Research

New Clinic Aims to Help Sarcoma Survivors Live Long, Healthy Lives

by Erinn Unger, St. Baldrick's Foundation
July 1, 2015 0 comments

The challenges for kids with sarcoma don’t end when they hit five years cancer-free. Like survivors of other childhood cancers, these kids are at higher risk for heart disease, diabetes, kidney failure, and a host of other problems as they grow up. The Sarcoma Survivorship Program headed by St. Baldrick’s researcher Dr. Laurence Baker aims to help survivors of childhood cancer overcome those issues and live long and healthy lives.

Dr. Laurence Baker stands with his team

The Sarcoma Survivorship Program team, from left to right: cardio-oncologist Dr. Monika Leja, medical oncologist Dr. Larry Baker, nurse practitioner Amira Deep, and cardiology nurse Kelly Siedlik.

There’s a terrible reality faced by sarcoma survivors — that the therapies needed to treat their cancer, like chemotherapy and radiation, can then cause other health problems and even shorten their lives years after being cured.

Dr. Laurence Baker created the Sarcoma Survivorship Clinic at the University of Michigan’s Frankel Cardiovascular Center to intervene in that cycle.

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Advocacy

A Win in Washington for Childhood Cancer Research

by Danielle Leach, Director of Government Relations & Advocacy and Kevin Mathis, Sr. Legislative Counsel, St. Baldrick’s Foundation
June 30, 2015 0 comments

Our advocacy leaders have been busy working with Congress to make pediatric cancer funding a national priority. While negotiations will continue, the preliminary funding agreements are in from the House and Senate, and we’ve got the details for you right here. (Spoiler alert: There’s good news for pediatric cancer research!)

Advocates gathered in Washington, D.C., for Childhood Cancer Action Days 2015

Advocates gathered in Washington, D.C., for Childhood Cancer Action Days 2015.

A few months ago, the St. Baldrick’s Foundation — as part of the Alliance for Childhood Cancer — sent a letter to Congress, urging lawmakers to provide more funding for medical research and within those funds, to make pediatric cancer a higher priority.

All told, 91 childhood cancer organizations came together to sign our letter to Congress, and I’m excited to say that our hard work is starting to pay off!

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Research

St. Baldrick’s Researcher Discovers New Target in the Fight Against Neuroblastoma

by Erinn Unger, St. Baldrick's Foundation
June 29, 2015 0 comments

St. Baldrick’s Scholar Dr. Muller Fabbri, of the Saban Research Institute at Children’s Hospital Los Angeles, just published exciting new research — he and his team learned that one of the keys to cancer’s survival lies in communication. Read on for how his discovery could unlock new gene therapies for kids with drug-resistant neuroblastoma.

Dr. Fabbri gives us a biology lesson

Dr. Fabbri explains his research to a visiting group of St. Baldrick’s staffers.

Years ago, over a salad and a carton of yogurt at a campus deli, Dr. Muller Fabbri had an idea.

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Head-Shaving Fundraisers

Radio DJ Uses His Voice for Children With Cancer

by Kevin Crockett
June 26, 2015 0 comments

Philly radio DJ Kevin Crockett tells us about the first time he shaved with St. Baldrick’s, the little boy who inspires him, and how he’s giving hope to kids and families fighting childhood cancer.

Kevin Crockett's shave for St. Baldrick's

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Families

Chase’s New Glasses

by Ellie Ewoldt
June 23, 2015 0 comments

Last week, 5-year-0ld Ambassador Chase got glasses. His mom, Ellie, shares the details of their eventful trip to the eye doctor, the ensuing diagnosis, and how it feels to know that Chase’s vision problems are a direct result of the treatment he needed to save his life.

Chase eats a popsicle while sporting his new glasses

Chase examines a popsicle through his new glasses.

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Head-Shaving Fundraisers

And the 2015 #BestBaldDad Is…

by St. Baldrick's Foundation
June 21, 2015 0 comments

With 98 photo submissions — our biggest turnout yet — this year’s #BestBaldDad contest made for some tough decisions. How could you not vote for all of them?

After thousands of votes and countless requests to crown them all as the #BestBaldDad, we finally have our top three winners, each receiving a prize from our St. Baldrick’s shop and baldisbeautiful.com!

Introducing your 2015 #BestBaldDad winners:

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Families

10,000 Kisses: Father’s Day Without Sammy

by Michael Sommer
June 19, 2015 0 comments

As Father’s Day approaches, Ambassador Sam’s dad, Michael, remembers his son and how he inspired him to be the best dad he could be.

Michael, David, and Sam

Michael with his two oldest sons, Sammy (left) and David, in August 2013.

Father’s Day has never been that important to me. I don’t really believe in Hallmark holidays when we should appreciate the people and parents in our lives every day. All I know is I try to be the best father I can be, and some days I succeed and some days I fail.

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Head-Shaving Fundraisers

10 Things You Should Know About the 46 Mommas

by St. Baldrick's Foundation
June 18, 2015 0 comments
46-Mommas-first-event-holding-hands

The 46 Mommas’ first shave in 2010. Photo by JNP Studios

The 46 Mommas are legendary here at St. Baldrick’s. Each year, mothers of children with cancer gather to shave their heads and raise money for children’s cancer research.

But did you know these 10 things about the 46 Mommas?

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Head-Shaving Fundraisers

Father and Son Take On Childhood Cancer by Going Bald Together

by Erinn Unger, St. Baldrick's Foundation
June 17, 2015 0 comments

Father and son duo Greg and Jaxon, also known as The Cope Boys, have shaved together for five years and they’re not stopping any time soon. What keeps them coming back to the barber’s chair for more? Read on to find out.

The Cope Boys smile after shaving together in 2013.

Greg Cope’s son, Jaxon, was just 4 years old when he decided to shave his head for kids with cancer.

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Advocacy

Ambassador Lauren Heads to Capitol Hill for Childhood Cancer Action Days

by Lauren Bendesky
June 15, 2015 0 comments

Today, 2014 Ambassador Lauren is among more than 300 childhood cancer advocates in Washington, D.C., fighting to make childhood cancer a national priority. Here’s what she wants Congress to know.

St. Baldrick's Ambassador Lauren Bendesky

As I prepare to speak on Capitol Hill for Childhood Cancer Action Days, I can’t help but look back on my grueling journey with pediatric cancer.

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