Honored Kid

Alexzander L.

Age 13
Alexzander L. Kid Photo

Location

Trenton, NC, US

Diagnosis

Rhabdomyosarcoma

Date of Diagnosis

July 2015

Status

In treatment

Treated At

UNC Children's Hospital

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My Story

Alex was diagnosed with rhabdomyosarcoma on July 14th, 2015. He was 6 years old, he has been in treatment for 12 months so far and his protocol goes until September/October. He had a PowerPort put in last July, he's had two lung biopsies, a cheek biopsy, two chest tubes put in, he's been on a ventilator one time and has endured so much more. He was diagnosed with a tumor in his right cheek, and two in his lungs. As of right now the one in his cheek has shrunk a couple centimeters and one in his lungs is dead but hasn't changed in size, and the other one ended up being a lympnode. He went through 6 weeks of radiation, 28 days on his cheek and 10 days on his lungs. His chemo was originally supposed to end August of this year, but due to setbacks he's not going to finish until September/October. He has had complications with his heart, the right side wasn't "squeezing" as hard as it should and that slowed the blood flow to his lungs, and he ended up getting a blood clot in his lungs and one in his heart at the end of his port. He's been getting two shots a day since, in addition to his normal meds which already includes one shot. He's had a long road and continues to have a long journey ahead of him. We have been surrounded with love and support and he has the most amazing doctors I could ask for. We continue to ask for prayers and support through this trying time as it can get rough.

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