Honored Kid

Violet R.

Age 13
Violet R. Kid Photo

Location

Noblesville, IN, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

April 2019

Status

In maintenance

Treated At

Peyton Manning Children's Hospital at St. Vincent

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. I am a 9 year old girl who was diagnosed with T Cell Acute Lymphblastic Leukemia on April 15, 2019. I am coming up on my year anniversary and still getting treatment at Peyton Manning Children's Hospital, in Indianapolis, IN. Me and my family have faced many obstacles over the past year. We have spent over 3 months in the hospital for different reasons. I have not been back to school and have missed my 3rd grade year, with my teacher and friends. My school work has been done at home and in the hospital and I am keeping up with my schoolwork with the help of my homebound teacher and my teacher at PMCH. I have been through a year of chemotherapy and have endured many side effects from treatment, causing me to be hospitalized. I have had a brain abscess and have had to have 3 brain procedures and have a permanent shunt in my head. I have had pancretitis multiple times, abscess may have been caused by me losing a tooth and getting an infection. I have had C-Dif caused by combination of a compromised immune system, many months of antibiotics and possibly caught in my stay in the hospital. Today I am home and doing better. My last stay in the hospital was only 3 weeks for a fever, pancreatitis and C-Dif.  I am almost to maintenance, which means I will take oral chemo for 2 more years and come to clinic to get additional doses of chemo through my port. The frequency of my visits will decrease, but I will still be getting some of the same treatments I have had over the last year. Hopefully, I will be able to return to school soon and get back to a more normal life. My mom has documented my journey on Facebook - Victory for Violet, and it has been adventurous. We have met so many amazing people along the way. We have a great medical family and the families we see at clinic and during our hospital stays have been a great support. The healing arts, school, and pet therapy have also been very helpful in this journey. Me and my family are very appreciative of any support you provide to pediatric cancer.

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