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Honored Kid Karly D. Age 17

Karly D.'s Photo
Location
Farnham, VA, US
Diagnosis
Pontine Glioma
Date of Diagnosis
June 2004
Status
In maintenance
Treated At
Children's Hospital of The King's Daughters

Message

Karly is a 7yr old little girl who brightens the lives of all those who know her. She was born with a rare genetic disorder known as MPS-1 (mucopolysaccharidosis) or Hurler syndrome. Around the age of 3 years she started an enzyme replacement therapy that she receives weekly for her MPS-1 and then at the age of 4 she was diagnosed with a pontine glioma (brain stem tumor). Every time you see Karly, the lasting impression is her smile.
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