Honored Kid

Kamron Mains

Kamron Mains Kid Photo

Location

Carmichael, CA, US

Diagnosis

Glioblastoma Multiphase IV

Date of Diagnosis

September 2010

Status

Angel

Treated At

Arnold Palmer Hospital For Children University of Texas M.D. Anderson Cancer Center Shands Hospital for Children

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My Story

Kamron was only 6 years old when he was diagnosed with Glioblastoma Multiforme (GBM), an aggressive form of brain cancer on 9/29/2010. Unfortunately in the United States, there is very, very little research on pediatric GBMs, as this is something that occurs more commonly in adults. My spouse and I researched into want kind of clinical trials there were available in the US and even had our eyes open to things in Mexico and overseas. There were less than 5  available, but it depended if he was even qualified to fit in for the trial based on the type of tumor he had. As fast as this tumor was growing, Kamron had 8 brain surgeries, but every time, the tumor grew back with vengeance. He underwent chemotherapy and radiation, however, that only made his condition worse too. My son could no longer walk, talk, and started getting seizures. He could not even go to the bathroom without being in diapers. It was sad to see what was happening to his life. It was quantity versus quality left in his life.  I knew and accepted the fact that he was going to be in the hands of the lord and the decision was made to spend the rest of his precious days at home with family, his brother, grandparents, and the hospice nurse could simply could treat him and flush his port as needed. Within two weeks on 11/26/2011 around 9:30pm, my son's breathing got heavier and heavier and his eyes closed.  I will never know why to this day, but I miss my ANGEL so much. He was everything to me. I love you Kamron! Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

The Childhood Cancer Ripple Effect

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