Families

If Childhood Cancer Hadn’t Gotten a Hold of Her

by Natalie Walsh
May 21, 2015 0 comments

Even though Ambassador Daisy’s scans show no evidence of disease, the evidence of her brain tumor treatment is something she lives with every day. “I think the hardest thing for me to grasp is that it took her smile,” her mom, Natalie, says.

Daisy after finishing treatment for a pediatric brain tumor

Daisy finished treatment for medulloblastoma, a pediatric brain tumor, last year. Her facial muscles are partially paralyzed from the surgery to remove her tumor.

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Survivors

Ambassador Austin’s Big News

by Krissy Gallagher
May 18, 2015 0 comments

Last week, 2012 Ambassador Austin had his last set of scans to check for recurrent Wilms tumor. His mom, Krissy, reflects on his childhood cancer journey and what the future might hold.

Austin smiles and flexes his muscles

Austin is now 8 and has been cancer free for five years.

It all started on a sweltering hot Monday in July almost eight years ago.

Our boys were 3 ½ and 10 months old. We lived in a different house. We were different people.

Because it changed everything.

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Head-Shaving Fundraisers

Brewers Go Bald For Kids With Cancer

by Erinn Unger, St. Baldrick's Foundation
May 15, 2015 0 comments

Brewers are a pretty passionate lot, but they don’t reserve their enthusiasm just for beer. One brewery in New Mexico is challenging fellow brewers to go bald for kids with cancer this Sunday. Beer AND funding lifesaving childhood cancer research — what could be better?

Wayne Martinez at the Red Door Brewing Company

Wayne Martinez, the brewmaster at Red Door Brewery, will be shaving for childhood cancer research. Photo by Gabbi Campos.

Something awesome is brewing at Red Door Brewery in Albuquerque, New Mexico, and it’s not just the beer.

Along with his compatriots on Team Red Door, brewmaster Wayne Martinez will be braving the shave for kids with cancer on Sunday, May 17.

But there’s even more excitement on tap — the brewmaster has challenged other brewers to a bald-off.

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Do What You Want

How I Celebrate My Son on Two Wheels

by Susan Heard
May 14, 2015 0 comments

Every year in honor of her son David’s birthday, Susan rides the 40-mile New York City Five Boro Bike Tour. This year, with their feet on the pedals, the wind at their backs (and sometimes their fronts), and 32,000 people riding alongside them, Susan and her friends raised over $4,000 for the David’s Warriors Hero Fund. Susan explains what the ride means to her.

Susan and her cycling friends in front of the Robert F. Kennedy Bridge during the Five Boro Bike Tour.

Susan and her cycling friends in front of the Robert F. Kennedy Bridge.

In 2009 as our son, David, was battling neuroblastoma, one of his incredible Cub Scout leaders rode the New York City Five Boro Bike Tour in David’s honor. It’s a 40-mile ride touching each borough in the city, complete with amazing street music, skyline views that take your breath away, and an opportunity to feel the beat of the city in a way that is just spectacular.

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Families

‘Every Day Is Such a Gift’: Samuel Bounces Back After Brain Cancer

by Erinn Unger, St. Baldrick's Foundation
May 13, 2015 0 comments

Honored Kid Samuel is a bright second grader with a budding flair for the dramatic. He enjoys trying his hand at magic tricks and telling jokes, and is now in remission from medulloblastoma. “Every day is such a gift, especially given what he’s been through,” says his mom, Tammy.

Sam, bald from treatment for medulloblastoma, smiles at the camera.

A few weeks ago, 8-year-old Samuel walked across a two-by-four.

It may seem like a trivial bit of play, but to Tammy and her husband, Jay, their son’s journey across that 12-foot-long piece of lumber was a victory.

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Head-Shaving Fundraisers

5 Things I Learned From Kids With Cancer as a Pediatric Oncology Nurse

by Ginny Escobedo
May 12, 2015 0 comments

St. Baldrick’s shavee℠ Ginny Escobedo has been a pediatric oncology nurse for almost three decades. Through those years, her young patients and their journeys have also been her teachers, schooling her on how to embrace every moment of life, no matter what. As we celebrate National Nurses Week, Ginny shares some of the wisdom she’s learned from the kids she’s cared for.

Pediatric oncology nurse Ginny Escobedo with a young patient.

Pediatric oncology nurse Ginny Escobedo with a young patient.

The relationship between a pediatric oncology nurse and her patient is something special.

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Advocacy

Shavees: Tweet Your Bald Selfie to Congress #Bald4KidsCancer

by St. Baldrick's Foundation
May 12, 2015 0 comments

Are you a shavee™? Do you tweet? If so, we need your help!

Tweet your bald selfie to Congress #bald4kidscancer

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Families

Life Lessons From My 6-Year-Old With Childhood Cancer

by Nancy Lenfestey
May 11, 2015 0 comments

After three and a half long years, Honored Kid Scott finished treatment for childhood cancer last week. Along the way, he’s taught his mom, Nancy, a whole lot about life and how to live it. “I have learned more from my 6-year-old about living life than anyone else I’ve ever met,” she says.

Scott while he was in treatment for acute lymphoblastic leukemia and today
When your child is faced with a life-threatening illness, life as you know it stops abruptly and there’s no going back.

Life was already busy in November 2011 with my job, a 4-month old, 3-year old, and a kindergartner. But when my son Scott was diagnosed with acute lymphoblastic leukemia, life suddenly became an overwhelming nightmare filled with more questions than answers.

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Families

Celebrating Mother’s Day Every Day

by Nicole Root
May 10, 2015 0 comments

Nicole’s son Miles passed away last March, after fighting medulloblastoma and persevering bravely through a host of other challenges for four years. As Mother’s Day approaches, Nicole contemplates what the holiday — and every day with her boys — means to her.

Nicole with her husband and four boys.

The Root family sits for a portrait.

Sunday is Mom’s Day. That’s what is noted on the calendar. We see it advertised everywhere and acknowledge it as a day to honor our mothers. We will do the same next month for dads.

To be perfectly honest, I hadn’t really noticed until about two weeks ago when our grief counselor reminded me.

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Families

And Mom, I’ll Love You Always

by Ellie Ewoldt
May 7, 2015 0 comments

We talk a lot about the parents of children with cancer, but they’re not the only ones whose roles take on new meaning when their child is diagnosed. Ambassador Chase’s mom, Ellie, gives thanks to her mom, Chase’s “Grammie,” for the way she’s loved and supported their whole family through childhood cancer and all of life’s ups and downs.

Chase sits with his grandmother in the hospital

As a mother, from the first moment you hold your child — no, from the first moments you know they’re expected — you seek to protect them. You carry them and love them and do everything you can from first breath to stand between them and the hurt and pain in the world.

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