Honored Kid

Aryia R.

Age 5
Aryia R. Kid Photo

Location

Santa Maria, CA, US

Diagnosis

Neuroblastoma

Date of Diagnosis

September 2018

Status

In treatment

Treated At

Children's Hospital Los Angeles

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My Story

Aryia has always has so much life in her. Being outside playing was her favorite place to be, the playground was a daily place to run her energy out. She loved gymnastics every Saturday morning with her friends, she had no fear. Then right before summer started she started complaining of stomach pains. We took her for checkups and was told she was backed up, Miralax was prescribed. The stomach aches continued, by the end of July beginning of August we were at the doctor's office weekly. Xray, blood work, urine samples were done, everything came back negative. She slowly started not being our playful little Aryia, missing 2 months of gymnastics because of pain. Many trips to the ER because she was screaming in pain and wasn't sleeping or eating. She wasn't herself. The ER said she needed to see a GI doctor, and I had to fight the pediatrician to get a referral. The referral took what felt like forever. We eneded up having to take her to the ER again, and this time we insisted an ultrasound which we had to fight for because they said her labs came back normal. I knew something was wrong. I never expected to be thrown into the cancer world. Our hearts dropped. We were rushed by ambulance 3 hours south to Childrens Hospital LA. Childrens Hospital LA diagnosed Aryia with Stage 3 HR Neuroblastoma She has had 6 rounds of chemo; surgery -90% of the tumor was removed and the left adrenal gland was removed, 1 round of Stem Cell Transplant.After she recovers from each treatment she bounces right back to herself, running and playing. She is our little warrior. On February 11, we were told she was NED. Aryia will be admitted April 22nd for her second Stem Cell Transplant. Aryia looks forward to the day she doesn't have to have treatment and can go back to gymnastics.

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