Honored Kid

Dylan T.

Age 13
Dylan T. Kid Photo

Location

Hillsborough, CA, US

Diagnosis

Osteosarcoma

Date of Diagnosis

January 2016

Status

No evidence of disease

Treated At

Lucile Packard Children’s Hospital

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My Story

In October of third grade, Dylan was running at recess when he fell and tripped on a rock. Thinking he fractured his arm, he had an x-ray which revealed something not quite right in his left humerus. A couple months later when the area started to swell, it was diagnosed as osteosarcoma. 


Dylan began treatment in January 2016 when he as nine years old. In that first year, he received chemotherapy, an investigational immunotherapy, and underwent resection and reconstruction of his humerus with a metal implant, as well as lung surgery. 


After a year of countless days and nights at the hospital, Dylan was excited to resume 4th grade in the fall of 2017 and the normal life of a 10 year old. But in March of 2017, Dylan relapsed in both lung and soft tissue. So for the next 6 months, Dylan received second line chemotherapy, as well as radiation therapy. 


He returned to 5th grade in the fall of 2017 and graduated elementary school with his class, and has since started middle school. Aside from one week off school for a thoracoscopy to remove a lung nodule, Dylan was able to attend all of 6th grade. He will be starting 7th grade in the fall of 2019. 


Prior to his osteosarcoma diagnosis, Dylan was an avid soccer and basketball player. Since he now has to avoid contact sports, he favorite hobbies are now Legos, cooking, and video games. But that hasn't stopped him from being active. Even without full function of his left arm, Dylan has adapted quickly and can ride a bike, zipline, kayak, swim, and lots of other things that surprise us each day. Beyond what he can do physically, Dylan amazes us with his mental resilience.  


Given Dylan's history of relapse, we have utilized genomic sequencing and functional drug testing to help pinpoint potential targeted therapies that are less toxic than chemo and may be able to help prevent metastasis. Dylan has been on a few maintenance targeted therapies that have allowed him to still attend school and lead a normal life of a 12 year old. As such, we urgently support research to find effective treatment options for osteosarcoma so that one day there will be a 100% survival rate.



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