Honored Kid

Ryan Mott

Ryan Mott Kid Photo


Fredericksburg, VA, US


Brain or spinal cord tumor

Date of Diagnosis

June 2015



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My Story

On June 16, 2015, Ryan Mott at the age of 8 was diagnosed with a rare aggressive form of brain cancer, DIPG. DIPG is inoperable and incurable. The only treatment is 6 weeks of radiation. Ryan was treated at NIH under the care of Dr. Warren, and he was on a clinical trial for oral chemotherapy. Most children die with the first year after being diagnosed with DIPG. There is no cure. Ryan passed away after battling 8 months. We decided to donate his brain and spine for medical research in hopes we can understand DIPG more and help find a cure.

The Childhood Cancer Ripple Effect

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