Honored Kid

DeSean B.

Age 8
DeSean B. Kid Photo

Location

Elko, NV, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

April 2019

Status

In treatment

Treated At

Primary’s children’s hospital

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. DeSean had just turned 5 on April 4, 2019 two weeks after he was diagnosed with leukemia there is no stage in this type of cancer because the cancer is in all his bloodstream they just call it by how high risk he can be. After getting his port placed in his chest he developed a blood clot on his tube which caused him to become high risk. He was placed on lovenox vaccines 3 times a day for 6 months, on top of chemo and weekly lumbar punctures. After a month of chemo, steroids, lumbar punctures they did a bone marrow aspirate and results still came back positive with cancer cells so they said now he is even higher risk. Meaning stronger chemos each time he goes up on the higher risk status. His treatment is for 3 1/2 years, we live 3 hours away from primary’s children’s hospital since we have started we have had to do weekly drives and stay down there for 2-5 days or a month depending what was next for him in treatment. When he did inpatient we had to stay in the hospital up to 5 days. By his 2nd bone marrow aspirate he finally came back clear of cancer cells in his bone marrow and his blood clot too had cleared up, he did have an allergic reaction to a very important chemo called the peg they tried to infuse it slowly it took 16 hrs and he had 3 allergic reactions in the process of infusion. That peg was pointless because his body didn’t take it so they had to go with an alternative called the Erwinia it’s 2 weeks of chemo because it’s 1 day on 1 day off. He gets that Erwinia couple times through his treatment. We are still quite a way from reaching maintenance. DeSean has been so strong showing us everyday that no matter if he’s hurting or tired he keeps enjoying his days the best he can. My heart goes out to all the families dealing with any type of cancer it is one the ugliest and hardest things to deal with to live with and to stay strong at times. Families are ruined at times and lives have been taken from this. Every battle is hard in its own way but we have to remember that no one fights alone support is the best thing to have.

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