Honored Kid

Vinny A.

Age 7
Vinny A. Kid Photo

Location

Surfside Beach, SC, US

Diagnosis

Rhabdomyosarcoma

Date of Diagnosis

November 2018

Status

In treatment

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My Story

November 21st 2018, Vinny was diagnosed with stage 3 group 3 rhabdomyosarcoma of the prostate and bladder. Vinny is at week 37 of 67 chemotherapy treatments. He also received 30 proton radiation therapy treatments to the 8cm mass in Jacksonville, Florida. The tumor has shrunk in half but the radiation has caused side effects. The original plan included a recontruction of his bladder with bowel tissue after radiation. But, due to colon and rectal burns from radiation that is no longer possible. He is now incontinent and back in diapers. The near future is still un known if he will need a urostomy bag and/or colostomy bag. The radiation also caused neuropathy in his legs and feet. He gets weekly physical therapy trying to avoid getting bilateral hip replacements. There is a tremendous amount of anxiety waiting for the next round of scans, but at this point we are so lucky to still be a family of 5. 

The Childhood Cancer Ripple Effect

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Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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