Honored Kid

Kale W.

Age 10
Kale W. Kid Photo

Location

Boonville, MO, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

March 2019

Status

In treatment

Treated At

MU Women's and Children's Hospital

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My Story

Kale was 8 years old when diagnosed. A couple of weeks following a tonsillectomy/adnoidectomy, Kale developed some lymph nodes on his neck, he was vomiting bile in the mornings, had loss of appetite and was very tired and sluggish. The morning of his diagnosis he woke up with petechiae and a bloody nose that wouldn't quit. Our regular doctor was out of town so we saw a doctor we'd never seen before. Dr O'Connor trusted his instincts and sent us over for lab testing. Kale's appointment was at 8:45am, and by noon we were admitted to the hospital and they told us our son had a blood cancer. Everything happened so fast. Our boy began the fight of his life, and as predicted has leaving his mark along the way. We have been blessed with a phenomenal Hemoc team and pediatric nurses. They have become family, providing for us a safe, trusting environment in which to thrive. It was found that Kale had a genetic mutation caused by his leukemia called CDK2NA which significantly lowered his chances of kicking ALL. It put us on a track for bone marrow transplant and increased his chance of recurrence - it's a chemo resistant mutation. That was a devastating punch to sit and listen to a doctor give you percentages of your child surviving, she kept saying "poor outcomes." With ALL, the patients response to the first 30 days of intensive treatment is very important to their overall survival and remission. Kale miraculously was found to be in remission AND his mutation killed at the end of that first 30 days. The overall chances of that happening were very slim, so we praise God for his hand in Kale's treatment. He has 3 years total of treatment. Kale is a remarkable kid. He has always been a fun loving, joke telling, big hearted kid, and I believe that has been key to his treatment. Each hospital stay he has left his mark with the nurses, telling jokes, pulling pranks, telling stories, and sharing smiles and hugs. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

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Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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