How We Decided a Phase 1 Clinical Trial Was Right for Our Kid

by Kate Bernstein
October 1, 2015 0 comments

The decision to enroll a child with cancer in a clinical trial isn’t one that’s made lightly. But it’s something that many cancer parents, when faced with limited treatment options for their child, wrestle with. Kate, mom to 4-year-old Micah, shares how she and her husband decided Micah would take part in this critical arm of childhood cancer research.

Micah plays in a bubble bath

Micah is no longer on the clinical trial, but you can read all about it — and how St. Baldrick’s volunteers helped make it possible — here.

Three years ago my husband and I became cancer parents.

We had been busy, happy parents of a pre-schooler and an active, just-learning-to-walk toddler. And then our 15-month-old went to the hospital for overnight IV antibiotics to treat pneumonia and left with a neuroblastoma diagnosis.

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‘Miracles Happen’: Luke’s Story

by Ryan Bradley
September 28, 2015 0 comments

When Luke was fighting childhood cancer for the second time, the chemo weakened his immune system so much that he contracted bacterial meningitis. “That was the start of the most painful five months of our lives,” his dad, Ryan, writes. Luke’s still in the hospital, but he’s getting stronger every day. Ryan tells his story.

Luke lying in a hospital bed shortly after he was diagnosed with acute lymphoblastic leukemia

Luke at 6, just after being diagnosed with acute lymphoblastic leukemia.

What the word “cancer” represents to a family, especially the words “childhood cancer,” is impossible to fully describe. There is panic, shock, fear and anger all rolled into one big mess of emotion.

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What You Need to Know About Cancer Dads

by Matt Kabel
September 25, 2015 0 comments

Earlier this year, Matt posted the following blog on his website. He was shocked by the response. “The comments and emails came flooding in,” Matt said. Read about what it’s really like to be a cancer dad, and check out Matt’s follow-up post about what he’s learned from his fellow cancer dads since then.

A dreary day broken by the embrace of a father and child

Matt holds his daughter, Sally. Sally was diagnosed with leukemia as an infant.

As a veteran childhood cancer parent, I have seen countless fathers rise to the challenge of being cancer dads, whether holding a vomit bucket while their child empties their insides, squeezing into a tiny bed with their child overnight in the hospital, or delivering countless meds through syringes. I have been witness to ordinary dads becoming extraordinary, just as I have seen ordinary moms do the same.

But judging by the articles and comments you see out there, you’d never know that many dads play an active role in their child’s cancer fight. From the numerous “Things Only Cancer Moms Know” articles that have nothing mom-specific listed, to the term “momcologist,” the overwhelming majority of articles on cancer parents only focus on the mothers.

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Cancer Dads: You’re Not Alone

by Matt Kabel
September 25, 2015 0 comments

Earlier this year, Matt wrote about what it’s really like to be a father of a child with cancer. “The post took off and was shared on social media more than anything I had ever written before,” Matt said. The response moved him to start an online support group for cancer dads. Matt shares what he’s learned since then, with photos submitted by dads in his group.

Johnathon holds Baron in a hospital

Jonathon and Baron

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Divided, Yet Never So United: Our Family’s Continuing Journey With Childhood Cancer

by Patty Furco
September 24, 2015 0 comments

Today Abby turns 9, and for the second year in a row, she’s celebrating her birthday in the hospital. Her mom, Patty, reflects on the past year and all the challenges their family has weathered together, from relapse to transplant to today.

Abby in her hospital bed

Abby last November, two months after her relapse.

What a year it has been.

Looking back at where we have been, the many states of mind and motions we have experienced … it’s enough to make my head spin.

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Stay Positive: Tori’s Story

by Erinn Unger, St. Baldrick's Foundation
September 21, 2015 0 comments

Honored Kid Victoria, nicknamed Tori, was diagnosed with osteosarcoma just over a year ago. Now the 9-year-old is back playing basketball with her friends, which is her favorite thing to do. “I learned a lot from her this year, just about being positive, sticking with it, trying not to let things get me down and trying to find the good in stuff,” said her mom, Erika. “She taught us all a lot, I think, just being so strong.”

Tori smiles while in bed with her stuffed monkey

Tori smiles alongside her stuffed monkey as she’s prepped for surgery.

Armed with her megawatt smile, that was the way Tori handled everything childhood cancer threw in her way — she stayed positive.

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5 Facts About Childhood Cancer Survivors

by Jonathan Fish, M.D.
September 18, 2015 0 comments

facts about childhood cancer survivors
Dr. Fish is a St. Baldrick’s Scholar at Steven and Alexandra Cohen Children’s Medical Center of New York. His research focuses on improving the health of childhood cancer survivors.

1. Over 80 percent of children diagnosed with cancer will be cured, joining the growing population of long-term childhood cancer survivors.

Thanks to advances in chemotherapy, radiation and surgical techniques, more children are being cured of cancer every year. Today there are over 350,000 survivors of childhood cancer in the United States. While this is truly excellent news, even modern treatments can have long-term consequences.

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Daisy’s Message to You [VIDEO]

by Natalie Walsh
September 17, 2015 0 comments

Just days after learning her cancer had returned, Ambassador Daisy went in for surgery to remove the tumors on her spine. Her mom, Natalie, shares this update, along with a sweet video message from Daisy to you.

Daisy lying in a hospital bed cuddling a stuffed bunny

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Tell Congress ‘Step Up: Make Childhood Cancer a National Priority’

by St. Baldrick's Foundation
September 16, 2015 0 comments

A coordinated community effort is underway to storm Congress — on foot and online. Childhood cancer organizations throughout the country are joining together, and we’re going to send Congress a message:

Step Up: More Funding for Childhood Cancer Research
There are many ways for you to help:

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Daisy’s Cancer Is Back

by Natalie Walsh
September 15, 2015 0 comments

Last Thursday, Ambassador Daisy went to the hospital for a routine MRI. The next day, her parents received the worst possible news. “The second time is worse,” her mom, Natalie, writes. “So much worse than the first time because this time we are aware of the brutal realities … the cruelness that is childhood cancer.”

Ambassador Daisy stares off into the distance

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