Honored Kid

Naaman J.

Age 5
Naaman J. Kid Photo

Location

Meriden, CT, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

July 2018

Status

In treatment

Treated At

Yale-New Haven Children's Hospital

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. In July of 2018, our 16 month-old Naaman was enjoying life like any other toddler. Following a trip to the pediatrician to check on what seemed to be yet another ear infection, she noticed his profuse bruising and sent us for bloodwork right away. Straight to the ER where Naaman was diagnosed with pre-B cell Acute Lymphoblastic Leukemia (ALL). Our lives were uprooted in a new world of terms, people, places, and situations we never knew existed. Within a few weeks, we also learned that he had a rare mutation called Philadelphia-like ALL with a less successful cure rate. Fortunately, there was a clinical trial taking patients at Yale Cancer Center, where he is treated. Naaman neared the maintenance phase when he suffered complications from a chemo medication and developed veno-occlusive disease, wrecking havoc on his liver and causing multi-system failure. It was more critical and more frightening than diagnosis. By the grace of God, skilled teams at Yale, and love from family and friends, Naaman is recovering and is almost well enough to resume chemo. We feel naive with how little we knew about childhood cancer before it happened to us. Thank you, St. Baldrick's, for helping to change the course of childhood cancer's impact.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help Give Kids a Lifetime

Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

Support lifesaving childhood cancer research today.

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