Kids with Cancer

Josh Finishes Treatment and Shaves His Head for Kids With Cancer

by Josh Pita
October 30, 2014 0 comments

Josh, a St. Baldrick’s Honored Kid from Weston, Florida, was diagnosed with leukemia in 2010. The 11-year-old has been off treatment for about seven months now and shaved his head for childhood cancer research at a St. Baldrick’s event at Mickey Byrnes Pub in Hollywood, Florida last month. Help Josh reach his goal! Donate on his shavee℠ page.

Josh loves playing football and was able to return to the sport a year after being diagnosed

Josh loves playing football and was able to return to the sport just a year after being diagnosed with acute lymphoblastic leukemia.

Almost four years ago, I was in second grade.  I loved playing football, but I was really tired.  I couldn’t play as well as I normally could.

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Head-Shaving Fundraisers

First-Time VEO Fundraises for Childhood Cancer in Mother’s Honor

by Erinn Unger, St. Baldrick's Foundation
October 28, 2014 0 comments

Heather Stenger’s mom, Aria, cared deeply about children. So when Aria passed away suddenly last October, her daughter decided to honor her memory in a way that would have made her mama proud. Join Heather — start an event!

Heather shaved for St. Baldrick's in honor of her mother

First-time VEO Heather organized her St. Baldrick’s event, and braved the shave, to honor her mother.

After her mother, Aria, died suddenly last year, Heather Stenger felt she needed to honor her mom in a way that fit how the selfless woman had lived her life.

“My mom was the type of person who would do anything for anybody. It didn’t matter if she had the time to do it or not, she’d make the time,” Heather said.

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Integrating Brain Tumor Survivors Back Into the Classroom: A Pilot Study

by Rebecca Bernot, St. Baldrick's Foundation
October 24, 2014 0 comments

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kids play at school

Dr. Noll conducted a school-based study to help brain tumor survivors be more included by their peers. Photo by Sherrie Smith.

Going back to school after months or years spent in treatment for childhood cancer can be difficult for any kid. But for many brain tumor survivors, it’s an even bigger challenge.

Brain tumor survivors are often left with physical and mental scars from their tumor or its treatment — things like slurred speech, jerky movements, memory problems, and learning difficulties, according to Robert Noll, Ph.D., a pediatric psychologist and St. Baldrick’s Supportive Care Research Grant recipient at the University of Pittsburgh.

These same kids are viewed by their peers as “different” and often have difficulty forming and maintaining friendships, Dr. Noll explained. “We know from doing work in classrooms previously that they are isolated, victimized, don’t have friends and aren’t well-liked, as a group,” he continued, adding that this puts them at increased risk for getting picked on and bullied. “I felt like I had an obligation based on the data to try to think of doing something that would make a difference.”

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‘Her Battle Was Transformational’: A Father’s Childhood Cancer Journey

by Peter Smith
October 21, 2014 0 comments

Peter’s daughter Maddie was diagnosed with childhood cancer in February 2011. After a long journey of surgeries, chemo and radiation, the 4-year-old girl’s scans have been clean and her father has been profoundly changed by the experience. Peter explains.

Peter's daughter Maddie fought childhood cancer and finished treatment three years ago

Peter’s daughter Maddie fought childhood cancer and finished treatment three years ago. She has been declared NED or no evidence of disease.

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Forever an Inspiration: Emily’s Story

by Erinn Unger, St. Baldrick's Foundation
October 17, 2014 0 comments

Emily was diagnosed with a brain tumor when she was 5 years old. An avid cheerleader and dancer with a vibrant spirit, she rallied everyone around her throughout her childhood cancer journey. Help kids like Emily. Get involved.

Emily kept a positive attitude during her treatment for childhood cancer

Emily was a cheerful girl who loved cheerleading and dancing, even during treatment for a glioblastoma tumor.

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The Lucky Ones: Our Family’s Journey With ATRT

by Lori Huebner Avila
October 16, 2014 0 comments

At 6 years old, Issy has twice fought — and survived — one of the deadliest brain tumors in children. His mom, Lori, tells their family’s story. Help kids like Issy. Get involved.

Israel with his mom, Lori, while he was in treatment for childhood cancer

Lori with her son, Issy, while he was in treatment for a brain tumor.

Our story of childhood cancer began when our son, Issy, was 6 months old and did not successfully learn to eat solid foods. This “food aversion” followed us around to doctor visits and hospital admissions for the next seven months, until someone finally ordered an MRI. His original diagnosis of failure to thrive was corrected to brain tumor.

Childhood cancer entered our life that quickly when he was 13 months old. Five years later, I have finally accepted it will never leave.

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Fundraising Tips

VEOs: 5 Tips to Grow Your Event

by Robb Drzewicki and Eric Bacyinski
October 14, 2014 0 comments

Volunteer Event Organizers Robb Drzewicki and Eric Bacyinski aren’t content with raising the same amount for childhood cancer research year after year. Get the inside scoop on how their event at The Plymouth Roc grew from $12,000 raised in 2011 to $58,000 in 2014. Want a hint? There’s no magic involved — just old fashioned teamwork, social media savvy, creativity and loads of fun.


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Family Loses 7-Month-Old Son to Childhood Cancer

by Erinn Unger, St. Baldrick's Foundation
October 13, 2014 0 comments

During a vacation to Disneyland, the Devaty family experienced loss no family should ever have to endure. Be a part of the fight against childhood cancer — donate today.

Jonah was a smiling, happy baby who loved music, his pacifier and watching his big brother, Jakub, play with Hot Wheels

Jonah loved music, his pacifier and watching his big brother, Jakub, play with Hot Wheels.

Joe, his wife and their two youngest boys drove south from their San Francisco Bay Area home together a couple days after Thanksgiving, looking forward to a family vacation at Disneyland.

Little Jonah seemed perfectly fine on the way down. He was a born traveler, his dad said.

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St. Baldrick’s Researcher Puts Care in the Patients’ Hands With an iPad App

by Erinn Unger, St. Baldrick's Foundation
October 10, 2014 0 comments

St. Baldrick’s Supportive Care Grant Recipient Dr. Lauri Linder used tablets to help adolescent and young adult patients communicate their symptoms and take hold of their childhood cancer treatment experience with both hands. Help researchers like Dr. Linder continue supporting kids with cancer. Donate today. 

St. Baldrick's researcher developed an iPad app to help patients describe their symptoms

St. Baldrick’s researcher Dr. Lauri Linder developed and studied an iPad app which allowed childhood cancer patients to communicate their symptoms digitally during treatment. Photo by Kristan Jacobsen

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St. Baldrick’s and the Miracle Party Foundation Celebrate Kids With Cancer

by Jeremy Bliler
October 9, 2014 0 comments

St. Baldrick’s Foundation has a new partnership with the Miracle Party Foundation, known for an annual celebration in Denver, Colorado for children and families impacted by childhood cancer. Join in the celebration by helping fund childhood cancer research — donate today.

Kids walk the gold carpet at the Miracle Party for families impacted by childhood cancer

Kids walk the gold carpet at the Miracle Party for families impacted by childhood cancer. Photo by Brody Hall.

In a hospital room a dream began. What started as an end-of-chemo party has become one of the largest events in the United States for children fighting cancer. We take a trip to Denver, Colorado on September 20, right in the middle of Childhood Cancer Awareness Month.

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