Honored Kid

Elise R.

Age 15
Elise R. Kid Photo

Location

Biloxi, MS, US

Diagnosis

Langerhans Cell Histiocytosis (LCH)

Date of Diagnosis

March 2010

Status

In maintenance

Treated At

St. Jude Children's Research Hospital Children's Hospital of New Orleans Le Bonheur Children’s Hospital

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My Story

Elise was diagnosed with LCH disease in 2010 at Seattle Children's Hospital. Given the slow growth and size of the tumor and location, doctors felt it best to monitor her and treat her symptoms. In April of 2015 we got a call from the school notifying us that Elise said the room was going dim. We rushed her to New Orleans Children's where they informed us it was time to treat the tumor. There she would undergo 9 months of  chemo. The tumor did not shrink but also did not grow so the thought was she might be in remission. When we went in for the one month post MRI we found that the tumor had double in size and she was days away from losing her vision. We rushed her to Le Bonheur Children's Hospital at the recommendation of her hematologist in New Orleans where Dr. Boop and his team would biopsy the tumor on her pituitary. He diagnosed her with Pure Germanoma Brain Cancer, a usually rapid growing cancer, very rare, but a high cure rate with treatment. She got the biopsy on a Friday and started treatment on Monday at St Jude Children's Research Hospital. There Dr Armstrong and Dr Tinkle and their team, would treat her with the latest research of chemo therapy and the new proton radiation therapy that targets just the tumor. We would be at St Jude, mostly inpatient, for the next 6 months. We were told she would be in medical books as they have never seen this type of cancer behave this way before. Today Elise is six months post treatment, on A/B honor roll at school  and getting back to just being a healthy 11 year old girl! Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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