Families

Forever an Inspiration: Emily’s Story

by Erinn Unger, St. Baldrick's Foundation
October 17, 2014 0 comments

Emily was diagnosed with a brain tumor when she was 5 years old. An avid cheerleader and dancer with a vibrant spirit, she rallied everyone around her throughout her childhood cancer journey. Help kids like Emily. Get involved.

Emily kept a positive attitude during her treatment for childhood cancer

Emily was a cheerful girl who loved cheerleading and dancing, even during treatment for a glioblastoma tumor.

Read more »


Families

The Lucky Ones: Our Family’s Journey With ATRT

by Lori Huebner Avila
October 16, 2014 0 comments

At 6 years old, Issy has twice fought — and survived — one of the deadliest brain tumors in children. His mom, Lori, tells their family’s story. Help kids like Issy. Get involved.

Israel with his mom, Lori, while he was in treatment for childhood cancer

Lori with her son, Issy, while he was in treatment for a brain tumor.

Our story of childhood cancer began when our son, Issy, was 6 months old and did not successfully learn to eat solid foods. This “food aversion” followed us around to doctor visits and hospital admissions for the next seven months, until someone finally ordered an MRI. His original diagnosis of failure to thrive was corrected to brain tumor.

Childhood cancer entered our life that quickly when he was 13 months old. Five years later, I have finally accepted it will never leave.

Read more »


Fundraising Tips

VEOs: 5 Tips to Grow Your Event

by Robb Drzewicki and Eric Bacyinski
October 14, 2014 0 comments

Volunteer Event Organizers Robb Drzewicki and Eric Bacyinski aren’t content with raising the same amount for childhood cancer research year after year. Get the inside scoop on how their event at The Plymouth Roc grew from $12,000 raised in 2011 to $58,000 in 2014. Want a hint? There’s no magic involved — just old fashioned teamwork, social media savvy, creativity and loads of fun.

Growing

Read more »


Families

Family Loses 7-Month-Old Son to Childhood Cancer

by Erinn Unger, St. Baldrick's Foundation
October 13, 2014 0 comments

During a vacation to Disneyland, the Devaty family experienced loss no family should ever have to endure. Be a part of the fight against childhood cancer — donate today.

Jonah was a smiling, happy baby who loved music, his pacifier and watching his big brother, Jakub, play with Hot Wheels

Jonah loved music, his pacifier and watching his big brother, Jakub, play with Hot Wheels.

Joe, his wife and their two youngest boys drove south from their San Francisco Bay Area home together a couple days after Thanksgiving, looking forward to a family vacation at Disneyland.

Little Jonah seemed perfectly fine on the way down. He was a born traveler, his dad said.

Read more »


Research

St. Baldrick’s Researcher Puts Care in the Patients’ Hands With an iPad App

by Erinn Unger, St. Baldrick's Foundation
October 10, 2014 0 comments

St. Baldrick’s Supportive Care Grant Recipient Dr. Lauri Linder used tablets to help adolescent and young adult patients communicate their symptoms and take hold of their childhood cancer treatment experience with both hands. Help researchers like Dr. Linder continue supporting kids with cancer. Donate today. 

St. Baldrick's researcher developed an iPad app to help patients describe their symptoms

St. Baldrick’s researcher Dr. Lauri Linder developed and studied an iPad app which allowed childhood cancer patients to communicate their symptoms digitally during treatment. Photo by Kristan Jacobsen

Read more »


News

St. Baldrick’s and the Miracle Party Foundation Celebrate Kids With Cancer

by Jeremy Bliler
October 9, 2014 0 comments

St. Baldrick’s Foundation has a new partnership with the Miracle Party Foundation, known for an annual celebration in Denver, Colorado for children and families impacted by childhood cancer. Join in the celebration by helping fund childhood cancer research — donate today.

Kids walk the gold carpet at the Miracle Party for families impacted by childhood cancer

Kids walk the gold carpet at the Miracle Party for families impacted by childhood cancer. Photo by Brody Hall.

In a hospital room a dream began. What started as an end-of-chemo party has become one of the largest events in the United States for children fighting cancer. We take a trip to Denver, Colorado on September 20, right in the middle of Childhood Cancer Awareness Month.

Read more »


Do What You Want

5 School Service Projects That Help Kids With Cancer

by St. Baldrick's Foundation
October 8, 2014 0 comments

Looking for a fun and meaningful way for your school to give back to your community? Look no further.

school service projects that help kids with cancer
In the course of one school day, 120 kids will be diagnosed with cancer. And every single one of them is hoping for a cure.

You can help. By raising money for the St. Baldrick’s Foundation, you’re helping to fund the best childhood cancer research to give children with cancer long, healthy lives.

Check out these five fun ways you can help kids with cancer this school year:

Read more »


Kids with Cancer

‘Miss Tough Enough’ Takes on Second Childhood Cancer Diagnosis

by Erinn Unger, St. Baldrick's Foundation
October 7, 2014 0 comments

Tacey Raye first battled cancer as a baby, losing her sight in the process. Now, years later, the high school freshman and Texas rodeo queen is facing yet another diagnosis. Help kids like Tacey. Donate today.

Tacey Raye fought retinoblastoma soon after she was born. Eight years after being declared cancer free, she's fighting again.

Tacey Raye fought retinoblastoma soon after she was born and had both eyes removed by the time she was in first grade. Eight years after being declared cancer free, she’s fighting childhood cancer again.

Read more »


Research

St. Baldrick’s Researcher Measures Iron Overload in Childhood Cancer Survivors

by Erinn Unger, St. Baldrick's Foundation
October 3, 2014 0 comments

In the first study of its kind, St. Baldrick’s Supportive Care Grant Recipient Kathleen Ruccione and her team harnessed the power of the MRI to examine a harmful consequence of childhood cancer treatment — iron overload. Support researchers like Kathleen in their vital work on childhood cancer.

2013 Ambassador Emily prepares to enter an MRI machine

Getting an MRI is a regular part of life for many kids with cancer, like 2013 Ambassador Emily. Dr. Kathleen Ruccione used MRIs in a new and different way — to measure iron overload in cancer survivors.

When kids battle cancer, blood transfusions are often a life-saving treatment. But excess iron from transfusions can settle in the liver, pancreas and heart, with harmful effects for childhood cancer survivors, especially when coupled with consequences from chemotherapy. Called iron overload, the condition presents few symptoms before the damage is done. The key is to monitor and treat kids before it takes a toll.

Kathleen Ruccione, Ph.D., M.P.H., R.N., of Children’s Hospital Los Angeles, or CHLA, wants her St. Baldrick’s-funded study to encourage just that — the development of a protocol to catch iron overload early, so childhood cancer survivors can live long, healthy lives.

Read more »


Families

When Can We Exhale? The Hopes and Fears of a Parent of a Childhood Cancer Survivor

by Lisa Clemons
October 2, 2014 0 comments

Ambassador Harlem has been in remission from Hodgkin lymphoma for nearly three years, but his mom, Lisa, still fears its return. Help kids like Harlem — get involved.

Harlem and his family

Harlem, center, with his family. Harlem was diagnosed with Hodgkin lymphoma, a type of childhood cancer, when he was 5.

When do we, as parents of children with cancer, exhale?

I’m still anxious each time it’s check-up time. Will the labs and X-rays be clean? The unknowns always keep you on alert.

Read more »


 Older Posts »