Honored Kid

Mackenzie C.

Age 11
Mackenzie C. Kid Photo


West Allis, WI, US


Brain or spinal cord tumor

Date of Diagnosis

May 2018


In treatment

Treated At

Children's Hospital of Wisconsin

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My Story

Mackenzie was diagnosed with metastatic large cell/anaplastic Group 3 Medulloblastoma with MYC-C amplification in May of 2018. Doctors discovered she had 4 tumors in her brain, in addition to two separate tumor areas in her spine. She endured an 8 hour long surgery that was able to remove almost all of the primary tumor site, with a small amount left on the brain stem. Since surgery she has suffered from PFS, where has had to learn to walk all over again, switched from right dominate to left dominate, and attends weekly PT and OT sessions to assist with gross and fine motor skills. She received 31 sessions of radiation to her brain and spine and is finishing up her seven months of maintenance chemo. Mackenzie's scans have remained "stable," which is a blessing, as her particular diagnosis has a very high percent rate of relapsing. And unfortunately, there is no set protocol or known "cure" for relapsed Medulloblastoma. 

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