Honored Kid

Ava S.

Age 14
Ava S. Kid Photo

Location

Mobile , AL, US

Diagnosis

Spindle Cell Sarcoma

Date of Diagnosis

September 2019

Status

In treatment

Treated At

Children’s of Alabama

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick's Foundation, you're supporting research to give all kids with cancer a better chance for a cure.  Ava is a goofy, fun loving girly girl. Quick to make a silly face and always ready for a fun time. She likes adventures and crazy videos she finds on YouTube. She loves her hair done and a dress as much as her Nike shorts and over-sized tee. This is Ava. Remember this, because it is important. This is what defines her. Not her diagnosis. Ava had a large soft tissue mass removed from her leg and the pathology has comeback as Spindle Cell Sarcoma. It is rare and it is considered an unspecified aggressive cancer. There is no staging for this as it seemed to be localized, meaning the scans do not show spread. Her chemotherapy will be every 3 weeks, she will be in patient for 1 week in Birmingham and then come home to Mobile. Radiation will start in the middle and will receive 33 rounds. Ava will have Doctors here in Mobile that will check her white cell count and monitor her health. We will have to wait to start treatment until her leg heals more because she has too much breakdown of her skin right now. We began a wet to dry dressing change to make sure this heals before chemo since chemo will also kill good cells in her body. This page is to share updates, fundraisers, hopes and prayers. Please join Team Ava in supporting our precious Ava as she goes through treatment and adapts to her new normal. Update: 5/18/2020 After a long day of MRI w/without contract, chest CT and clinic visits. Ava’s doctors called me this morning and MRI suggested she needs further testing. This is not the news we wanted, but understand it could mean many things. It could mean they are seeing radiation changes, scar tissue, and/or infection. Because we all know her leg has been through it and so much could heal oddly under the skin along with the 33 rounds of radiation it also endured. A PET scan will be done on Thursday this week so we will be staying in Birmingham until then. Please pray that this is just for extra precautions. Please pray this test will show she is healed and just normal changes. Please pray for strength for Ava to get through this last long test. Her chest CT was all clear! We will take all the good news we can get right now..My friend sent me this beautiful post, this last night, “The Lord will fight for you; Ava. You need only to be still.” Exodus 14:14. Really need to read this again today.  Update: 5/22/2020 Ava's Pet Scan did shows a hot spot which her doctors are concerned about. We will be heading back up to Birmingham on 5/26/2020 to have a U/S guided biopsy to try and a sample of this are. 

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