick’s Summer Fellow, spent his summer working on a childhood cancer research project at Children’s Hospital Los Angeles. You can help kids with cancer, too.

Anthony Hua in the lab

Anthony working in the lab.

The life of a pre-med college student is tough. Think jam-packed schedules, highly competitive classes, and long nights of studying.

“Being a pre-med undergraduate, you have to find many sources of motivation to keep you going throughout the long school year,” said Anthony Hua, a rising senior at the University of California, Los Angeles.

But that motivation wasn’t hard for Anthony to find. One of his biggest sources of inspiration were his memories as a camp counselor at Camp Ronald McDonald for Good Times, where he spent two weeks in 2012 volunteering with children with cancer.

“It was probably the most exhausting thing I’ve ever done, mentally and physically,” Anthony said. “The kids, some half or a third of my age, have to go through so much.”

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Kids with Cancer

Kate Returns to Gymnastics After Losing Her Leg to Childhood Cancer

by Erinn Unger, St. Baldrick's Foundation
August 21, 2014 0 comments

When Kate lost her left leg to childhood cancer, she wondered if her days as a gymnast were over. But even cancer couldn’t keep Kate from the sport she loves.

Kate-Foster-CrossFit-weight-lifting

Kate regains her strength at a CrossFit gym in 2013, after her second bone marrow transplant for AML, a type of childhood cancer.

Kate Foster loves doing muscle ups. For that exercise, she grabs onto a pair of rings suspended from the ceiling at her local Illinois CrossFit gym and lifts herself into a pull-up position. Then she transitions her body until she’s above the rings, pushing herself up until her arms are straight. She’s also got a soft spot for handstand push-ups — she can do at least 10 — and for pull-ups, with a personal record of 30.

Usually she’ll wear her prosthetic leg when she’s working out. For certain exercises, she’ll take it off if it gets in the way.

Three years ago, the 15-year-old gymnast and CrossFitter was diagnosed with acute myeloid leukemia.

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Advocacy

Why I Went to D.C. for Childhood Cancer Action Days

by Lee Marchiano
August 21, 2014 0 comments

Lee and her daughter Melinda, a childhood cancer survivor, attended Childhood Cancer Action Days in Washington, D.C., in June. She details her experience advocating for more childhood cancer research funding.

Lee and Melinda Marchiano with Congresswoman Lois Capps

Lee (left) and Melinda (right) with Representative Lois Capps.

The streets of Washington, D.C., were abuzz with early-summer tourists and legislative-looking professionals. As my 20-year-old daughter, Melinda, and I weaved swiftly through the crowds, we kept our sights on a woman walking far in front of us. She was wearing a T-shirt with a large childhood cancer awareness ribbon on it.

That gold ribbon meant she was “one of us”! We nearly tackled her in our excitement to meet her.

Melinda and I were in Washington, D.C., as members of the Alliance for Childhood Cancer to attend Childhood Cancer Action Days, which would begin the next day. We discovered that the woman who graciously allowed us to “tackle” her was, indeed, “one of us.” We would spend the next day in advocacy training and the following day visiting our Congressional representatives with our newfound friend, Libby Kranz.

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Do What You Want

Meagan Tells Childhood Cancers to ‘Beat It’ with a Moonwalking Fundraiser [Q&A]

by Erinn Unger, St. Baldrick's Foundation
August 20, 2014 0 comments

Meagan moonwalked through her office and raised a quick $1000 for childhood cancer research. Wanna be startin’ something? Turn your idea into cancer cures with a Do What You Want fundraiser. It’s easy as 1-2-3.

Michael-Jackson-moonwalk-fundraiser

Meagan strikes a pose during her moonwalking fundraiser.

St. Baldrick’s Foundation’s own Meagan Rodriguez has two words for childhood cancer: Beat It!

Meagan, one of our Special Events Coordinators, donned the glittering glove and danced her way through St. Baldrick’s headquarters in Monrovia, California, to raise money for childhood cancer research.

“As I passed by coworkers, I collected five dollar bills and exchanged them for high fives,” she said. “Although I collected a lot of donations prior to the fundraiser, I raised a lot more cash than I anticipated. It was amazing!”

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Head-Shaving Fundraisers

‘Hope for Lilli’ Lives on at Northwest String Summit Music Festival

by Rebecca Bernot, St. Baldrick's Foundation
August 15, 2014 0 comments

Peggy is raising money for children’s cancer research in honor of her niece Lilli. Donate through this weekend and your gift will be matched by an anonymous corporate sponsor!

Peggy Davis shaving for St. Baldrick's onstage at Northwest String Summit

Peggy shaved her head for St. Baldrick’s onstage at a music festival. Photo by Dorothy St. Claire Photography.

When Peggy Davis sat down to shave her head for the second time, she was nervous. “I wasn’t nervous about being bald because I already knew what that was like,” she said. “But I was nervous about being in front of 5,000 people doing it.”

She was onstage at Northwest String Summit, an annual bluegrass festival in North Plains, Oregon. It was the last day of the festival during the headlining band’s set break, and all eyes were on her.

And as her eyes scanned the crowd adorned in pink, she remembered her niece Lilli.

Lilli was diagnosed with acute lymphoblastic leukemia, or ALL, when she was 8 months old. Although ALL normally carries a good prognosis, when it strikes children under 1 year old, the disease is much more aggressive and difficult to treat.

But despite spending the better part of four years in treatment, Lilli never stopped being a kid. She danced. She sang. She played. She wore costumes to the hospital.

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News

Grapplers Putting Childhood Cancer Into Submission

by Natalie Stamer, St. Baldrick's Foundation
August 14, 2014 0 comments

You don’t have to shave your head to raise money for childhood cancer research. You can Do What You Want instead!

Tap_Cancer_Out_BJJ_Open

Competitors from the 2014 Spring Tap Cancer Out BJJ Open in Stratford, CT. The tournament helped raise $54,000 for St. Baldrick’s.

With precise and careful technique, a small and relatively weak person can defend themselves against, and even overcome, a larger and stronger assailant.

That could easily be the description of a child fighting cancer with the best available treatment, but it’s also the concept behind Brazilian jiu-jitsu (BJJ) — a martial art that focuses on grappling and ground fighting until the opponent “submits” to defeat by “tapping out.”

And now the two have become one. The BJJ community is coming together to put childhood cancer into submission — they want to Tap Cancer Out.

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Head-Shaving Fundraisers

Re-Register Your St. Baldrick’s Event for 2015 and Win a $100 Office Supply Gift Card

by St. Baldrick's Foundation
August 13, 2014 0 comments

St. Baldrick's head-shaving event
We hear from many Volunteer Event Organizers (VEOs) that organizing a St. Baldrick’s head-shaving event was one of the most rewarding experiences of their life.

Do you feel the same? If you’ve organized an event before, remember how great the day was?

This year, we wanted to do a little something special to show our appreciation for all of the hard work VEOs put into organizing their event …

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